Everyday People Talking Health

Born with Cystic Fibrosis, Danny has been on a long journey coping and navigating his life-work balance. He shares how now at 38 years old, medical advancement extended his life and how developing secondary health issues impacts a daily life route. Danny on instagram Cystic Fibrosis (CF ) is a genetic condition affecting more than 10,900 people in the UK. You are born with CF and cannot catch it l...

Meet Mahvash, a resilient, determined problem-solver and an advocate for a world where disabilities are accepted in society. She shares her diagnosis of Usher syndrome at a young age, being independent whilst having family support, and the love for her niece. Follow Mahvash's journey on Instagram and TikTok to learn more about Usher Syndrome and her challenges. Usher syndrome is a rare genetic con...

Today’s guest is Jamie, a facilitator and creative with a strong passion for 3D printing. Jamie talks about chronic health, Endometriosis diagnosis, living with ADHD, and the need for accessibility. Links: Instagram @wainman_design Endo-zine by Jamie - (An Illustrated Endometriosis Fact Zine ) Endometriosis affects roughly 10% (190 million) of reproductive age women and girls globally.[ WHO ] Epis...

The following Cancer awareness live podcast conversation was recorded on 17th July at Simpson Memorial Hall, Moston lane in North Manchester. The Panel: Babz, diagnosed with Non-Hodgkin's Lymphoma.  Margaret, whose daughter had Retinoblastoma. Dr. Denis, a local GP. Dr. Louise, a lung cancer specialist. A big thanks to those that supported and took part in making this community conversation -...

Lauren recently set up a share and support group to help those who have experienced a pregnancy or infant loss. Lauren shares how her own experiences motivated her to set up Rainbow Journey. Feel free to come for a chat at Crumpsall Community Hall, Cleveland Road, M8 4GS (12pm - 2pm). For more details and support: https://www.facebook.com/RainbowJourneyM8 Call Rainbow Surprise on 07751 855229 In t...

Jai, a creative, writer and comic shares how he copes living with Tourette’s Syndrome . Diagnosed at 7 years old whilst watching Big Brother TV show, Jai highlights the highs and lows growing through school and why a good support system is important. Social media 👉 linkedin and twitter (X) - @WorsmanJ It is estimated that TS affects  one school child in every hundred  and more than 300,000 childr...

Funke shares experiences of her first Sickle Cell Crisis (SCC) and the importance of support systems. We talk about what living with Sickle Cell means, managing the disease, and working in film & creative industry.  More info about Funke Alafiatayo's works & projects at linktr.ee/funkstar13 Credits:  Podcast Editor - Owen Thornton We hope you enjoy this episode 😃 Do you have a health...

Katie is a founder of Starling CIO - a charity offering support and opportunities to young people with Neurodiversity. A great advocator for neurodiverse individuals, Katie shares what it’s like to live with CPTSD and how her experiences influenced her management tools. We talked about impact of long-term health conditions, Autism, ADHD, Dyslexia and finding support that works for you as an indivi...

Anna Savory is a creative, writer, comic, and business programme lead at the British Library. She was diagnosed with ME/CFS after battling with the effects of Covid-19 vaccine jab. Anna shed light on her diagnosis journey, support systems and her inspirations in implementing change for individuals with disabilities. Over 250,000  people in England and Wales with ME/CFS, with about 2.4  times as ma...

Rosie has struggled with Chronic Migraines from her teenage years. She uses her lived experiences of health to champion for others living with disabilities. She hopes to make arts and galleries accessible whilst raising awareness of health through her creative works.  Chronic migraine is a debilitating and disabling condition that affects around 2 in 100 people [ TheMigrainTrust ] Connect and chec...

Kondwani reflects on impact of the winter season whilst coping with ME/CFS and fibromyalgia symptoms. He also shares a few thoughts from others with similar experiences. In this series: Getting to Know ME, we will explore what it's like living with a life-limiting condition ME (Myalgic Encephalomyelitis). We will also reflect on the impact of living with a chronic health condition, hear from t...

Amazing how time flies, filled with experiences and new connections with people we meet on our journey of life. As we wind down closing the year in this festive season, I hope I’m not alone in recounting events and milestones over the past months. At this moment being in a reflective mode stands out for me. Guests featured in these conversations have different experiences of health conditions, and...

Letitia is a creative, music coach and social entrepreneur diagnosed with Multiple Sclerosis (MS). She shares impact of her diagnosis, accepting support and building resilience. We also discuss her passion for music and the amazing work at VoxPro Sessions The UK has around 130,000 people living with MS. An estimated 2,500,000 people in the world have multiple sclerosis. [ MS Trust ] More info &amp...

In this episode, Ellen interviews Faith Hiles, a dancer and fitness coach who has both Alopecia Areata and Coeliac disease . They discuss Faith's journey with Alopeica and how it has affected her confidence over the years, her diagnosis of Coeliac disease, her passion for dancing and fitness, how she is raising awareness of her health conditions now, and her experience of dating and relationsh...

Dave grew up not knowing he had Dyslexia & ADHD which was later diagnosed in his 40s. In this final part of our conversation on impact of growing up with Dyslexia and ADHD, we dive deep into Dave’s public health work in the community as he fights health inequalities. Dave also shades light on family, seeking support and managing work life. (This podcast conversation is a 2-part episode, and th...

Dave grew up not knowing he had Dyslexia & ADHD which was later diagnosed in his 40s. He recalls what life was like in school, experiences growing up, and the impact of not having early diagnosis. (This podcast conversation is a 2-part episode, and this is part 1) ADHD is a neurodevelopmental disorder which has features relating to both specific learning difficulties and mental health. Dyslexi...

Today you will hear from Sonya Chowdhury (CEO at Action For ME) as we discuss Long Covid, ME/CFS, projects such as DecodeME Study and World ME Alliance. Action for M.E. is the only charity in the UK supporting people with M.E. of all ages and their services have often been referred to as a 'lifeline' by those who have accessed them. They are working to ensure that adults, children, young p...

Ellen shares her life journey from dealing with Arthrogryposis (AMC) as a child to facing diagnoses such as Overactive Bladder and Incontinence issues as a young person. We discuss the importance of family support, dealing with work as a creative and podcast producer, fitness, mental health and staying positive.  Social media @ ellenhmacleod ( https://www.instagram.com/ellenhmacleod/ ) Arthrogrypo...

Empathy and health are central to being human. As we continue celebrating 10 years of Freshrb, we look forward to building engagement as we have these conversations around HEALTH and fostering further connections with you our community of listeners and supporters. We invite you to share your stories so others can find inspiration. We hope to connect with you so do stay in touch on social media ( @...

The ME Association has been providing expert help since 1980. They understand the challenges faced by people with ME/CFS, PVFS, and Long Covid, and believe that nobody should struggle alone. They provide support and information, campaigns and invest in medical research. They're here for you! Social media handles @meassociation on Twitter Instagram Facebook LinkedIn YouTube The booklet is avail...

Over 250,000 people in England and Wales with ME/CFS, with about 2.4 times as many women affected as men. [ nice.org.uk ] Russell has been living with Myalgic Encephalomyelitis (ME/CFS) over 20 years. He shares his diagnosis journey and how acceptance was key to surviving his ordeal. Russell enjoys going on walks and spending time with his dog Buster. You can read about Russell’s story - Surviving...

If both parents have the gene, there's a 1 in 4 chance of each child they have being born with sickle cell disease. [NHS UK] Today’s episode is with Kelvin, a young man from London with an impressive attitude towards living life to the fullest. He was diagnosed with Sickle Cell at the young age of 5, and now at 25 years, he believes in keeping your mind at peace. Social handles: twitter.com/kelvin...

About  1 in 8 women are diagnosed with breast cancer during their lifetime. There's a good chance of recovery if it's detected at an early stage. [NHS UK] Anna shares with us her Breast Cancer diagnosis journey and the amazing people in her life that helped her cope through the ordeal. Anna still finds time to dedicate her passion for nature and helping others achieve their potentia...

75% of deaths registered as suicide in England and Wales in 2019 were among men. [ mind.org.uk ] John and Fidelis have a catch up after filming production of Pretend (a mini series exploring men's mental health). They share their experiences of dealing with mental health, how they found being on set and embodying characters for the screenplay. Checkout the link to learn more and stay up to date or...

Javeno is passionate about creating an inclusive space for people in the community. He recalls one committed client named Brenda who's enthusiasm and love of the sessions helped spread the word which led to greater numbers of people participating. Javeno is committed to empowering individuals achieve greatness in health by providing access to tailored fitness sessions at J7 Health Centre in Higher...