Dementia Dialogue

Nos invitées pour ce balado sont Hélène Carbonneau, professeure au Département d’études en loisir, culture et tourisme à l’Université du Québec à Trois-Rivières et Sandra Harrisson, professeure agrégée à l’École des sciences infirmières de la Faculté des sciences de la santé de l’Université d’Ottawa. Hélène et Sandra collaborent depuis plusieurs années maintenant à l’élaboration d’un cadre plus hu...

Marie-Reine et André sont tous deux natifs du Caire, en Égypte. Ils ont émigré au Canada en 1970 et habitent dans la région d’Ottawa. C’est là qu’ils ont fait leur carrière et élevé leur famille. Il y a environ trois ans, André a été diagnostiqué avec la maladie à corps de Lewy, une forme de trouble neurocognitif qui partage de nombreuses similitudes avec la maladie de Parkinson. Lors de notre ren...

We continue our series on Dying and Dementia, with Ron Posno. Ron lives with Alzheimer’s Disease and Vascular dementia. He shares his experience of living with dementia, why he thinks having conversations about our own death is important and what this means for him as someone living with dementia. Ron has been an advocate of access to Medical Assistance in Dying (MAID) for people living with demen...

In this episode, the first in a new series on Dying and Dementia, guest host Jillian McConnell, Knowledge Translation Specialist with the brainXchange , sits down with Anne Marie Stoneburgh a Death Doula. Many people avoid this topic in our death-averse society and yet we are all “living while we are dying”. Annie explains what a Death Doula, or End-of-Life Care Facilitator is and the role they mi...

In this second of 2 episodes which marks The National Day of Truth and Reconciliation,  Lisa Loiselle talks with Laura Alfaro and Danielle Alcock who both work in Indigenous health and were involved in the Circle of Care, which is a project that addresses the needs of Indigenous caregivers of people living with dementia. Laura was the project officer at the Native Women’s Association of Canada lea...

This episode is a reprise of Episode #41 and features a conversation Lisa Loiselle had with Mike Belleville and Mary Fridley of the  Reimagine Dementia - A Creative Coalition for Justice      The reprise honours the launch of its "Taking it to the Streets" Campaign to  “Shatter the silence about dementia Creatively transform the journey of dementia for everyone Build a world (and systems of care)...

In this 2-part podcast Lisa Loiselle talks with Laura Alfaro and Danielle Alcock who  both work in Indigenous health and were involved in the Circle of Care, which is a project that addresses the needs of Indigenous caregivers of people living with dementia. Laura was the project officer at the Native Women’s Association of Canada leading the project and Danielle facilitated the talking circles du...

In this episode, Pat Shanahan speaks with Maggie Perquin.  Maggie retired early from teaching to become the carer for her wife Ruth who have been together for 27 years, married for 15 of those and between them they have 15 grandchildren.  Ruth, also a retired teacher, had been struggling with cognitive issues for about 8 years when she was finally diagnosed with vascular dementia in 2018.  Followi...

Arne Stinchcombe chats with researchers doing work with lesbian, gay, bisexual, transgender, queer, and Two-Spirit (LGBTQ2S+) persons with dementia and carers. Jason Flatt is an Assistant Professor in the Social and Behavioral Health Program at the University of Nevada (Las Vegas) School of Public Health. Jason discusses how he got involved in dementia research and some of the concerns of 2SLGBTQI...

Pour ce dernier épisode de notre deuxième saison, nous avons eu une conversation fascinante sur les nouveaux modèles de résidences pour aînés vivant avec un trouble neurocognitif majeur avec le professeur Philippe Voyer. Comment est-ce qu’on peut repenser nos modèles de résidences pour les rendre plus accueillantes pour les aînés atteints de trouble de mémoire et leurs familles? Quels sont les dét...

In this episode, Pat Shanahan speaks with Barbara Machalik and Mary Connell. Barbara is the Executive Director of Academics, Community Relations and Programming at the Long Term Care homes operated by the Rekai Centres at Wellesley Central Place and Sherbourne Place in downtown Toronto. Barbara tells us about the planning and launch of the Rainbow Wing at their Wellesley location in 2022. The Wing...

Comment aider un proche atteint d’un trouble neurocognitif majeur quand on habite à plus de 5,000 kilomètres dans une région éloignée des grands centres urbains? Pour en apprendre plus sur cette problématique, j’ai interviewé deux Yukonnais : Sandra St-Laurent et Paul Davis. Sandra est Québécoise de naissance et Franco-yukonnaise d’adoption. Elle est arrivée au Yukon, il y a plus de 25 ans, et est...

After listening to a group of women living with dementia talk about their group, Dementia Sisterhood, if you are interested, contact Dr. Elaine Wiersma at ewiersma@lakeheadu.ca . They meet virtually via Zoom to share their lives, support one another and derive encouragement from the solidarity they experience    You may want to check out our series on Women & Dementia https://www.dementiadialogue....

Native de l’Abitibi-Témiscamingue dans la province de Québec, Annie Bourret habite en Colombie-Britannique depuis près de 30 ans.  Au printemps 2019, la mère d’Annie, l’autrice québécoise Anne-Michèle Lévesque, subit un AVC qui la laisse avec des séquelles : des troubles de mémoire, perte de langage, fatigue mentale et physique. Elle quitte donc le Québec et s’installe chez sa fille à Ashcroft en...

Lisa Loiselle speaks with Laura Middleton and Bill Heibein about the DREAM (Dementia Resources on eating, activity, and meaningful inclusion) project. Laura Middleton is an Associate Professor at the University of Waterloo whose work looks at the role of physical activity and other lifestyle strategies like healthy eating, and social engagement in promoting the well-being of people living with dem...

In the second part of the Community Engagement series, we meet Andréa Monteiro,  a researcher,  educator, nurse, documentary filmmaker and social justice advocate. Her father lived his final years with dementia. As the community research coordinator, Andrea walked alongside community partners, witnessing, dialoguing, and serving as a sounding board for different communities and groups discussing i...

Dans cet épisode, Dre Nouha Ben Gaied – Directrice en recherche et développement et qualité des services à la Fédération québécoise des Sociétés Alzheimer – nous parle du projet Canada proche allié Alzheimer. Ce projet, qui a pour but de favoriser l’inclusion des personnes atteintes de troubles neurocognitifs dans nos communautés, est un partenariat entre les Sociétés Alzheimer du Canada, de la Co...

In part 1 of a two-part series, Lisa Loiselle speaks to Alison Phinney, PhD RN, and Lynn Jackson, RN, a person with lived experience of dementia. They work on the  Building Capacity Project, a partnership between researchers at the University of British Columbia and Lakehead University, and the Westside Seniors Hub in Vancouver and the North West Dementia Working Group in Thunder Bay. Alison is fr...

In this second episode on biomarkers, Ann Bil, a woman living with dementia, and Kristi Wijnsma, her daughter, discuss why they enrolled in the IMPACT-AD, their experience, and how they used the results from the investigation. Khushbu Patel, a research associate of Dr. Mari DeMarco, the principal investigator, talks about some other participants' experiences and resources available at www.impactad...

Dr. Mari DeMarco, Ph. D., is a researcher at the University of British Columbia concerned with how the diagnoses of neurodegenerative diseases can be improved by discovering and using biomarkers. Led a study on biomarkers. Her lab aims to create better tools for the timely diagnosis of Alzheimer's disease, frontotemporal degeneration, and related disorders and make these tools easily accessible to...

Nos invitées pour ce balado sont Hélène Carbonneau, professeure au Département d’études en loisir, culture et tourisme à l’Université du Québec à Trois-Rivières et Sandra Harrisson, professeure agrégée à l’École des sciences infirmières de la Faculté des sciences de la santé de l’Université d’Ottawa. Hélène et Sandra collaborent depuis plusieurs années maintenant à l’élaboration d’un cadre plus hu...

This is the second episode about the Building Capacity Project (Part 1 is episode #51), a joint initiative of UBC and Lakehead University. Alison Phinney and Granville Johnson focus on a Toolkit the project has developed to promote the inclusion of people with dementia in community programs. It is meant to help community leaders and program participants to understand how dementia is experienced an...

In this episode, Pat Shanahan speaks with Maggie Perquin.  Maggie retired early from teaching to become the carer for her wife Ruth who have been together for 27 years, married for 15 of those and between them they have 15 grandchildren.  Ruth, also a retired teacher, had been struggling with cognitive issues for about 8 years when she was finally diagnosed with vascular dementia in 2018.  Followi...

In this final episode of our Young Onset Dementia series, guest host Jillian McConnell speaks with Dr. Mario Masellis, Associate scientist and Clinician-scientist with the Hurvitz Brain Sciences Research Program, Sunnybrook Research Institute & Sunnybrook Health Sciences Centre; Assistant professor, neurology, department of medicine, University of Toronto and Research scientist, Centre for Addicti...

Après trois mois de relâche, nous sommes enchantés de vous revenir avec notre série de balado Les troubles neuro-cognitifs : parlons-en! Cet automne, nous vous-présenterons une série de balados mettant en vedette des francophones de l’Ouest canadien. Dans le premier épisode de la série, l’animatrice Ingrid Gagnon s’entretien avec Gioia Sallustio à propos de résilience, de la proche aidance, de l’i...