Hope Floats: Navigating Caregiving in Dementia

Guest Lynn Ross shares her personal journey with mild cognitive impairment, her professional insights as a social worker, and practical tools for supporting individuals with dementia and their caregivers. Her conversation with Hope Floats host Shoshawna Rainwater offers hope, strategies for adaptation, and ways to foster meaningful connections despite cognitive changes.   Links Dementia Spotlight...

Navigating the journey of dementia can be fraught with challenges and emotional complexities. In this episode of Hope Floats, host Shoshawna Rainwater delves into expert insights shared by Dr. Allison Lindauer, a gerontological nurse practitioner and associate professor at OHSU. With her extensive knowledge and personal experience, Dr. Lindauer provides valuable strategies for families facing deme...

Rachel and Shoshawna explore the genetics of dementia, particularly the ApoE gene, and discuss proactive health strategies, ethical considerations, and future planning for those at risk.  We also say farewell for now to Rachel as the co-host and discuss the future of Hope Floats. Key  topics Genetics of dementia and Alzheimer's The ApoE gene and its variants Preventive strategies for brain he...

This episode features elder law experts from Oregon Elder Law. We are discussing planning for incapacity, legal documents, and long-term care options, emphasizing the importance of early planning and legal safeguards. Planning for incapacity and legal documents Long-term care options and affordability Medicaid, estate recovery, and spousal protections To learn more go to: National Academy of Elder...

In this episode of the Hope Floats podcast, Shoshawna Rainwater and Rachel Coady welcome dementia care expert Tami Anastasia. They discuss the emotional landscape of caregiving, the importance of understanding personal history in dementia care, and the challenges caregivers face, including guilt and identity loss. Tami emphasizes the need for self-compassion, setting boundaries, and the transforma...

This episode of Hope Floats delves into the behaviors exhibited by individuals with dementia in advanced and memory care settings. We discuss building new relationships with caregiving staff, managing care expectations, and learning about typical behaviors that come with joining a new environment- particularly focusing on dementia patients’ tendency to explore others' personal spaces and the...

In this episode of Hope Floats, Shoshawna Rainwater and Rachel Coady discuss the unique challenges faced by adult children caring for parents with dementia. They explore the emotional landscape of caregiving, the impact on family dynamics, and the importance of self-care. The conversation also highlights coping strategies for managing caregiving from a distance and finding hope and connection in t...

In this episode, Shoshawna Rainwater and Rachel Coady discuss the unique challenges faced by spousal caregivers of individuals with dementia. They explore the emotional, psychological, and physical impacts of caregiving, the changes in intimacy and connection, and the feelings of isolation and stigma that caregivers often experience. The conversation emphasizes the importance of building a support...

Summary: "We need more vitamin joy." In this episode of Hope Floats, registered dietitian Meredith Kleinhenz discusses the nutritional needs of individuals with dementia, emphasizing the importance of understanding changes in eating habits and preferences as the disease progresses. She advocates for a flexible approach to food, encouraging caregivers to prioritize enjoyment and comfort o...

In this episode, Rachel Coady and Shoshawna Rainwater explore the emotional, financial, and social burdens in the current dementia caregivers role and emphasize the need for a “make-over” that could bring better awareness, support and acknowledgement culturally for caregivers. The conversation highlights innovative ideas for community engagement, workplace support, and the importance of recognizin...

In this episode of Hope Floats, hosts Shoshawna Rainwater and Rachel Coady discuss the complexities of moving a loved one with dementia into a care facility. They explore the emotional and logistical challenges caregivers face, including financial considerations, legal decision-making, and the importance of mindset on move day. The conversation emphasizes the need for careful planning, consultatio...

Summary In this episode of Hope Floats, hosts Shoshawna Rainwater and Rachel Coady discuss the complexities of moving a loved one with dementia. They explore the emotional significance of home, the challenges of aging in place, and the signs that indicate it may be time to consider a move. They discuss understanding the unique needs of dementia patients and the impact of caregiving on family membe...

In this episode of Hope Floats, hosts Rachel Coady and Shoshawna Rainwater welcome licensed music therapist Lisa Peterson, founder of  Come on, Let's Sing   comeonletssing.com  , who shares her journey and insights on music's profound impact in dementia caregiving. Lisa discusses how music can foster connection, reduce anxiety, and empower caregivers, emphasizing that every human is inna...

In this episode of Hope Floats, hosts Shoshawna Rainwater and Rachel Coady engage with Lisa Hulick, a licensed massage therapist, to explore the vital role of self-care and healing for caregivers of individuals with dementia. The conversation delves into the significance of touch, the physical manifestations of stress, and the importance of vulnerability in caregiving. Lisa shares insights on how...

On this episode of Hope Floats, Shoshawna and Rachel welcome their first guest- Dr. Linda DeSitter. Dr. DeSitter is a double-board certified hospice and palliative care physician practicing in Portland, Oregon. Today, they discuss end-stage dementia and the unique features that accompany it. They also talk about support for caregivers in some of the complex decisions that come with end-of-life car...

In this episode of Hope Floats, Rachel Coady and Shoshawna Rainwater explore the complexities of moderate-stage dementia, discussing the emotional and practical challenges faced by caregivers. They emphasize the importance of understanding the changes that occur during this stage, including neuropsychiatric symptoms and the need for increased support. The conversation also highlights coping strate...

In this episode of Hope Floats, licensed clinical social worker Shoshawna Rainwater and professional certified coach Rachel Coady discuss the early stages of Alzheimer's and dementia, focusing on symptoms, caregiver preparation, and the importance of legal and financial planning. They discuss mild cognitive impairment (MCI), its symptoms, and how it can progress to dementia. They emphasize th...

In this episode of Hope Floats, licensed clinical social worker Shoshawna Rainwater and professional certified coach Rachel Coady delve into the complex topic of anosognosia, a condition where individuals with dementia lack insight into their own cognitive decline. They discuss the prevalence of anosognosia among dementia patients, its impact on caregivers, and the challenges it presents in commun...

In this episode of Hope Floats, hosts Shoshawna Rainwater Rainwater and Rachel Coady discuss the challenges faced by caregivers caring for individuals with dementia. They emphasize the importance of acknowledging the hard work caregivers do, the need for self-compassion, and the significance of reflecting on the past year while setting intentions for the new year. The conversation also includes pr...

Summary In this episode of Hope Floats, hosts Rachel Coady and Shoshawna Rainwater discuss the critical steps to take after receiving a dementia diagnosis. They emphasize the importance of understanding the type and stage of dementia, planning for future decision-making, and the significance of advanced directives. The conversation also covers how to communicate the diagnosis to the care team and...

In this episode of Hope Floats, Rachel Coady and Shoshawna Rainwater explore the concept of ambiguous loss in the context of dementia. They discuss the unique challenges caregivers face, including the emotional rollercoaster of grief when caring for someone who is still alive yet psychologically absent. The conversation emphasizes the importance of community support, understanding grief, and findi...

In this episode of Hope Floats, hosts Shoshawna Rainwater and Rachel Coady discuss the complexities of navigating the holiday season while caring for a loved one with dementia. They explore the emotional challenges caregivers face, the importance of simplicity, routine, and flexibility, and provide practical tips and hacks to make the holidays more manageable. The conversation emphasizes the need...

In this episode of Hope Floats,  professional coach Rachel Coady (PCC) and licensed clinical social worker, Shoshawna Rainwater discuss effective strategies for caring for individuals with dementia. They emphasize the importance of understanding behaviors as communication signals indicating unmet needs. The conversation introduces the P-BREATHE framework, which helps caregivers identify potential...

 In this episode of Hope Floats, hosts Shoshawna Rainwater and Rachel Coady discuss the complexities of seeking a dementia diagnosis for loved ones. They explore what constitutes normal cognitive aging versus concerning changes, the importance of obtaining a diagnosis, and strategies for approaching the conversation with loved ones. The episode emphasizes the emotional challenges faced by caregive...

In this episode of Hope Floats, hosts Shoshawna Rainwater and Rachel Coady discuss the often-overlooked experiences of caregivers for individuals with dementia. They explore the emotional and physical toll of caregiving, the importance of building a support team, and practical tools for self-care. The conversation highlights the need for caregivers to recognize their own needs and seek support whi...