I AM MADELINE

Petition presentation is Wednesday the 21st 11:00 to 11:30 a.m. Pacific standard Time. The zoom room will be open from 10:45 to 11:45. I do explain how that will work in this episode as well as what it feels like in this lead up to the in-person presentation of the petition that I've been working to get signatures on for a year. BTW we are still accepting signatures until late Tuesday night. We ar...

episode done at a hospital treatment. kind of a recording in the wild lol Links I mentioned Petition https://bit.ly/Marcia_petition Canary opted December 19th 2025 https://www.thecanary.co/opinion/2025/12/19/me-void/ Audit of UK Hospital Doctors’ Knowledge and Experience of Myalgic Encephalomyelitis https://www.mdpi.com/1648-9144/57/9/885

photo is of first blossoms that I saw yesterday! That usually lifts my spirits Because I love spring. But it's the wee hours in the morning where pensive and melancholy seem to be emotions that I'm experiencing. So in this episode I've had to puzzle out why I am feeling this way. I think it's partly because all that's ahead of me right now is fighting without anything to look forward to Because I...

My op-ed is out! https://www.thecanary.co/opinion/2025/12/19/me-void/ (Linkbio) If you could share the op-ed everywhere you can that would be amazing. Posts I've made for easy sharing Insta https://www.instagram.com/p/DSc6ciGiQv0/?igsh=MXFnemtrd3Y3eGx6eA== Fb https://www.facebook.com/share/p/1AKdjYyQ72/ Twitter https://x.com/i/status/2002061384209867072 Blue sky https://bsky.app/profile/madelinene...

My op-ed is out! https://www.thecanary.co/opinion/2025/12/19/me-void/ (Linkbio) If you could share the op-ed everywhere you can that would be amazing. Posts I've made for easy sharing Insta https://www.instagram.com/p/DSc6ciGiQv0/?igsh=MXFnemtrd3Y3eGx6eA== Fb https://www.facebook.com/share/p/1AKdjYyQ72/ Twitter https://x.com/i/status/2002061384209867072 Blue sky https://bsky.app/profile/madelinene...

where I talk about pushing my energy envelope so that I can have some good experiences in the face of all the hardship I'm going through. yeah it's making my pain and exhaustion dramatically worse but it's really nice feeling to to have a sense of that accomplishment and to be able to use my talents to do something that helps other people feel good in the face of the difficulties they're going thr...

where I talk about The fine art of distraction, a particularly bad episode of pain, the perils of not having housekeeping supports, fear around running out of the GoFundMe money that I use for treatments, and the holiday season and my birthday which are both highly emotional times I talk about the petition https://bit.ly/Marcia_petition and the GoFundMe https://gofund.me/6d981312

where I talk about an op-ed I'm in the final edit stages (Yes I'll post it the minute it's up in a new episode) And I talk about Sinterklaas, celebration of the name day of St Nicholas, December 6th. He comes on the eve, December 5th, to bring presents to children https://www.dutchready.com/blog/traditions-in-the-netherlands-sinterklaas/ And here's the video I talked about *Marcia's Very Beary Fol...

to borrow part of a quote and replace discretion with preparation, hence preparation is the better part of valor when it comes to myalgic encephalomyelitis deterioration. So today I talk about some of those strategies and the pros and cons of the energy spent trying to figure them out at at the best price to factor in running out of money which is the whole reason I have to do the strategies also...

I got in after doing part one and still had a lot to say and still have some pretty high level feelings about they're just being far too many one thing after the other levels of difficulty that keep coming at me

Life is just kicking my rear with one thing after the other. I'm overcapacity and despair is definitely lapping around the edges

The photo is a small part of what I wore on Thursday pumpkin carving which I talk about along with my pumpkin prowl & a day of the Dead party. community connection fun and whimsy to help me navigate running out of money in Dec & now sharing petition in Jan, attempting to spread my story throughout Canada, and indeed the world, so that both I & people like me can have proper supports an...

I talk about this Sundance award-winning documentary a few episodes ago and it is now on CBC's Independent lens this coming Monday at 9:59 Pacific standard Time So check your listings and time zones so you can PVR it. I don't know if it'll be on CBC gym but you might want to check

where I talk about how I use whimsy as a survival tactic. I'll talk more specifically about what actually went down on a Halloween and the day of the Dead. But here I talk about how I've been using it as a survival to especially in light of what's going on for me right now and I talk about what's going on for me right now Links I mention recent GoFundMe update that has a breakdown of the difficult...

sorry I got the name wrong. I think I was saying in the episode afterlife but it's actually life after and here's the link https://mailchi.mp/multitudefilms/life-after-us-gathr?e=80ed2a920b Also here's the petition that I mentioned in the podcast. If you haven't signed and or shared it yet then I would be so grateful https://bit.ly/Marcia_petition And here's the Canary UK article I mentioned https...

well I start talking about losing the help from a friend with laundry that I've had the past year or two but that support not existing anywhere even though it's medically prescribed along with housekeeping I think is about a larger conversation around power. So I talk about my views on power does he try to understand how the heck do I build a communication bridge to forms a power That exists withi...

The Atlantic article link expired so here's a new one for you to be able to read (Or listen cuz it has a audio version at the top) https://www.theatlantic.com/magazine/archive/2025/09/canada-euthanasia-demand-maid-policy/683562/?gift=yKNFI6bZtyj8clr3yQtLYCSwFBjNIwPzg10Axz0GrTA&utm_source=copy-link&utm_medium=social&utm_campaign=share Also #GoFundMe link has that Atlantic link at the top in the lat...

the link to the Atlantic article in the previous episode expired so here's a new link that lets you read the article https://www.theatlantic.com/magazine/archive/2025/09/canada-euthanasia-demand-maid-policy/683562/?gift=yKNFI6bZtyj8clr3yQtLYCSwFBjNIwPzg10Axz0GrTA&utm_source=copy-link&utm_medium=social&utm_campaign=share Petition https://bit.ly/Marcia_petition gfm https://gofund.me/6d98...

The Atlantic article just came out https://www.theatlantic.com/magazine/archive/2025/09/canada-euthanasia-demand-maid-policy/683562/?gift=yKNFI6bZtyj8clr3yQtLYCSwFBjNIwPzg10Axz0GrTA&utm_source=copy-link&utm_medium=social&utm_campaign=share If you can't read it please let me know and I will see about finding a way for you to be able to read it As I mentioned in this podcast I'm going to include lin...

Not sure why I'm surprised, but same neighbour tried to do it to me again today as I was exiting my apt. I was so tired, my body was in such pain. What the heck. When are we going to start accessibility training so people understand that vomiting #disability prejudice is not ok Here's the YouTube video I did of the first time it happened https://youtu.be/lHaw1OOujNY?si=HejtFuNZGxN4AE7x #MyalgicEnc...

Where I talk about the fact I have a total thing about banjos, the recent folk festival that I went to and that I've been volunteering for for about 30 years. Also the difficulties and trying to find a balance between the things that Bouy my spirit and the things that need to get done but are also to Herculean and are destroying me The photo on this episode is the vantage from my chair at South st...

where I talk about upcoming heat of 30° c and I still do not have a response from the crisis division of this ministry of social development of poverty reduction about a new air conditioner. And one that will not just handle the air situation more effectively which is a dual hose/inverter is on sale. 500 bucks and they normally cost way more like $800 or more. https://www.bestbuy.ca/en-ca/product/...

purpose in this case volunteering helps me navigate difficulty eg things I've been talking about in the last few episodes

interesting aha moment i had around my body's reaction to being under such difficulty for so long.

You know in that Star wars movie where they all end up in that trash compactor getting compressed? welcome to my evening