Epilepsy Sparks Insights

What Infantile Epilepsy Syndromes are, potential disease-modifying treatments, steroids, and research - all fabulously explained by epileptologist & neuroscientist Stéphane Auvin! ------------------------------------------ More about Stéphane: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/stephane-auvin-what-are-infantile-epilepsy-syndromes ---------------------------------------...

Peadiatric neuropsychiatrist & researcher Rebecca Bromley talks about the needs of families regarding positive research and international collaborations in regards to epilepsy medicine safety, aka pharmacovigilance. ------------------------------------------ More about Rebecca: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/rebecca-bromley-pharmacovigilance-sodium-valproate   ----...

Hear about common fears of dementia, other causes for dementia "symptoms", how to minimise dementia risk, and more! From adult neurologist & neuroscientist of MGH & Harvard Medical School, Alice Lam. This is part 2 of 2. ------------------------------------------ More about Alice: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/alice-lam-will-i-get-dementia- epilepsy-alzheimers...

Alice Lam: Lam Lab, Massachusetts General Hospital & Harvard Medical School, US  Alice explains the bidirectional relationship between epilepsy and Alzheimer’s Disease. This is part 1 of 2.  ------------------------------------------ More about Alice: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/alice-lam-epilepsy-dementia-epileptiform-activity-alzheimers-disease ---------------...

Oliver and Torie speak of ways to speak about and improve the sex lives of people with an epilepsy (should they need it) - from both the clinician and patient perspectives. ------------------------------------------ More about Oliver: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/oliver-henning-sex-epilepsy-02   ------------------------------------------ Don’t understand all the term...

In anticipation of Valentine's Day(!), epileptologist & psychiatrist Oliver Henning speaks about the common sexual challenges amongst some people with an epilepsy. Last time we checked, the majority of people with epilepsy were, on paper, sexual creatures, but, indeed, many can struggle with their sex lives - at times - a little more than those without epilepsy. Learn more through an open chat...

Adult neurologist Abril Marone speaks of her sensitivity in managing the patient experience from paediatric to adult care, plus speaks of how important it is for patients to be able to speak about sensitive, personal concerns; such as sexuality. ------------------------------------------ More about Abril: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/abril-marone-patient-transition-p...

Valentina Galassi Deforie, a final year Ph. D. student of the UCL Neurogenetics Lab, speaks of using frog eggs to research the epilepsies and some new mutations discovered - e.g. those of the KCNA6 and NARS1 genes! ------------------------------------------ More about Valentina: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/valentina-galassi-deforie-frog-eggs-research-epilepsy-KCNA6-...

Stéphane Legriel tells us about the ICTALGroup - an organisation formed of neurologists around France who share knowledge to improve the care of people experiencing status epilepticus. ------------------------------------------ More about Stéphane: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/stephane-legriel-02   ------------------------------------------ Don’t understand all the t...

We hear from Stéphane Legriel: a Critical Care/ICU physician with a passion for helping people with experiencing status epilepticus - an ongoing, very dangerous, epileptic seizure. Stéphane tells us all about different types of status epilepticus and emergency care for people who experience it. ------------------------------------------ More about Stéphane: 👇🏻 https://www.torierobinson.com/epile...

Scott Perry tells us about identifying and challenging racial disparities in epilepsy care, followed by a chat about brain art - an important method of communication when it comes to epilepsy, neuroscience, and more! This is part 2 of 2 with Scott. ------------------------------------------ More about Scott: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/scott-perry-02  --------------...

Scott Perry - Head of neurosciences and pediatric epileptologist at Cook Children’s hospital tells us all about genetic testing re the epilepsies, PERC: the Pediatric Epilepsy Research Consortium, and measuring the effectiveness of epilepsy surgeries in children. This is part 1 of 2 with Scott. ------------------------------------------ More about Scott: 👇🏻 https://www.torierobinson.com/epilepsy...

Hear of Richard Baines and his team use fruit flies in epilepsy research, the discoveries made, and the next steps for epilepsy research! Also hear more about the incredible Fly Facility at Manchester University!r University! ------------------------------------------ More about Richard: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/richard-baines-02   -------------------------------...

Hear of HOW Richard Baines and his team use fruit flies in epilepsy research, the discoveries made, and the next steps for epilepsy research! Also hear more about the incredible Fly Facility at Manchester University! ------------------------------------------ More about Richard: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/richard-baines-01 ------------------------------------------...

Post-doc research fellow Eden Robertson from UNSW, Australia, speaks of her GenE Compass project results and how to support caregivers of those with a Developmental & Epileptic Encephalopathy. Eden shares what has already been learnt from the project, the benefits of altruism, and working towards health equity through leaning and working with communities.   ------------------------------------...

Behavioural scientist Eden Robertson from UNSW, Australia, shares with us her work into improving the lives of caregivers of children with a Developmental & Epileptic Encephalopathy, with clear messages: the Developmental & Epileptic Encephalopathies awfully impact caregivers, who must be provided with education and support. This is part one of two with Eden. ------------------------------...

Climate change is real. Awfully real. Hear of the real threats posed by climate change to those with epilepsy and what we can do to help make change and minimise risk. With global lead Prof. Sanjay Sisodiya - Consultant Neurologist at UCL Queen Square Institute of Neurology & Neurosurgery, UK.  ------------------------------------------ More about Sanjay: 👇🏻 https://www.torierobinson.com/epi...

Hear how graphene technology can access and record abnormal brain activity where EEG electrodes can't! With epilepsy researcher Rob Wykes: from both UCL Hospital for Neurology & Manchester University!    More about Rob: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/rob-wykes ------------------------------------------ Don’t understand all the terms used? Check out the Epilepsy Spa...

Research Specialist Stefanie Prast-Nielsen soeaks of her clinical study involving fecal samples from a group of children with refractory epilepsy who started the ketogenic diet; investigating their gut microbiota and how it may be related to changes in epileptic seizures. Stefanie also talks about future international collaborations in collections of stool samples for furthering this epilepsy rese...

Hear from Research Specialist & PI Stefanie Prast-Nielsen, from the Centre for Translational Microbiome Research at Karolinska Institutet in Stockholm, Sweden, about her epilepsy research into gut microbiota; explaining to us what they are, how they connect with the brain, and the link between them, our poo/feces, and seizures! This is part 1 of 2. ------------------------------------------ Mo...

This week we chat with Usha Kini: a professor in clinical genetics from Oxford University who tells us about her work on the new, exciting epilepsy genetics pilot project called Genseize. For Genseize they are recruiting individuals and families affected by a primary epilepsy who’d like to potentially find out more about their own condition which may lead to improved treatment, but also improve di...

Adult neurologist, epilepsy specialist, and researcher Heidi Munger Clary specialises in helping people with epilepsy who experience anxiety and depression and who are at risk of suicidality. Heidi tells us about patient risk identification and prevention, access to help, and tools for clinicians and patients. Which are in great demand!! Only watch/listen to this video if it is safe for you to do...

Anxiety and depression. Each of these mental illnesses are incredibly common as part of epilepsy. In anticipation of World Mental Health Day (10th October), we talk about anxiety and depression as part of epilepsy - with adult epileptologist Heidi Mungar Clary from the Wake Forest University School of Medicine, in North Carolina, US. Heidi tells us about her cool research into the topics  (present...

Learn how the depression and anxiety of people with epilepsy can be addressed in a unique, remote way by clinical psychologist & senior research fellow Milena Gandy - writer of The Wellbeing Neuro Course. ------------------------------------------ 👉🏻 Become a patron for early access to the show: https://www.patreon.com/torierobinson ------------------------------------------ 👉🏻 T-shirts, m...

In episode 2 with Phil Tittensor, he shares with us how and why he became an Epilepsy Consultant Nurse and some of his research projects covering risk communication, climate change, and Artificial Intelligence. If you haven’t seen episode #01 with Phil, check it out here: https://epilepsysparksinsights.podbean.com/e/what-is-an-epilepsy-specialist-nurse-phil-tittensor-uk-01 ------------------------...