I AM MADELINE

where I talk about my lived experience life and death against seeming insurmountable odds resonance with the movie Project Hail Mary some of the things I referenced today are the latest GoFundMe update https://gofund.me/6d981312 and THE DOCUMENT https://docs.google.com/document/d/19W73z4kQrQydqGEkndAyF87t33BBpFXHnEwNVxc75b4/edit?usp=drivesdk

finally! The document is done. sent to ministers and ministries here in BC and to the same media we sent the press release for the petition presentation. obviously it was sent along with the petition with his 1,451 signatures and various supporting documents. I also posted THE DOCUMENT online so everyone could have access to it especially if I don't survive https://docs.google.com/document/d/19W73...

In the home stretch on this document to go with the petitions to the BC ministers of health, social development of poverty reduction and finance as well as the premier's office But boy is it taking everything out of me. hopefully I can get somebody to do one last look over before I send it. I'm crossing my fingers that's before Wednesday. Cuz I really needed to get sent off. GoFundMe money only fo...

where I document what happened this week. And what it's like to just try to deal with what a euphemistically called brain fog. It's a brutality of tired brain that it's hard to convey.

This is my 4th attempt to try to explain the measure of extra crunchy hard I've been experiencing right now. The best way I know to describe the extremity of overwhelm and difficulty coming at me from all directions is claustrophobia. Disability claustrophobia is what I've been calling it but nobody seems to know what I mean by that. So for the fourth time I'm trying to explain. But it seems like...

Because of the amazing efforts of my friend and the GoFundMe she set up to have my apartment deep cleaned We started today! So I thought I would document that for the donators to that particular gfm. But I also thought regular listeners and donators to my GoFundMe for the treatments that keep me alive would like to hear about it. Especially how it is such a critical support. And also some of the i...

in which I grind away trying to get things done and the system grinds on me slowly destroying me In spite of my best efforts to wrangle them to logic. I'm sorry I don't have the brain power to include the links I talk about. I'll try to add those later

Update where you get a case in point of why it is bad bad baddy bad bad to work outside your energy envelope and when you have a long viral ME Things I mention Gfm https://gofund.me/6d981312 Petition https://bit.ly/Marcia_petition Email campaign CTV Template https://docs.google.com/document/d/1VD2zqOKxcQp7SUP06mY8slZlH1sXkKHKVPV0IfLo-uI/edit?usp=sharing

mini episode where I give you a few little snippets of some good things among all of the ongoing Herculean rough and tough things photo is of 12 little bouquets waiting to be given out for plant distribution

documenting yet another instance of when I go out of my way to double check on the some sort of medical provider and get told incorrect information which ultimately causes me to hemorrhage energy

where I'm thinking I'm going to have to do different strategy in really start getting a public officials to understand that if they are thinking that stonewalling me and waiting for me to die will make the problem go away. that it isn't just horrifying it isn't true. absolutely things will go terribly for them if I die. at some point somebody's going to cudgel them with my story. And truthfully if...

where I talk about the push me pull you of my mitochondria requiring rest and any hope of survival by getting governmental change or enough GoFundMe to stay alive being about me doing advocacy and on top of all of that the day-to-day living things of housekeeping and going to treatments. It's all more energy I have and yet it all needs to be done. And trying to navigate the competing needs of thes...

it's Easter morning, and I talk about some of the good things that have happened but also as per usual document the obstacles that are ever present I talk about this housekeeping GoFundMe a friend set up https://gofund.me/73aeb36e5 and the CTV campaign https://docs.google.com/document/d/1VD2zqOKxcQp7SUP06mY8slZlH1sXkKHKVPV0IfLo-uI/edit?usp=sharing

I was trying to figure out what to call this and I think that David Bowie Queen song under pressure pretty much describes it I think. So I'm continuing to try to document the insanity of the measure of difficulty I'm attempting to navigate I took a picture of the microwave rust of the inside. I figured you might want to see how insane it was

A quick update as the sick times have republished my op-ed. I'm a bit addle brained so you're not getting a lot much in the way of intelligence but it does document some of the brain fog issues Sick times republish of op-ed March 20th 2025 https://l.gourl.es/l/56898fa8ccf060b8bf79b817ad9fabd986f4a62f?u=11010884 Linked by Twitter post https://x.com/i/status/2035058600604004423 And once again Email...

today I don't just document the grinding difficulty but my memory banks pulled up some really nice light and darkness times from when I was little and I also talk about some really nice things from some people now as well. focusing on the reality and all of its shades light and dark is definitely a critical part of how I've been surviving once again here is the legacy News campaign document if you...

where I talk about how I feel about My power and the leadership roles I have been in and the leadership roles I may be in in the near future depending on how the email campaign goes speaking of which I was told that if 12 people write to a news source to ask for the same story that it will happen🤞 Template https://docs.google.com/document/d/1VD2zqOKxcQp7SUP06mY8slZlH1sXkKHKVPV0IfLo-uI/edit?usp=sh...

where I talk about how rest day is rarely just the rest day because all the stuff I've been compartmentalizing comes out and wants to be processed. which is not very restful. having my body not moving is only one kind of the rest that I need again here's the email campaign Because I was told that if 12 people write to a news source to ask for the same story that it will happen🤞 Template https://d...

It's pi day. unfortunately I don't have any actual pie to celebrate with. But I hope you're having some nerdy fun. For me it's whimsy as I'm still experiencing squish squash. Still documenting what it feels like to be dealing with so much and then have more land on my plate yesterday. I don't know how else to push back on the bias that thinks PWD on assistance are just sitting around eating bonbon...

things that got even worse today. So much so that I called a friend, had a meltdown, which I talk about in the episode, and decided that I am the universe's chew toy. yeah, a little dramatic for sure. But just when I think things can't get even harder something else happens. What on earth is the Great whatsit up to? then I put my big girl underpants on and sent out the email campaign because who k...

In which I talk about how I only started to feel better when I realized how my pink hoping strategies were interfering with me understanding that being on the mobility scooter today or trying to get into the hyperbaric chamber we're paying impossibilities that were just going to make me worse. The kind of long-term pain especially the fibromyalgia colliding with the dyslexia and the architectural...

at 6:00 a.m. or so and I've been awake since 2:00. I promised myself I would document all of the stuff particularly how hard things are. This is me without the coping strategies of the previous episode. cuz pain dreams strip all that away resiliency dampened by pain and the extent of the difficulties means that despair has caught up with me

we're a talk about the many different kinds of difficult things I'm attempting to deal with, advocacy next steps, advocacy current obstacles, and health supports obstacles. hence the title squish squashed and the episode icon is spring blossoms! cuz I adore spring. So that helps with my head space a bit. But I'm also worried about despair. currently going to run out of GoFundMe money the beginning...

It's Valentine's Day(you'll see I'm wearing red Because I'm a big believer and celebrating whenever possible. It does a brain good!), but unfortunately disability bias issues do not take a holiday nor does the Herculean effort of staying alive. But I'm working to do that are arm floaties not the least of which is wearing red

petition presentation live stream link https://www.youtube.com/live/PN6-ewFs-00?si=UBsftv5p3FLnMc7m although the petition has been presented we are leaving the document and its additional resources up in case anybody wants to use it as a template and also for a reference. I know everything I'm proposing saves the system massive amounts of money and problem solves disability and long viral disease...