I AM MADELINE

I'm having quite the interesting 24 hours and not in a good way. Minimal supports has meant I've had a bad reaction to one of my treatments, actually both of my treatments today simply because minimum health supports always means maximum complicating issues. I am very not okay and I'm very worried about running out of emotional resiliency to keep fighting Gfm https://gofund.me/cff39173 Fyi this wa...

An update talking about an in-person neurological exam I had today. Telehealth with my primary care allopath a few weeks ago had concerned her enough to bring me in for an in-person appointment to assess some neurological issues I hadn't really been talking about, and the exam made it clear there were more I wasn't even aware I was having. Also as I run out of gofundme money for treatments next we...

Where I attempt to puzzle out explaining some of my coping strategies. Also ombudsman update plus an article that includes me should be coming out soon update. I talk about MS and ME briefly in this ep so here are some links about that: viral origins of myalgic encephalomyelitis, some of the history of its abdication, it's relationships to MS and AIDS and particularly to Epstein-Barr which was the...

I finally get around to talking about hyperbaric chamber treatments 11 through 14. And I talk about why it took so long to do so. Lots of stuff going on, all of it difficult, hard upon already hard. But still some interesting HB results in spite of all the obstacles and challenges. Plus I update you on some new oral supplements. I am speaking to the Ombudsman today, and I will update you about tha...

Today is very much the epitome of the adage *the straw that breaks the camel's back*. I thought I'll say what's happening while it's happening because this is exactly what it's like to be one of them is that millionsmissing. This is what happens when you don't have even have a MSP category of coverage for your disease, myalgic encephalomyelitis, and you end up on PWD assistance. I had a pretty har...

Hyperbaric Chambers 9 and 10 + calls with the British Columbia Ombudsman office which are a very interesting possibility.... Gfm https://gofund.me/cff39173

What is bounty and how do we as humans use it to navigate difficulty. In this podcast episode I begin to have a conversation about scarcity and bounty especially in regards to persons with disability and even more especially persons with disability in poverty So you have the link handy if you want it, here's the GoFundMe https://gofund.me/cff39173 The image is bouquets I made a few years ago for o...

I talk about hyperbaric chamber treatments 7 and 8 along with the impacts of volunteering and having to deal with a host of day-to-day advocacy and self-care issues which all impact hyperbaric efficacy as I really would do best power resting but I don't have the supports that would afford me that medical necessity. Gfm link for anyone looking for it https://gofund.me/cff39173

Good news /bad news, been a roller coaster few days. Plus some surprising improvements that can only be due to the hyperbaric especially in the face of the music Fest volunteering that I did. The photo is the view I had lying down, cuz that was pretty much my festival weekend as I was surrounded by gorgeous music and kind people

It looks like I've brain fog miscounted hour many HB so far, and also forgot to document one treatment. Also tired brain used the wrong mic, so I'm sorry it's not recorded as clear as i like, LE SIGH. Also talking about the impacts of doing community building volunteering on my health and on the efficacy of the recent Hyperbaric treatments. Aka big setback. Much better emotionally because of that...

This episode I try to pull my thoughts together to speak to parents and caregivers of person's with post viral diseases especially myalgic encephalomyelitis. This was inspired by Andrea Haefele of www.mombehindthelabel.com who very kindly agreed to share what's happening to me with her online community. Her focus(if my beleaguered brain is understanding correctly) is as a parent with a autistic ch...

Where I talk about the hyperbaric chamber I did Wednesday, #3, on June 26th and how that's going and how the emotional impacts of running out of gofundme money are affecting efficacy of treatment and my emotional well being which all on its own affects my health Gfm if you could share, that would be so helpful https://gofund.me/cff39173

The second hard shell hyperbaric chamber treatment plus some concerns about developing situational depression due to running out of gfm money mid July and trying to decrease treatments in very worrisome ways. https://gofund.me/cff39173 Also new law https://www.chrc-ccdp.gc.ca/en/resources/historic-law-will-help-realize-the-rights-people-disabilities but with little to no postviral MSP coverage in...

I'm going to document each hyperbaric treatment and any symptoms whether they be decreased or exacerbated and exactly what's going on. Partly as general information, but mostly in the hopes that I will eventually be turned into a case study that could be useful not just to me but to others. Tired brain I forgot the PSI and a couple of other things, so hang on for that as it's second segment of thi...

An inside view on my insomnia, especially when I decrease treatments. Definitely a part of the suffering Olympics

The suffering olympics, inspired by a comment on the GoFundMe, which you can find here https://gofund.me/cff39173 *Elizabeth King comment I've got moderate to mild M.E, and I haven't been tested by the system because of the privilege of having a family who can afford to support me. You should have that kind of support too. You shouldn't have to put in a perfect performance at the suffering Olympic...

An update about what's happening, how much time I have AKA how much GoFundMe money and how I can stretch it and how I'm trying to stretch it which is hugely problematic, treatment tweaks, infection management, and next episode I will do on the suffering Olympics, hopefully next week if I can wrangle some energy together The flower picture you see is me continuing to focus on beauty as a way to man...

And by titling this ep, "Doctors, Politicians, Bureaucrats; Lend me your ears", I am indeed borrowing from Shakespeare's Julius Caesar as a way to start a direct but gentle and open conversation about post viral diseases, especially myalgic encephalomyelitis, and especially the state of PWD assistance in Canada, particularly British Columbia. It is created as a resource for each of those groups to...

I think the title sums it up. I pretty much put it all on the line about how I'm feeling about running out of money for treatments and supports at the end of May The picture is from easter where I followed the host of the games party's instructions and wore my Easter finest ;P. I think it kind of sums up the *laugh* part. How I survive on whimsy and compartmentalizing. (I keep forgetting to post u...

Where I decide to talk through my feelings after listening to the university of British Columbia Community radio station episode of the accessibility collective on citr that I participated in. How can anyone know the terrible pressure if I don't share what it's like.

Seeming okay is not the same as being okay. I do my best to explain what's the what with that and the harm it can do

Here is the guided meditation with harp with the focus of boundaries. Most of your questions will likely be answered in the introduction sections before this episode. But please reach out in the GoFundMe comments, on Twitter @iammadelinepod for the comments of this anchor podcast And yes, if you like this and you would like future guided meditations with different focuses I would be happy to do so...

I'm breaking the introduction into segments in case listeners want to go back and go over any particular section more easily. One of the reasons I am posting it is a thanks to my supporters. Another is that with the reality of facing five years to see a human rights case through to fruition I'll need the GoFundMe to expand a lot. So some people might be willing to share to it based on my talent ve...

I'm breaking the introduction into segments in case listeners want to go back and go over any particular section more easily. One of the reasons I am posting it is a thanks to my supporters. Another is that with the reality of facing five years to see a human rights case through to fruition I'll need the GoFundMe to expand a lot. So some people might be willing to share to it based on my talent ve...

I'm breaking the introduction into segments in case listeners want to go back and go over any particular section more easily. One of the reasons I am posting it is a thanks to my supporters. Another is that with the reality of facing five years to see a human rights case through to fruition I'll need the GoFundMe to expand a lot. So some people might be willing to share to it based on my talent ve...