Epilepsy Sparks Insights

Learn about the value of Epilepsy Specialist Nurses - who often do a whole lot more than their title may imply. This week Phil Tittensor, a consultant nurse for the epilepsies, a lecturer for the Uni of Wolverhampton, and the Chair of the Epilepsy Specialist Nurses Association, UK tells us about the variety of huge responsibilities of Epilepsy Nurses, what services they offer, and why we (patients...

EEGs are not always easy to interpret! Learn how lead peadiatric epileptologist, Asst. Prof. Shilpa Reddy from the Children’s Hospital at Vanderbilt, Tennessee, US trains other clinicians when it comes to EEGs, epilepsy diagnoses, encouraging questions, and reaching out to the public!  ------------------------------------------ 👉🏻 Support us on Patreon for early access to the show: https://www.p...

Advanced midwifery practitioner Kim Morley specialises in helping people with epilepsy who want to have children. Kim explains how she has and does positively influence the lives of people affected by epilepsy when it comes to having children (or not!). ------------------------------------------ 👉🏻 Support us on Patreon for early access to the show: https://www.patreon.com/torierobinson --------...

Peadiatric neurologist Allan Bayat from the Danish Epilepsy Center speaks of his Ph. D. in genetic epilepsies, his passion for translational medicine for the children and families affected, and future studies into the impact of modified treatments on comorbidities. ------------------------------------------ 👉🏻 Support us on Patreon for early access to the show: https://www.patreon.com/torierobin...

Talking to scientists Moran Rubinstein from Tel Aviv University in Israel and Eric Krema from Universite de Montpellier in France who together work on a project into gene therapy for the rare genetic epilepsy Dravet Syndrome. They speak of their research, its exciting outcomes, and the positive impact that this could have on treatments for patients! If you haven't yet seen the first in this set of...

Talking to scientists Moran Rubinstein from Tel Aviv University in Israel and Eric Krema from Universite de Montpellier in France who together work on a project into gene therapy for the rare genetic epilepsy Dravet Syndrome. They speak of their research, its exciting outcomes, and the positive impact that this could have on treatments for patients! --- More about Moran & Eric:  https://www.to...

Peadiatric neurophysiologist from Bambino Gesù Children Hospital, Rome, Luca De Palma, explains to us his pre-surgical evaluation of children being considered for epilepsy surgery, the potential risks and benefits of having surgery, and the benefits of having surgery earlier in life. --- More about Luca:  https://www.torierobinson.com/epilepsy-sparks-insights/luca-de-silva-01 --- Glossary: There a...

Peadiatric neurologist & epilepsy surgery specialist from Bambino Gesù Children Hospital, Rome, Luca De Palma, explains to us his pre-surgical evaluation of children being considered for epilepsy surgery, the potential risks and benefits of having surgery, and the benefits of having surgery earlier in life. --- More about Luca:  https://www.torierobinson.com/epilepsy-sparks-insights/luca-de-si...

Peadiatric neurologist and Assistant Professor at Gazi University, Esra Serdaroglu, tells us about the exciting treatment for some epilepsies called VNS (or vagus nerve stimulation). Esra speaks of the simple surgery, potential side effects, and incredibly positive impacts that so many children experience when it comes to seizure control and even mood. Esra also tells us about her research into th...

Upcoming clinical geneticist Katrine Johannesen - from the Danish Epilepsy Center - explains to us the value of genetic testing for adults with refractory epilepsy. Interview featured on podcast, YouTube, and website. See links below. --- More about Katrine: https://www.torierobinson.com/epilepsy-sparks-insights/katrine-johannesen --- Glossary: There are many terms used in this recording which you...

Who knew that a genetic issue restricting glucose absorption (to the brain) could cause an epilepsy?! Today hear Kathleen Gorman tell us about genetic epilepsies - including the rare genetic epilepsy GLUT1 Deficiency Disorder. --- More about Kathleen:  https://www.torierobinson.com/epilepsy-sparks-insights/kathleen-gorman --- Glossary: There are many terms used in this recording which you can find...

Accurately diagnosing epilepsy can be a challenge. Are the "episodes" NEAD? Fainting? Behavioural issues? Michael Kentris explains to us the importance of and how to obtain a 100% accurate diagnosis, the risks of misdiagnosis, and the "weird questions" to ask patients! Click below for more information about Michael and for podcast contents. --- More about Michael https://www.torierobinson.com/epil...

 Accurately diagnosing epilepsy can be a huge challenge when a hospital is underresourced. Michael Kentris explains how he manages with only 3 EEG machines, his work training others, using telemedicine, and more.  --- More about Michael:  https://www.torierobinson.com/epilepsy-sparks-insights/michael-kentris-01 --- Glossary: There are many terms used in this recording which you can find in the Epi...

Hear why genetic epilepsy syndromes (largely found in young children) have been reclassified - and not without deep thought or consideration! With world-renowned peadiatric consultant neurologist & researcher Sameer Zuberi. --- More about Sameer:  https://www.torierobinson.com/epilepsy-sparks-insights/sameer-zuberi-02 --- Glossary: There are many terms used in this recording which you can find...

Hear about precision medicine for children with genetic epilepsies with Sameer Zuberi, Consultant Paediatric Neurologist, Researcher, & Honorary Prof from the Royal Hospital for Children, Glasgow, UK - with a special mention of the rare epilepsies Dravet & CDKL5 (as June happens to be Awareness month for each). --- More about Sameer:  https://www.torierobinson.com/epilepsy-sparks-insights/...

"There is an unacceptable acceptance of having recurrent seizures and not opting for something like epilepsy surgery" - neurologist and epileptologist Ajay Asranna explains the benefits of temporal lobe resections for many with refractory temporal lobe epilepsy, and why we need to promote the surgery to make significant improvements to patients' Quality of Life. --- More about Ajay:  https://www.t...

Ian Bone: a neurologist, honorary professor, writer, and dad to a son with epilepsy, speaks from the heart - telling us a bit about his experiences in the early 1980s, what he’s learnt, and his new book about epilepsy: “Sacred Lives”. --- More about Ian:  https://www.torierobinson.com/epilepsy-sparks-insights/ian-bone --- Glossary: There are many terms used in this recording which you can find in...

Learn of the neuroimaging technique called magnetoencephalography – or MEG - with Omar Danoun, an epileptologist from Henry Ford Health in Detroit, with specific interests in epilepsy, and both MEG & EEG source imaging.  Omar did his epilepsy fellowship at the Mayo Clinic, was a clinical neurophysiology Fellow at the University of Michigan, did his neurology residency program at Wayne State Un...

Hear about what Psychogenic Non-Epileptic Seizures are, and how children experiencing them can be effectively treated. - with paediatric clinical psychologist Tyson Sawchuk - from the University of Calgary (Canada). --- More about Tyson:  https://www.torierobinson.com/epilepsy-sparks-insights/tyson-sawchuk --- Glossary: There are many terms used in this recording which you can find in the Epilepsy...

Hear from peadiatric neurologist and scientist Amy McTague who helps babies and families when it comes to the diagnosis, treatment, and care for the babies who have a genetic epilepsy.  --- More about Amy: torierobinson.com/epilepsy-sparks-insights/amy-mctague --- Glossary terms: epilepsysparks.com/glossary --- Follow Torie on: - Twitter: torierobinson10 - LinkedIn: torierobinson - Instagram: tori...

Hear of the study into the safety of the COVID vaccine for children with epilepsy - with neurologist and epileptologist Sebastian Ortiz - from Clinica del Country/Instituto Roosevelt (Colombia) & MSc Student at London School of Hygiene & Tropical Medicine (UK). --- More about Sebastian:  https://www.torierobinson.com/epilepsy-sparks-insights/sebastian-ortiz --- Glossary: There are many ter...

Epilepsy research lead (PI) and lecturer in pharmacy, Cristina Reschke tells us about her work in both her exciting research into how microRNAs and circadian rhythm disruptions lead to epileptogenesis and seizures and educating pharmacists of the future regarding the epilepsies. --- More about Cristina:  https://www.torierobinson.com/epilepsy-sparks-insights/cristina-reschke --- Glossary: There ar...

Peadiatric neurologist and epileptologist associate Julia Jacobs talks to us about her wonderful Excited Brains: Zippy & Zappy from the “knowledge2 empower” project. Julia's purpose is to educate and empower children, families, and schools when it comes to epilepsy! --- More about Julia: https://www.torierobinson.com/epilepsy-sparks-insights/julia-jacobs --- Glossary: There are many terms used...

Trying to stay safe from bombs in her bathroom, meet Olha Tychkivska, a peadiatric neurologist from Lviv City Children's Clinical Hospital in Ukraine. Every day Olha is working to save the lives of children with epilepsy whilst the country is attacked. --- More about Olha and how you can help: https://www.torierobinson.com/epilepsy-sparks-insights/ukraine-olha-tychkivska --- Share this interview t...

Sophie Adler talks about her Multi-centre Epilepsy Lesion Detection research project and how this enables neurologists and neurophysiologists to more effectively identify brain lesions (frequently causing epilepsy) through Machine Learning. --- More about Sophie: https://www.torierobinson.com/epilepsy-sparks-insights/sophie-adler --- Glossary: There are many terms used in this recording which you...