Immune Deficiency Foundation
Immune Deficiency Foundation
This podcast is a service of the Immune Deficiency Foundation — a nonprofit organization dedicated to improving the diagnosis, treatment, and quality of life of people diagnosed with primary immunodeficiency, or PI. "Bold Conversations" is a program that explores the harsh realities of health access in the United States. Hosted by Dr. Nicole Rochester."Undiagnosed" is a narrative docuseries on that tells the true stories of PI patients and their long journeys to proper diagnosis and treatment. To learn more about primary immunodeficiency, the PI community, or to support the foundation as a don...
Author
Immune Deficiency Foundation
Category
Podcast website
Latest episode
Jun 16, 2026
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Episodes
Being Independent - Part of the Teen Series 11.08.2020 38:53
Figuring out your journey through life can be tough, especially as you grow older and more independent. One of the best parts of being a teenager is having a little freedom and making your own decisions. In this episode, Keegan Hartman is with us to discuss how to manage our health while learning how to be more responsible for our own life choices.
Common Variable Immune Deficiency (CVID) - A Diagnosis-Specific Episode 16.03.2020 41:43
Common Variable Immune Deficiency, or CVID, is just one of the more than 400 primary immunodeficiencies, characterized by low levels of serum immunoglobulins and loss of antibodies, which causes an increased susceptibility to infection. While it is considered “common” compared to other immune deficiencies, questions still remain about the diagnosis, treatment, and well-being for people living with...
Hemophagocytic lymphohistiocytosis (HLH) - A Diagnosis Specific Episode 20.03.2019 35:34
Hemophagocytic lymphohistiocytosis (HLH) is a severe systemic inflammatory syndrome that can be fatal. HLH occurs when histiocytes and lymphocytes become overactive and attack the body rather than just bacteria and viruses. Join the Immune Deficiency Foundation as we sit down with Dr. Michael B. Jordan, from Cincinnati Children’s HLH Center of Excellence, to discuss the identification and manageme...
College Concerns - Part of the Young Adult Series 28.11.2018 29:20
The transition to college is both stressful and exciting. For those living with a chronic disease like a primary immunodeficiency (PI), adjusting to campus life can be even more challenging. College students with a chronic condition generally require strategies to balance academics, socializing, and managing their disease. In this episode, the Immune Deficiency Foundation explores resources for co...
Employment and PI - Part of the Young Adult Series 07.11.2018 37:22
For people with primary immunodeficiency diseases (PI), employment is about more than just making money and job satisfaction. You need a job that will allow you to perform at a high standard with your diagnosis and will offer good health insurance benefits. There are many young people with PI who have amazing jobs. Join this Immune Deficiency Foundation (IDF) podcast and learn how you can be one o...
Coping with the Emotional Dimensions of PI - Part of the Young Adult Series 17.10.2018 35:36
People living with chronic illnesses know the physical toll it takes on the body. But it also takes an emotional toll and understanding how you are feeling mentally is as important as understanding how you are feeling physically. This podcast episode explores the emotional and psychological impact of a primary immunodeficiency disease (PI) in young adulthood, the connection between our minds and b...
Taking Control of Your Healthcare Management - Part of the Young Adult Series 24.09.2018 37:58
Young adults with primary immunodeficiency diseases (PI) must develop independent disease self-management skills as they transition from pediatric to adult-oriented healthcare systems. Join this podcast episode from the Immune Deficiency Foundation (IDF), learn about how young adults can best manage their PI and find a balanced approach to healthcare and life.
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