Covid Long Haulers Podcast

In this episode, Emerson sits down with Mo, a 30-year-old from London, UK, who has been living with Long Covid since 2022. Her Long Covid seems to fit into the ME/CFS and MCAS subtypes of this illness. Mo is also the person behind the “Slowcial Life” where they organise online events for chronically ill and disabled people.  Before getting sick, Mo lived an intensely active life working across the...

In this episode, Emerson and Jessie continue Eddie’s story. After previously discussing the profound impact of illness on their life in part one , we now follow Eddie through a period of crash, experimentation with new treatments, and important life changes.  Following the French classes, Eddie experienced a significant health crash with worsened pain, mobility issues, and PEM before slowly stabil...

In this episode, Emerson and Jessie speak with Eddie, a 30-year-old living in Montreal, Canada, who has been navigating Long COVID for the past four years. Before getting sick, Eddie lived a fast-paced, highly active life. After two COVID infections in early 2022, their life changed drastically and they now live with severe fatigue, post-exertional malaise (PEM), dysautonomia/POTS, chronic pain, m...

In this episode of the COVID Longhaulers Podcast, Jessie and Emerson sit down with five guests to discuss what their daily lives look like with Long COVID – across different ages, life stages, and circumstances. Aliza has been living with Long COVID since she was 12. Despite severe fatigue and POTS, she continues attending high school with accommodations while navigating the loss of activities she...

In this episode of the COVID Longhaulers Podcast, Jessie and Emerson sit down with Darya, a 16 yr old junior in high school from Los Angeles, and her mom, Dr. Elham Raker. Darya has been living with Long COVID since 2021, when she developed intractable migraines after a covid infection at just 12 years old. Elham is a pediatrician and most importantly a mom, who has been navigating a  system that...

In this episode of the COVID Longhaulers Podcast, Jessie and Emerson explain the basics of Long COVID. Drawing on current research and lived experience, they unpack how Long COVID is defined, who can develop it, and why it remains so difficult to diagnose and treat. They explore how a single COVID infection, even a mild or asymptomatic one can lead to long-term, multisystem illness, affecting virt...

As 2025 comes to an end, we’re closing out the year with a more personal episode of the COVID Long Haulers Podcast. In this episode, hosts Rush and Emerson share their own health updates and welcome back Matt, our first guest of the year, to talk about how his long COVID has evolved over the past months. Together, they reflect on what living with long COVID looks like years in: the setbacks, the s...

In this episode of the COVID Longhaulers Podcast, Patrick shares his story of surviving two COVID infections. His first pre-lockdown infection caused severe lung damage, chest pain, and a new cardiac arrhythmia that he still lives with today. The second infection, two years later, hit him in unexpected ways, triggering intense brain fog, dissociation, and months of debilitating gastrointestinal is...

In this episode, Emerson and Jessie continue their conversation with Noah, a 23-year-old former college gymnast from South Dakota, USA. In part one , Noah shared the story of how Long COVID reshaped his health and the steps he took to begin recovery. In this second installment, he reflects on what it meant to lose gymnastics – the sport that shaped his identity, and how he continues to rebuild a s...

In this episode, Emerson and Jessie sit down with Noah, a 23 year old former college gymnast from South Dakota, USA whose life was flipped upside down after his first COVID infection in early 2024.  Before developing Long COVID, Noah was a fit individual, who followed a healthy lifestyle and trained regularly as an elite gymnast. He is a type one diabetic with ADHD, who knew that an infection coul...

In this special “mini episode” of the COVID Longhaulers Podcast Emerson discusses the preliminary results of the DecodeME study – the largest genetic investigation ever conducted on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). With over 15,000 DNA samples analyzed, the study identified eight key genetic signals associated with ME/CFS, offering the first concrete biological clues to...

In this episode of the COVID Longhaulers Podcast, Jessie and Emerson take a deep dive into the current global COVID surge – what’s driving it, which variants are spreading, and what you can do to stay safer. They start by unpacking what a surge actually is, how often they occur, and why COVID waves aren’t just a winter problem. From indoor air and global travel to seasonality and social behavior,...

In this episode, Emerson sits down with Stefan (aka Rhand from our Long Covid Awareness Day episode ), a cruise director from Belgium whose life was changed by Long COVID after multiple infections – especially his fourth in June 2023. Before getting sick, Stefan worked three jobs, handled most of his household tasks, and was even writing a fantasy novel. After developing persistent fatigue, he eve...

In this special ME Awareness Month episode, Jessie, Emerson, and Rush speak with Elly, a teacher from Scotland whose life was derailed by a seemingly mild summer cold that she never recovered from. What began as a sore throat and congestion spiraled into migraines, brain fog, and profound exhaustion – ultimately leading to a diagnosis of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)....

In this episode of the COVID Longhaulers Podcast, Rush and Emerson take a deep dive into the lesser-known but deeply concerning reality of the invisible damage caused by COVID-19 infections – even in people who seem to recover fully from a mild case. Based on emerging research and their personal experiences, Rush and Emerson look at how the virus infiltrates the body, spreads through multiple orga...

In this special episode of the COVID Longhaulers Podcast, Emerson and Jessie mark Long Covid Awareness Day by diving deep into the realities of living with Long Covid five years into the pandemic. They share powerful insights from their recent community survey, exploring the challenges of diagnosis, access to care, work and school disruptions, financial struggles, and the toll on social lives. Fea...

In this episode of the COVID Longhaulers Podcast, we sit down with Matt, an essential worker whose life was turned upside down after his first Covid-19 infection in December 2021. Matt shares his harrowing journey with Long Covid, from stroke-like symptoms, chronic headaches and severe GI-symptoms, to navigating dismissive healthcare systems and the mental health challenges of living with a misund...

The holiday season can be rather stressful for COVID long haulers, especially for those dealing with severely debilitating symptoms. There is quite a bit of pressure to conform to social norms by dropping all COVID precautions while participating in holiday gatherings. This pressure often comes from well-meaning family and friends who don’t understand the risks or the physical toll that Long Covid...

In this episode, we sit down with Voleuse, who shares her experiences before and after contracting Covid, detailing the progression of her symptoms and the various treatments she has explored, such as occupational therapy, sleep coaching, and mind-body therapies. She also offers reflections on navigating the medical system, the challenges of living with disability, and the critical need for unders...

In this episode, Emerson (they/them) discusses their journey with long COVID. Since August 2023, they have been experiencing severe dysautonomia and fatigue as a long hauler. This episode shares their relatable story and experiences, focusing on their ongoing journey without any "cure" or recovery at this early stage. If you liked this episode, we hope you will click subscribe so that yo...

In this episode, Rush shares his journey with long covid, including some of the more unusual and exotic symptoms the disease can cause, and his recovery. If you liked this episode, we hope you will click subscribe so that you don’t miss any of our future episodes. To join the discord server, you can do so with this link: https://discord.gg/q4t6MUQ9Ah You can also find us on instagram: https://www....

In the very first episode of this podcast, we are diving in with Jacob aka Kalikaiz who has been longhauling since April 2020. He has been doing quite well for a while now and wanted to share his story and leave some information about how he made it through. If you liked this episode, we hope you will click subscribe so that you don’t miss any of our future episodes. To join the discord server, yo...