Conversations About Advance Care Planning

In this episode I talk with Gill Lomes Quinn and learn about her research into the views of disabled people on Advance Care Planning.  Gill describes her research and we talk about what we can learn and apply from her work. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to  www.speakformelpa.co.uk where I p...

In this episode I talk with Lauren Preece, Team Lead of the Tower Hamlets Advance Care Planning Team. This innovative team leads on Advance Care Planning, working with patients and supporting healthcare professionals. Lauren talks about how they have moved from Difficult Conversations to Important Conversations and the impact of asking "what is important to you?" If you are a team looking to provi...

In this episode I talk with the lady of a daughter with Alzheimers who didn't have an LPA in place. The episode demonstrates multiple systemic failures and a lack of professional understanding about a Lasting Power of Attorney. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to  www.speakformelpa.co.uk where...

In this episode I talk with Kim Claridge from the London Anatomy Office. I learn about what it means to donate your body for medical education, the history and current regulations and hear the respect given to all donors. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to  www.speakformelpa.co.uk where I pro...

In this episode I discuss DNACPR with Ken Spearpoint. We talk about what CPR is, the cases that have been tested in court, the rulings and what we can learn from these. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to  www.speakformelpa.co.uk where I provide details on how I can help you. You will also fin...

In this inspirational episode I talk with Gemma and Jed about the No Barriers Here work; we discuss their innovative co-productive Advance Care Planning work and learn stories behind the No Barriers Here film. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to  www.speakformelpa.co.uk where I provide details...

In this episode I talk with Sue Marsden about Advance Care Planning for people with Learning Disabilities. Sue's shares her experience of working as a specialist nurse in both LD and EoLC and the value this brings to each role. Sue talks about some of the barriers to planning ahead for people living with a Learning Disability and is passionate about educating others to overcome those barriers. If...

In episode 9 I talk with Dr Sarah Combes about her role as a clinical academic and what she has learned from researching. Sarah shares findings from her work and barriers and enablers to Advance Care Planning with older people. Sarah highlights some of the professional challenges in Advance Care Planning and shares a great message: Advance Care Planning is simply about what matters most to a perso...

In episode 8 I talk with Zoe Harris about the inspiration behind My Care Matters and how it can help with Advance Care Planning. Zoe describes the benefits of the My Care Matters Handbook and how the Buddy Service can help people to complete the Handbook. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to  w...

In episode 7 I talk with Celia Kitzinger about Advance Decisions to Refuse Treatment and the Mental Capacity Act. Celia shares how a devastating family experience provided the catalyst for her work and provides clarity and insight into ADRTs and the MCA. Celia talks through the process of making an ADRT and why an Advance Statement of wishes and preferences is so very important. If you are a team...

In this episode I talk to James about what a Digital Legacy is and how to get started. Like many people, I have heard about  Digital Legacy, but have always been a little uncertain how to take the first steps in managing my own Digital Legacy. James gives some excellent advice and I can proudly say I have taken those first steps. James Norris is the founder of the Digital Legacy Association and My...

In episode five I talk with Jim about what he learned from working in a hospice and how he walks two roads between life saving active interventions and supporting people at the end of life. Jim talks about what can happen when Advance Care Planning is not in place, describing some of the calls he has attended to demonstrate the reality. We know that many people express a wish to be in their own ho...

In this episode Sonia shares how she has introduced Advance Care planning across three generations of her family and with her friends. Sonia talks about an experience she had at an early age and how this shaped her views on planning ahead. Sonia shares three different ways she has started Important Conversations using - cues - media as a springboard for conversation - Following up a direct "I don'...

In episode 3 I talk with Dr Amy Heskett about Treatment Escalation Plans, or TEPS. TEPs are a part of Advance Care Planning and focus on planning ahead in case of a crisis situation including guidance on a person's wishes about being admitted to hospital. Amy shares how to start important conversations and what makes a good Treatment Escalation Pan. If you are a team looking to provide better end...

In episode 2 I talk with Dr Miriam Colleran. Dr Miriam is a consultant in palliative care working in the hospice, communiuty and acute hospital settings close to Dublin. We talk about the impact of introducing the Dignity Question in person centred care and how to include What Matters Most into Advance Care Planning. If you are a team looking to provide better end of life care, or set up a one off...

In this episode I talk to Clair Fisher. We discuss Clair's experience in hospital and challenges in ensuring her  Advance Care Plan was listened to. Clair shares the wellbeing advantages she has experience through Advance Care Planning and some useful tools for Advance Care Planning. If you are a team looking to provide better end of life care, or set up a one off or complete education programme i...