ChroniTalk

Summary In this heartfelt interview, Dory and Mike share their journeys navigating invisible illnesses, chronic pain, and mental health challenges. They discuss the importance of advocacy, the struggles with healthcare systems, and the power of community and storytelling in fostering understanding and change. In this heartfelt conversation, Mike and Dory share their journey of understanding neurod...

Summary Join us as Jenny Jones shares her journey with rare diseases, advocacy work, and how she manages life with short bowel syndrome and FAP. Learn about the importance of community, support, and resources for those with chronic illnesses. Jenny raises awareness for her FAP children's book, the NORD FAP Research Fund and Life's a Polyp Foundation. This Episode Explores: Rare diseases, a...

In this conversation, Host Mykayla Lynn speaks with Olivia Dennis about her journey with multiple chronic illnesses, diagnosis challenges, and her inspiring advocacy work including creating support packages for young people with chronic conditions. Discover insights on managing complex health issues, the importance of community, faith, and self-advocacy.  This Episode Explores: Chronic Illness, CM...

In this conversation, Host Mykayla Lynn speaks with Dr. Tye Martin about his experiences living with Duchenne muscular dystrophy, discussing his diagnosis, adaptations throughout life, and the importance of community and advocacy. He emphasizes the need for better understanding and support for individuals with disabilities, as well as the role of humor and lifelong learning in coping with challeng...

In this conversation, host Mykayla Lynn speaks with Alison Hayes, the creator of Thriving Well Disabled, about her journey with Functional Neurological Disorder (FND), the challenges of navigating disability benefits, and the impact of trauma on her condition. They discuss the importance of understanding ableism, the financial aspects of living with a disability, and the need for self-advocacy. Al...

This conversation delves into the personal journey of Brian McPherson, who - with all jokes aside, was really everyone's bestie, or Uncle B. This is someone who had navigated life as a paraplegic since a tragic accident. It explores themes of disability, illness, the impact of sports, the decision for medical assistance in dying (MAID), and the emotional complexities surrounding quality of life. T...

In this episode of ChroniTalk , we sit down with Abigail Gagnon, host of The Beyoutiful Legacy Podcast , for a heartfelt and inspiring conversation. Abigail opens up about her journey living with chronic illness and how she defines her legacy, and the meaning of legacy. We explore the origins of her podcast, what drives her passion for storytelling, and the power of vulnerability in building commu...

In this episode of ChroniTalk, host Mykayla Lynn speaks with disability advocate Zachary Weeks about his journey living with cerebral palsy, the importance of mental health, and the need for systemic change in accessibility. Zach shares his personal experiences, the impact of isolation on mental health, and the significance of community support. They discuss the necessity for stronger legislation...

In this episode of ChroniTalk , host Mykayla Lynn speaks with Kate , who shares her extensive journey with chronic illnesses, including POTS, ankylosing spondylitis and fibromyalgia. They discuss the challenges of obtaining a diagnosis, the importance of self-advocacy, and the mental health aspects of living with chronic conditions. Kate emphasizes the need for a supportive community, the signific...

In this episode of ChroniTalk, host Mykayla Lynn joins psychotherapist Emma Novick , who shares her personal journey with hemifacial spasm , a rare neurological condition. Emma discusses the challenges of diagnosis, surgery, the impact of chronic illness on mental health, and the importance of self-advocacy in navigating treatment options. She highlights her experience with Botox treatments, the d...

In this heartfelt episode, Host Mykayla Lynn joins her friend Mianna in sharing her her early battle with bacterial meningitis and the profound impact it had on her life. As a baby, she faced the challenges of surviving this serious illness, which led to the loss of her leg and physical challenges. Now, as a young adult, Mianna shares her journey of adapting to life, highlighting the blend of humo...

In this episode of ChroniTalk , host Mykayla Lynn speaks with Karissa , who shares her journey of living with a CSF leak and hypermobile Ehlers-Danlos syndrome (EDS). Karissa discusses the challenges of navigating the healthcare system, the mental health toll of chronic illness, and the vital role of community support. She emphasizes the importance of holistic approaches to healing and the ongoing...

In this episode of ChroniTalk, host Mykayla Lynn speaks with Jen , a chronic illness warrior, about her journey with primary immunodeficiency and other diagnoses. They discuss the challenges of navigating healthcare, the importance of support systems, and the emotional toll of living with chronic illness. Jen shares her experiences with motherhood while managing her health, the significance of com...

In this episode of ChroniTalk, host Mykayla Lynn joins Kaytee , a mother of two who shares her journey with Common Variable Immune Deficiency (CVID) . Katie discusses her late diagnosis, the challenges of managing her condition , and the importance of community support. The conversation touches on the emotional aspects of living with a chronic illness, the role of family in navigating treatment, a...

Navigating Chronic Illness - Your Life Is Not Over In this episode of ChroniTalk , host Mykayla Lynn brings guest Aubrey Johnston on as a chronic illness advocate and writer, who shares her personal journey with Common Variable Immune Deficiency (CVID) & Granulomatous Lymphocytic Interstitial Lung Disease (GLILD) . Aubrey discusses her initial diagnosis, the challenges of navigating treatment whil...

ChroniTalk is a space for real conversations about chronic illness Disabilities, Mental Health, the struggles, the wins, and everything in between. In this first episode, I share a bit of my journey and why I created this podcast: to connect, support, and bring awareness to the realties of living with chronic conditions. Whether you're navigating your own diagnosis or here to learn, you're...