IgAN Journey

In this special episode, Bonnie Schneider, co-founder of the IgA Nephropathy Foundation, shares her journey and reflects on 20 years of service to families affected by this rare disease. When her son Eddie was diagnosed with IgA Nephropathy (IgAN) at age 13, Bonnie and her husband felt lost and isolated. This profound experience motivated them to create a foundation that would ensure no family fel...

November is Caregiver Awareness Month and, in this episode, Yulanda Brown and Steve Mayo talk candidly about their IgAN journey and how staying centered on what brought them together has helped them grow closer despite their struggles. Yulanda's diagnosis came as a shock for both. The uncertainty and lack of information about the disease left them grappling with fear and confusion. There is a very...

Living with IgA Nephropathy (IgAN) means not only managing the disease itself, as well as the related fatigue and other related health concerns, but also coping with the mental and emotional challenges come with having a chronic health concern. Patients may experience feelings of loss, depression, fear, denial, anger, or frustration over changes to their health and uncertainly of what the road ahe...

Compared with other kidney diseases, IgA Nephropathy tends to strike at younger ages, often coinciding with starting a career and/or having a family. While pregnancy is possible for women with IgAN, it's not without its challenges. Planning for a family with IgAN requires early planning and close monitoring to achieve the best possible outcome for both mom and baby and to determine if the risks of...

For many people, uncontrolled or unexplained high blood pressure may be the first sign of IgA Nephropathy (IgAN). That's because when the filtering capabilities of the kidneys are damaged, as is the case with IgAN, blood pressure can rise. In turn, elevated blood pressure can further damage the kidneys. The two are interconected. In fact, about 9 out of 10 people with chronic kidney disease have h...

IgAN Journey is dedicated to those affected by IgA Nephropathy (IgAN) and, in this episode, we have the pleasure of hearing from Texas Senator Kelly Hancock whose positive outlook has helped him live his best life despite his diagnosis with IgAN over 30 years ago.  His diagnosis came at a time when much less was known about the disease, and there was so much uncertainty. Senator Hancock and his fa...

  In this episode, and in honor of Caregiver Awareness Month, Bonnie Schneider, co-founder of the IgA Nephropathy Foundation talks openly about her journey as a caregiver to her son, Eddie, and growing the Foundation. She offers practical advice and tips for how to navigate this journey as a caregiver or care partner to someone with IgAN, including letting go of guild and taking time to recharge,...

Are you ready to embark on a journey of healing and self-discovery? Welcome to "IgAN Mindful Moments," the podcast that explores the transformative power of mindfulness for individuals living with IgA Nephropathy. One big misconception many people have is that meditation is about clearing or emptying your mind. Thats not possible. Nor it is our goal. Howver, there is a big difference between "thin...

Are you ready to embark on a journey of healing and self-discovery? Our "IgAN Mindful Moments" series explores the transformative power of mindfulness for individuals living with IgA Nephropathy. In this episode, we explore the concept of healing hands and their ability to transmit positive energy and healing vibrations. Join us as we guide you through a meditation designed to channel this energy...

Are you ready to embark on a journey of healing and self-discovery? Our "IgAN Mindful Moments" series explores the transformative power of mindfulness for individuals living with IgA Nephropathy. In this episode, we explore the power of deep belly breaths as a way to manage stress and promote overall well-being for individuals with IgA Nephropathy. Join us on a journey of self-discovery, as we gui...

Are you ready to embark on a journey of healing and self-discovery? Our "IgAN Mindful Moments" series explores the transformative power of mindfulness for individuals living with IgA Nephropathy. Dive into a transformative experience with our body scan meditation. We'll take you on a journey through your own body, helping you connect with your physical sensations and gain insight into managing sym...

Are you ready to embark on a journey of healing and self-discovery? Our "IgAN Mindful Moments" series explores the transformative power of mindfulness for individuals living with IgA Nephropathy. Cultivate a sense of gratitude in your journey with IgA Nephropathy. In this episode, we'll explore the healing potential of gratitude through guided meditation. You'll learn how to harness the positive e...

Are you ready to embark on a journey of healing and self-discovery? Our "IgAN Mindful Moments" series explores the transformative power of mindfulness for individuals living with IgA Nephropathy. Visualization is a powerful tool for achieving your health goals. In this episode, we invite you to imagine your body's innate ability to heal. Through a series of guided visualizations, you'll envision a...

Using sound to meditate can help anchor your mind, allowing you to let go of distractions or thoughts that don't ultimately serve you. Most of the human body is water, so researchers believe sound vibrations work in the body to help produce a calming effect.  Join Franck Raharinosy as he guides you through meditation by immersing yourself in sound, focusing on your breath and being in the present....

Meditation has been around for thousands of years, and it turns out it's pretty good medicine for many people.  Not only can meditation help us reset and tune into oiursevles by  being more mindful and present, research also shows it carries a host of health benefits. For exampe, helping to ease anxiety, depression and chronic pain; lower blood pressure; and improve memory, sleep and concentration...

The kidneys are responsible for excreting and getting rid of a lot of the waste products that come through the body, and a lot of these waste products come from the food we eat. So it's important that we consume foods that are friendly to our kidneys and easy for the body to digest and breakdown, especially for those with diseases like IgAN.   To give us very practical tips to eating better for ou...

When someone gets a life-altering diagnosis such as IgAN, it not only affects the person living with it, but also the people around them. For parents, it's a different and unique experience. They provide support as they watch their child learn to cope and live with the impact of this disease. It can be a lonely and worrying experience navigating what are often unchartered waters, but it doesn't ha...

https://igan.org/ Guest Dr. Jonathan Barratt talks with us about two new treatments for IgA Nephropathy (IgAN) –the first specifically designed and approved for the management of IgAN. TARPEYO® (budesonide, delayed release capsules) was approved by the U.S. Food and Drug Administration (FDA) in December 2021 and FILSPARI™ (sparsentan) gained approval earlier this year. Both are prescription medici...

Learn more about IgAN through the IgA Nephropathy Foundation IgA Nephropathy (IgAN) is an autoimmune disease that attacks the kidneys. Some people living with IgAN will need a kidney transplant. Finding a donor match, facing the anxiety about whether or not your body might reject the new kidney or of IgAN returning, and recovering after surgery aren't easy tasks.   To discuss some of the associate...

Learn more about IgAN through the IgA Nephropathy Foundation IgA Nephropathy (IgAN) is an autoimmune disease that attacks the kidneys. It usually progresses slowly, but some people with IgAN eventually develop end-stage kidney disease, which means they will need dialysis or a kidney transplant.   Nearing dialysis or kidney transplantation can be an especially emotional time and can come with a ser...

Learn more about IgAN through the IgA Nephropathy Foundation Finding out that you have IgA Nephropathy (IgAN) can be scary. Many people are flooded by a range of emotions, as well as the uncertainly of how the condition might progress. It can be a difficult and complex journey, and managing the emotional and social effects of IgAN can be just as challenging.  Guest Dr. Daniel Cukor, a clinical psy...

Whether you or someone you love has been diagnosted with the kidney disease IgA Nephropathy you are in the right place for information, support and encouragement. This podcast is brought to you by the IgA Nephropathy Foundation. It's mission: to be a patient-centric organization focused on finding a cure for IgA Nephropathy. Using the power of the patient community we are focused on funding resear...