IBDetermined

Send us Fan Mail Welcome to S3 episode 1! We wanted to revisit the topic of stress and how it influences IBD. We read an article in Psychology today and it provided helpful tips to manage stress with IBD. We had a good time sharing our own experiences and giving our own perspectives on this article. We are family friendly and want our audience to be involved! Listen together, separately, but ultim...

Send us Fan Mail Welcome to S2 episode 29! Today is just a relaxed, sit back episode where we discuss how the podcast started, the process of how we create podcasts, and we formally announce we are moving from posting once a week to every two weeks. We hope you have enjoyed Season 2 and we are looking forward to seeing you back here in 2 weeks for Season 3! We are family friendly and want our audi...

Send us Fan Mail Welcome to S2 episode 28! Today we discuss the early days of IBD and when it was first "discovered". We also discuss how the Crohn's and Colitis Foundation began and the many achievements it has made over the years in the fight against IBD. We are family friendly and want our audience to be involved! Listen together, separately, but ultimately we hope we bring some...

Send us Fan Mail Welcome to S2 episode 27! We have posted a podcast on biologics but wanted to follow up with JAK inhibitors (think Rinvoq and Xeljanz). These are a newer tool in the battle against IBD and we looked forward to sharing what we learned. We compare them to biologics and discuss a little more how they work. We are family friendly and want our audience to be involved! Listen together,...

Send us Fan Mail Welcome to S2 episode 26! We decided to do a reaction video to a news article that is fairly recent. It was making the rounds on social media as well as being sent to me. The article spoke of the holy grail of IBD discoveries and a major cause of IBD being discovered. We dive deeper into this article and give you our non-professional, patient/caregiver take on it. Is it click bait...

Send us Fan Mail Welcome to S2 episode 25! It is officially our 50th episode so we thought we would do something different to celebrate. We took questions from viewers and friends and answered them all here. It is one of our longest episodes but we hope that you stay tuned for the whole episode. Lots of great questions that we truly enjoyed answering. We are family friendly and want our audience t...

Send us Fan Mail Welcome to S2 episode 24! What is ARFID (Avoidant Restrictive Food-Intake disorder)? How does it affect those with Crohn's disease and Ulcerative Colitis? How are the symptoms similar and different to those symptoms already associated with IBD? We go further into this topic, not as experts, but as guides to help you better understand this newer eating disorder. Links to read...

Send us Fan Mail Welcome to S2 episode 23! Quick recap of our Take Steps walk and also addressing having to explain your diagnosis. We understand it isn't always easy to talk about and you don't have to! Wherever you are at in your journey we are here to support you and let you know it is your own journey, your one decisions. We are family friendly and want our audience to be involved! L...

Send us Fan Mail Welcome to S2 episode 22! Today we will help you plan and start a 504 plan for your college students! Living with IBD can make things different but we are here to make the college transition easier for your teen.  We will go over what to look for in a college, how to use and access disability services at your college, what to include in a 504 plan, and how to initiate it and share...

Send us Fan Mail Welcome to S2 episode 21! Navigating social situations with IBD can be challenging. Choosing where to eat can be difficult too! We go over how we handle them and just want others to know they aren't alone. We are family friendly and want our audience to be involved! Listen together, separately, but ultimately we hope we bring some attention to some well deserved topics on chr...

Send us Fan Mail Welcome to S2 episode 20! We decided to talk about how this diagnosis felt initially and how it feels now that it is almost 4 years later. Each path is different so we discussed this from our perspectives in hopes it might help some of you listening. We are family friendly and want our audience to be involved! Listen together, separately, but ultimately we hope we bring some atten...

Send us Fan Mail Welcome to S2 episode 19! We got the chance to return to Club 33 and wanted to share new details on the spring menu and also share a few pictures. We were excited to share our Disney cast member stories as well. It was a magical getaway and we are so thankful we were able to do it! We are family friendly and want our audience to be involved! Listen together, separately, but ultima...

Send us Fan Mail Welcome to S2 episode 18! We finally fixed Mason's microphone! This week we discuss the recent changes to the Disney DAS pass and how it will specifically affect the IBD community. We go over Magic Keys, the reservation system, how we currently use the DAS pass, and how we think Disney might need to make some changes. We know there are a lot of hurt and confused people out th...

Send us Fan Mail Welcome to S2 episode 17! There was an issue again with Mason's microphone so we do apologize for the sound quality! Working on getting that fixed. This is our final episode in the Rady's IBD day series. We end it with an overview of IBD, how it affects children, remission goals, biosimilars, and more! These were all discussed and presented to us at Rady's IBD day a...

Send us Fan Mail Welcome to S2 episode 16! If you scanned the QR code in the front of your journals, you are in the right place! We are so excited to announce we published two new books/journals. Not Your Average Food Journal and IBD Symptom Tracker is an excellent tool to help you find food triggers or help with any reasons you might want to track what you eat and drink. Not Your Average Restroom...

Send us Fan Mail Welcome to S2 episode 15! Today we are going over what the surgeon at Rady Children's Hospital discussed on IBD day. While there are many surgeries and variations, we are only discussing the surgeries he went over at IBD day. Lots of great information that will hopefully better help you understand surgery options for IBD. We did our best to make it informative and honest with...

Send us Fan Mail Welcome to S2 episode 14! We are digging deeper into what we learned at Rady's IBD day. Today we discuss research and how important it is not only for adults, but for the pediatric IBD world. Research can help provide more options to these kids as well as provide more information on the efficacy and side effects of treatments. The Crohn's and Colitis Foundation is a trus...

Send us Fan Mail Welcome to S2 episode 13! We are sharing all things diet and nutrition for Crohn's and Ulcerative Colitis from an IBD specialized dietitian from Rady Children's Hospital. We took notes from her presentation at IBD day so we could share anything helpful with all of you. We will cover flare diets, day to day diets, trigger foods, types of diets, vitamins and supplements, a...

Send us Fan Mail Welcome to S2 episode 12! This episode is part of a series we plan to do covering IBD day. We got to hear a lot of great information from doctors, a dietitian, a psychologist, and a surgeon. We do a recap here of how the day went and what was covered in the IBD world. We will break it down in upcoming episodes so we can go into further detail on what each presenter covered. We are...

Send us Fan Mail Welcome to S2 episode 11! This is part two to last weeks episode on all things 504 plans for kids with IBD. This week we discuss what to include in a 504 plan to help you make sure you don't miss any small details! We also go over the do's and don'ts of what to do with the 504 plan. These two episodes should help get you organized and on track for your child's...

Send us Fan Mail Welcome to S2 episode 10! This is the perfect stop for all things 504 plans for kids with IBD. We will go over how they qualify, what a 504 plan is, and the entire process to create one and get it put in place. 504 plans are a must for any child with Crohn's disease and Ulcerative Colitis. We are family friendly and want our audience to be involved! Listen together, separatel...

Send us Fan Mail Welcome to S2 episode 9! We thought it might be interesting to hear Mason answer questions about IBD. Everything from when he was diagnosed, how he feels about his medical team, how he handles infusions and injections, his best advice received (and worst!), and he even discusses what music he is currently listening too. We had a lot of fun making this episode and hope you guys enj...

Send us Fan Mail Welcome to S2 episode 8! Today we discuss what remission means in the IBD world and the different levels of remission. There was a lot of confusion when Mason was diagnosed on what remission meant. We did a lot of reading and asking our doctor questions to learn more about what remission truly means and we hope we can help some of you with similar questions. We are family friendly...

Send us Fan Mail Welcome to S2 episode 7! In honor of Mason receiving a proclamation and "Mason Harvey Day" in the city of Vista, we decided to talk more about proclamations. We discuss how you can get one, the work Mason has done over the years and is being honored for, and how we are using it to raise awareness and fundraise for the Crohn's and Colitis Foundation! We are family fr...

Send us Fan Mail Welcome to S2 episode 6! Today is all about Take Steps! Take Steps is one of the Crohn's and Colitis Foundation's biggest fundraisers. Today we go over how it helps the foundation, how it helps IBD patients, how you can participate, how you can fundraise, and how much fun it is! Take Steps takes place in many cities around the Unites States so there is a good chance you...