Sanford CoRDS

CoRDS Cast

Health EN ↓ 53 episodes

This is CoRDS Cast, a rare disease podcast created by the team at Sanford Research. Our rare disease registry, CoRDS, connects patients and researchers everywhere. Here, you'll hear interviews with patients, patient advocates, physicians, and researchers to raise awareness about the 7,000 rare conditions affecting 1 in 10 people worldwide.

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Author

Sanford CoRDS

Episodes

Episode 2 - Part 2 01.08.2018 20:35

In episode 2, we sit down with a handful of attendees at the 2018 Professional Patient Advocates in Life Sciences (PPALS) certificate training course held earlier in the summer. In part 2 of this episode, you'll hear interviews with Seth Rotberg from the Huntington Disease Youth Organization, Olivia Montano from the PROS Foundation, and Rob Long & Brett Brackett from Uplifting Athletes.

Episode 2 - Part 1 01.08.2018 19:26

In episode 2, we sit down with a handful of attendees at the 2018 Professional Patient Advocates in Life Sciences (PPALS) certificate training course held earlier in the summer. In part 1 of this episode, we interview Erin Hill from the Muscular Dystrophy Association and two of the PPALS event organizers, Jean Campbell and David La Greca.

Episode 1 06.07.2018 14:58

Introduction to the CoRDS Registry, Sanford Research, and an interview with the man behind it all, Dr. David Pearce.