CMT Simplified

Send us Fan Mail Waking up tired after a full night in bed isn’t just frustrating, it’s a biological clue. We dig into why sleep is active work, how broken sleep architecture can leave you depleted, and why “losing consciousness” is not the same as getting real recovery. Using clinical nutritionist and sleep lab veteran Lori Gregory’s ideas, we unpack the vicious cycle where pain disrupts sleep, s...

Send us Fan Mail Getting into a car feels automatic until your body stops cooperating. One day, you’re running errands on muscle memory, and the next, you’re pulling over because your foot won’t reliably find the brake. That frightening gap between “I’ve driven for decades” and “I’m not safe anymore” is where adaptive driving begins, and it’s far more human and more high-tech than most people real...

Send us Fan Mail Learn more at CMTsummit.org Your laptop can give you a thousand links about Charcot-Marie-Tooth disease, but it can’t give you certainty, context, or a hand on your shoulder when the fear spikes at 2 a.m. We dig into the newly released agenda for the HF Clinical Trial Readiness Summit Plus Retreat (April 16–18, 2026 in Ellicott City, Maryland) to answer a blunt question: why show...

Send us Fan Mail A slow-burning disease like Charcot Marie Tooth can fool even the best trials. Scores swing with sleep and stress, not biology, while tiny changes accumulate out of sight. We set out to replace guesswork with measurement and show how the right biomarkers can compress timelines, cut costs, and turn promising science into treatments that matter. First, we unpack the measurement prob...

Send us Fan Mail If resilience feels like a buzzword, consider this a reset. We explore a lived-in roadmap shaped by the Charcot-Marie-Tooth community, where change is constant and the goal isn’t to bounce back—it’s to move forward with smarter tools, stronger ties, and a lighter emotional weight. With Lily Sander, the 2025 MDA National Ambassador, and Estela Lugo from the Hereditary Neuropathy Fo...

Send us Fan Mail Wading through the Social Security Disability Benefits process feels like navigating a bureaucratic labyrinth—one that becomes even more daunting when you're dealing with Charcot-Marie-Tooth disease. From chronic muscle weakness to mobility challenges, CMT sufferers face enough hurdles without fighting government red tape. This episode cuts through the confusion, offering a s...

Send us Fan Mail Have you ever wondered how to navigate the complex intersection of your Charcot-Marie-Tooth disease and your professional life? This essential episode delivers a powerful roadmap for workplace success, breaking down the often intimidating process of requesting accommodations into clear, actionable steps. We demystify the concept of "reasonable accommodation" under the Am...

Send us Fan Mail Facing a Charcot-Marie-Tooth diagnosis can feel like being dropped into unknown territory with a flood of questions and uncertainty. Where do you even begin? What steps are truly essential? How do you move from feeling overwhelmed to taking meaningful action?  This episode cuts through the noise to deliver a comprehensive roadmap for newly diagnosed individuals and their families....

Send us Fan Mail Have you ever wondered what's actually involved in correcting CMT-related foot deformities? This episode cuts through medical jargon to deliver a comprehensive guide to foot surgery for people with Charcot-Marie-Tooth disease, combining expert clinical knowledge with invaluable first-person experience. The classic high-arched, inward-turning foot seen in CMT isn't just a...

Send us Fan Mail AFOs might just be three letters—but for those living with CMT, they can mean the difference between daily struggle and confident mobility. In this episode, we explore how the right Ankle Foot Orthosis can reduce fatigue, improve stability, and even change the way you walk. From common gait compensations to what makes a good brace great , this conversation is packed with insights...

Send us Fan Mail This episode explores the rapid advancements in understanding and treating CMT SORD, highlighting community engagement and innovative research, particularly focusing on the potential of the drug Gavorstat. The scientific journey from gene discovery to clinical trial showcases the power of collaboration, emphasizing patient voices in shaping treatment success. • Discussion on what...

Send us Fan Mail Discover the complexities of Charcot-Marie-Tooth disease (CMT) and transform your understanding of this multifaceted condition. Join us on CMT Simplified as we uncover insights from the Global Registry for Inherited Neuropathies (GRIN) about the physical symptoms like foot drop and balance issues, as well as the emotional and social challenges faced by those living with CMT. We&ap...

Send us Fan Mail This episode dives into HNF's ABCs of CMT Pain Management Guide sharing effective strategies for managing pain associated with Charcot-Marie-Tooth disease (CMT). By exploring topics from dietary changes to the latest research in pain relief, we empower listeners with resources and insights to improve their quality of life. • Understanding neuropathic and musculoskeletal pain...

Send us Fan Mail Patients are driving the future of Charcot-Marie-Tooth (CMT) research, and you can be part of the change! In this episode of CMT Simplified , we dive into how wearable technology, like BioSensics devices, is empowering patients to participate in clinical trials from the comfort of their homes. Learn how your everyday experiences can provide researchers with the critical data neede...