IBDetermined

Send us Fan Mail We just published our second book and we are really hoping it helps patients reframe their outlooks. How you choose to grieve, to celebrate, to handle a diagnosis, is your choice. But we wanted to share what has helped Mason and us (as his parents and caregivers) find ways to continue to find joy and see the silver linings to live life to the fullest. We are family friendly and wa...

Send us Fan Mail Even though Mason isn't quite to moving to adult care yet, we realize listeners might be at different ages. Some might be adults, while some might be very early onset. We wanted to sit down and go over the ways you can begin to think and prepare for moving to adult care. This disease is difficult on adults, and can be even more daunting for a teen going to college or working...

Send us Fan Mail Reggie is back! Today we finally reveal the name of our new children's book and the second one in the series. It took around 8 months and we are so proud to tell you all about it! Join us as we take you through the process of a book we can't wait to share with all of you! We hope you enjoy this episode as much as we enjoyed researching it! We are family friendly and want...

Send us Fan Mail We are finally back to our short series on treatments and biologics. Today we go over the expenses associated with developing and manufacturing a biologic. We might not like the prices but it is important to understand if we ever hope to make changes that benefit everyone. We hope you enjoy this episode as much as we enjoyed researching it! We are family friendly and want our audi...

Send us Fan Mail We have discussed the difficulty of outside opinions and judgement with IBD. Today we read an anonymous letter we received from a "neighbor". Might have been well-intended but the advice was dangerous. We discuss the ways you can support and help patients when offering advice but mainly are her to say we get it, we see you, and we know the opinions can be so frustrating....

Send us Fan Mail Today is a big day for the IBDetermined podcast family. You have made it with us to our 100th episode! We never had any idea how many podcasts we would create and we sure are happy we have made it to the big 100. We are also excited to keep going and continue to make podcasts! Join us as we reminisce and make a special announcement just for our listeners. We are family friendly an...

Send us Fan Mail On today's episode we are continuing a series on better understanding biologics and expensive treatments. Today we are covering the reasons bioscience companies and pharmaceutical companies are accused of not wanting a cure. We examine why these claims are being made, how accurate they are, and why some people just don't trust them. We are family friendly and want our au...

Send us Fan Mail On today's episode we are beginning a series on better understanding biologics and expensive treatments. Our hope is to create more awareness and hopefully spark change and understanding. We begin this series by going over a brief history of how treatments have changed over the past 20 years, which wasn't too long ago! We are family friendly and want our audience to be i...

Send us Fan Mail On today's episode we go over a recent article from the Crohn's & Colitis Foundation. It is about a study and how step therapy affects young adults in particular. It is helpful to better understand how to help young adults facing the challenges of step therapy. We are family friendly and want our audience to be involved! Listen together, separately, but ultimately we...

Send us Fan Mail On today's episode we discuss what Calprotectin tests are, how the scores work, and why your results might be a clue as to where your inflammation is located. Mason discusses his most recent results and why he is no longer in lab remission. We are family friendly and want our audience to be involved! Listen together, separately, but ultimately we hope we bring some attention...

Send us Fan Mail We discuss a book called "Immune: A Journey Into the Mysterious System That Keeps You Alive" by Philipp Dettmer. We highly recommend it for anyone but it was particularly interesting to us as we made connections to the IBD world. And we have more exciting news about jumping spiders. We are family friendly and want our audience to be involved! Listen together, separately,...

Send us Fan Mail Having IBD can be scary and confusing. When you have to make decisions it is easy to be afraid of the unknown. We go over how we help ease those fears so we can make good decisions that are based on facts. We hope our techniques might help you empower yourself and make the best decisions for your health! We are family friendly and want our audience to be involved! Listen together,...

Send us Fan Mail Welcome to Season 5 Episode 1! We are excited to start a new season in the new year. We wanted to kick it off with a topic and question we hear about often, is Crohn's curable? But then we got to thinking what a cure would look like. We go further into both topics and hope you find some hope in learning how the future of this disease is changing and what that could look like!...

Send us Fan Mail Welcome to S4 episode 17! Mason got to pick what he wanted to end the year and final season 4 with and he chose Christmas movies. We sometimes do Christmas Day throughout the year. When Mason is having a tough time we watch Christmas movies, bake, do whatever we can to enjoy the joy the holiday brings him. Enjoy his list of Christmas movies the whole family can watch together. He...

Send us Fan Mail Welcome to S4 episode 16! As we head towards the end of 2025, we wanted to cover IBD breakthroughs, treatment developments and other stories that were in the news. We felt these stories were important to share because a lot of times there are click bait stories out there that can be misleading. But most of all we think it is important to share the hope, support, and direction rese...

Send us Fan Mail Welcome to S4 episode 15! It is IBD Awareness week but also a shorter show. We both ended up with colds but we didn't want to miss a podcast on such an important week. Use this week to tell your story, to raise awareness, and to find support! Feel free to comment and share your own stories with IBD! We are family friendly and want our audience to be involved! Listen together,...

Send us Fan Mail Welcome to S4 episode 14! We know there is a lot to consider with IBD on a normal day. We know the holidays is even more demanding and our goal is to discuss common problems and offer solutions. This disease is never fair and it isn't right that you should have to have more stress during this time of the year. Our holiday guide will help prepare you so you can sail into the h...

Send us Fan Mail Welcome to S4 episode 13! This time of year brings out a lot of questions about IBD and getting through cold and flu season. We go over risks of getting sick, treatments, ways we minimize risk, and things to consider if you have IBD. We are family friendly and want our audience to be involved! Listen together, separately, but ultimately we hope we bring some attention to some well...

Send us Fan Mail Welcome to S4 episode 12! Michelle was honored by the local Crohn's and Colitis Foundation as the Volunteer of the Year at the Champions of Hope Gala. We go over the hope and inspiration we left with, tell you who we met, who was honored, and everything else about the wonderful night! We are family friendly and want our audience to be involved! Listen together, separately, bu...

Send us Fan Mail Welcome to S4 episode 11! Mental health is so important for anyone. For IBD patients, they sometimes have more appointments, treatments, and procedures than the average person. A lot of time these situations can create anxiety. Today we go over several methods you can do anywhere, to help relieve and reduce anxiety and stress. Anyone can use these and we hope you find them helpful...

Send us Fan Mail Welcome to S4 episode 10! The Crohn's and Colitis Foundation recently released a news article about their initiative and study that has decreased hospitalizations and emergency room visits. It is all about working together and coming up with early intervention at the clinics. These tools have been tried and tested and are now available to other clinics! Very exciting! We are...

Send us Fan Mail Welcome to S4 episode 9! Today we discuss what we have noticed, our experiences, and our ideas with organizations that are intended to help chronically ill children. These organizations are phenomenal and we sure would love to see more IBD kiddos be recognized! Most of all, we want you to know your disease isn't invisible, you are a warrior, and we see you! We are family frie...

Send us Fan Mail Welcome to S4 episode 8! It is so important to learn more about biologics o we can ask educated questions when we meet with a GI. We have heard about similarities between Tremfya, Stelara, and Skyrizi. Today, we go over all of them to better help you understand the options out there to treat IBD. We are family friendly and want our audience to be involved! Listen together, separat...

Send us Fan Mail Welcome to S4 episode 7! After 5 years of infusions, we wanted to share our tips and tricks on what to bring, what to ask for, and what to expect at an infusion. Our tips will bring comfort and ideas to make an infusion a little better! We are family friendly and want our audience to be involved! Listen together, separately, but ultimately we hope we bring some attention to some w...

Send us Fan Mail Welcome to S4 episode 6! There have been so many times we wished we could help infusion patients, newly diagnosed IBD patients (or various other diagnoses!), and also thank blood donors. We think we found a way we can do all those things with Karmatude Clips. These will be donated and 100% free to patients! We can't wait to hear what you think! We are family friendly and want...