I AM MADELINE

Emotional resiliency conversation today. I speak about this social media post about the power of speaking up https://www.tumblr.com/niceven1/751685307525660672?source=share and this one about goodness https://www.tumblr.com/prettydumbloverboy/635405123372417024/when-you-sneeze-in-public-strangers-will-say?source=share For new listeners most recent article https://ricochet.media/en/3991/Canada-MAID...

Here are links to some articles that have been done but have some overview of what's happening to me with obviously journalistic vetting plus I'll link the GoFundMe as that's where I've been doing written updates RICHOCHET article https://ricochet.media/en/3991/Canada-MAID-policy-death-by-poverty Also the journalist did a tweet thread with highlights from the article if that's something that you'r...

Quickie update about the very dangerous cellulitis infection that's making my bad situation worse. Doing my best to keep my head up and keep my sense of humor afloat. Not sure if I should post a picture of it cuz it's really yucky so I don't know... Blech. Instead I'll post a picture of the blossoms that are helping me navigate the panic that's curling around the edges of my thoughts. I know exact...

Mission impossible theme song in my head as I attempt to navigate all the layers of difficulty and complexity going on with more layers of difficulty and complexity getting added recently. So I thought it would do me good to talk about it and that you guys are probably wondering what's the what so here is an update. Here's the tweet thread of the ricochet article I mentioned in this episode https:...

The title pretty much sums it up... It's My Disability Barbie-Heimer Rant! RICHOCHET article https://ricochet.media/en/3991/Canada-MAID-policy-death-by-poverty Also the journalist did a tweet thread with highlights from the article if that's something that you're interested on sharing Facebook and Instagram won't let you share a news links from Canada https://twitter.com/SpichakSimon/status/170778...

In which I talk about how I navigated the holiday season and the advocacy and healthcare battles I'm facing in the next couple of months. I do also finally talk about the nightmare suite inspection and of course that they are coming back in March even though I did everything they asked me to do. Let's just say I have thoughts and feelings about that🤨🫤. I also talk about how that inspection has p...

Turned out to be surprisingly easy to convert the YouTube video to audio only so you could have it on both YouTube and the podcast platforms. I tried to play with the audio a little bit cuz my video recording app doesn't have quite as nice and audio as my usual audio recording app so I hope it's okay Once again the photos that I talk about I put up on the latest GoFundMe update if you want to see...

Tech support on this site is trying to figure out why the link generator is generating problematic links meaning that some people especially coming from social media are not able to play on the website. So I did today's episode on youtube. I don't know how to download the audio to put it on here as well so here's the YouTube link and hopefully tech will get things sorted ASAP https://youtu.be/sm0p...

My birthday is coming up and I'm having all kinds of feelings about it so I thought I would share. The photo is from a story I talk about in the episode about my 10th birthday For those who don't know yet I did make three YouTube videos if you want to share them, and of course there is still the ricochet article that you can share as well as the GoFundMe link. See below Channel Link https://youtub...

I have much to update you on but I will do that at another time as I've overdone on textual communication this week. I wanted to let you know that I made three YouTube videos that I've set to premiere at 6:00, 6:20, and 6:35 pst tonight respectively. Then they'll set themselves up as regular public episodes. They are varying length as a tried to make them shorter but with such a complex situation...

I think the title sums it up. I talk about some good things that have happened and how I'm navigating the week leading up to the next fire suite t inspection with a little more resiliency. In the last episode I really just let it all hang out about how hard it was but also then after I got to say what's happening talk to myself back to a place of a more useful perspective I also talk about the fac...

Today I talk not just about the pain and exhaustion and pushing through to get ready for the second fire inspection, but individual and collective ableism creating a situation that sends the message, in no uncertain terms, whether overt or covert, my country wants me dead. But I also talk about how for most people it's really a lack of understanding. And how each person working to understand means...

In this episode I talk about today's suite inspection, the unrealistic ableist expectations and timelines (plus assumptions of supports that don't exist within the system and definitely not for my disease; myalgic encephalomyelitis) that have been put on me by my landlords and the fire inspector. Also, with the best of intentions I know, but still ableist interactions with an official who came to...

So much happening to me, non of it easy or fun. Pro bono clinic says no, suite inspection colliding with med appts, hyperbaric chamber improvements, intravenous issues, long shot of tiktok, & am I officially longcovid on top of postviral EBV? Ricochet https://ricochet.media/en/3991/Canada-MAID-policy-death-by-poverty Gfm https://gofund.me/cff39173 Gfm

I was going to title this episode why does the universe hate me, because today it was one hard thing after the other. But towards the end I got to thinking about how wonderful things giving was. But I don't understand why the difficult things to keep coming at me hard and fast and I still can't get basic supports Fyi you can see the Rosemary and sunflowers that I grew in the photo in the middle of...

I thought I would talk through post-exertion symptom exacerbation #pese while it was happening. I know that it's very hard for somebody who hasn't experienced it to really understand what it's like. The problem is I feel so fatigue cognitively impaired that I'm not sure how clear I was. But maybe that all into itself is an explanation. Also talk about a young person I met casually diagnosed with l...

It's been about 5 hours since the Ricochet articles been out. Trying unsuccessfully not to get my hopes up. Super burnt from doing my best to share the article on social media and with my social networks and Friends The richochet article is out. Here's the link. https://ricochet.media/en/3991/Canada-MAID-policy-death-by-poverty Also the journalist did a tweet thread with highlights from the articl...

A big welcome to ricochet readers finding this podcast due to the article written by Simon Spichak ( https://ricochet.media/en/3991/Canada-MAID-policy-death-by-poverty )! Fyi this was recorded on Augusta 31st(+ additions on September 8th and 9th), ie before previous episodes so don't be surprised, but I waited to published it until the RICHOCHET article came out has publications so far have prefer...

Looking at my bank account trying to figure out how to afford treatments next week trying to figure out how to stay alive trying to figure out how to pull the energy together to clean my apartment so I don't get evicted WITHOUT ENOUGH TREATMENTS trying to figure out figure out figure out too many things to figure out. this is too difficult Gfm https://gofund.me/cff39173

After #paxlovid but before getting back on the intravenous I'm in a nether world of pre-existing symptom worsening

COVID burnt(sooooo extra dangerously tired) +paxlovid unexpected good results on pre-existing postviral syndrome symptoms

The sun is shining through my window it's almost 9:00 a.m., but my thoughts and emotions are in a dark place.

An episode in which I curse, a lot. You were warned Theme song of this episode https://youtu.be/Vqbk9cDX0l0?si=1hUdr5UqJQ2mlEQ7

The mucus that I'm producing at the base of my throat to the covet turned out to be so thick that when I stood up quickly to go to the door to get a delivery of supplies from a friend it's covered my airway like a carton and it couldn't breathe. Made it out to the hallway where my friend pounded my back to open the airway. She insisted I go to the emergency room, but they didn't have any sort of v...

I tested positive for covid Saturday the 16th but fever and chills started the night before. First I thought it was just the mitochondrial issue cuz I pushed so far outside my energy envelope, but now it's clear that it's from a Life Labs worker who was very audibly ill and only wearing a surgical mask. This is a quick update while I still have a voice cuz I seem to be leaning into laryngitis. Wor...