Chronically🥄

It’s a painful truth:  We know the healthcare system is broken because we live in the rubble of its collapse.  As chronically ill patients, we have the lived expertise, the raw data, and the frustration to prove it. But knowing it's broken and knowing how to  fix it  are two different things. How do we move from just shouting about the pain to actually getting the  keys to the operating room ?...

There is a silent, profound sting that comes with long-term separation from the world outside your windows. As someone who has spent nearly ten years primarily confined to my home, I know that struggle isn't just physical—it's the constant, quiet battle against solitude. By pure chance, we dug up a conversation from the archives, and I realized it’s a necessary dose of  hard-earned wisdom...

Welcome back to the "Revolution From Your Bed Podcast," where we continue our profound conversation with Kharina Kharran. In the previous episode, we began to unravel the complexities of living with and moving beyond trauma. Today, we delve deeper into the vital topic of seeking help, the transformative power of trauma-informed coaching, and the nuances of asking for the support you need...

** Trigger Warning: This episode discusses the impact and healing of trauma. Please listen with care. Have you lost the basic, primal feeling of safety in your own life or even your own body? Healing from trauma is the hardest, most necessary revolution any of us can undertake. In this compelling two-part series, we sit down with  Kharina Kharran —a powerhouse who has navigated the corporate world...

This is a conversation that hits incredibly close to home, and it’s one I’ve been excited to share. How do you redefine life when your body is actively fighting you? For many of us in the Dysautonomia/POTS community, the illness often translates to life lived largely horizontally. That’s why the journey of  Mette Rubeksen  is not just inspiring—it’s a crucial lesson in fierce adaptation. Mette is...

Welcome back! Season 3 is officially underway!  Join me as I chat with the brilliant  Lisa Grum , a Growth Mindset Coach dedicated to helping clients turn obstacles into stepping stones. This episode is about radical self-improvement. We explore how professional  coaching  combined with a robust  growth mindset  can fundamentally change the experience of living with  chronic illness . This isn&#39...

It's the Season Finale of Revolution From Your Bed!  In this special episode, recorded live on Clubhouse, we dive deep into the strategies for  turning plans into meaningful action —even when confined by  COVID-19 isolation or chronic illness. If you've felt stuck, this is the message of hope and determination you need. We share stories and practical measures on how to be  proactive and re...

Welcome to an insightful and empowering episode of the "Revolution From Your Bed Podcast." Today, we're addressing a challenging topic that many individuals face, particularly those living with chronic illness: the tendency to end up in toxic or co-dependent relationships. In this episode, we will explore: Understanding Toxic Relationships : Defining what makes a relationship toxic a...

Patients are being held from their own data and information. In this power-play of medical paternalism, we all lose; what can we do to change it? Amazing Music by Spirante Beat https://youtu.be/qiiTdrVNNOU Get My book here: https://books2read.com/ap/nOkrbo/Roi-Shternin Support this podcast at — https://redcircle.com/revolution-from-your-bed/donations This is a public episode. If you would like to...

Welcome to a thought-provoking episode of the "Revolution From Your Bed Podcast," where we question the fundamental approach of Western medicine to chronic illness and its impact on our lives. Today, we're diving into the complex relationship between patients, the healthcare system, and the industries that surround them. In this episode, we will discuss: Western Medicine's Approa...

On this episode of the  Revolution From Your Bed Podcast , we're tackling a question of sustainability:  How can we find a path to physical fitness that supports, rather than strains, our bodies? The answer is simple:  Walking.  It's a gentle yet effective alternative for those who feel daunted by high-impact activities. Walking is both a  gateway to better health  and a long-term activity...

In this episode of the "Revolution From Your Bed Podcast," we're shifting gears to the heart-pumping world of entrepreneurship and startups. The landscape is littered with tales of both meteoric rises and spectacular crashes. Yet amidst this volatile arena, one question stands tall as the beacon that could save your startup from becoming just another cautionary tale: Why are you doing...

On this transformative episode of the "Revolution From Your Bed Podcast," we're diving into the life-saving power of storytelling. The ability to effectively communicate your narrative is not just a skill for writers and public speakers—it can be a critical tool in healthcare and personal advocacy. I'll share my intimate experience of how learning to tell my story to my doctors not...

On the latest installment of the "Revolution From Your Bed Podcast," we're diving into the pervasive message that bombards us daily: the notion that we must do it all. The pressure to juggle studying, working, creating, and succeeding all at once can be overwhelming. But what if the secret to truly achieving our goals is actually the opposite? What if focus, not diversification, is the...

Should you invest in college, or save the money for your unpredictable health needs?  This is one of the most stressful financial dilemmas facing the chronically ill community, and this reflective episode tackles it head-on. For those of us dealing with unexpected, high-cost medical expenses, the decision to take on student debt is a gamble compounded by serious  financial risk . We are dissecting...

On the latest installment of the "Revolution From Your Bed Podcast," we delve into the ethereal world of dreams and their role as a powerful motivator in our lives. Dreams fuel our passions, give us direction, and inspire us to reach for the stars. But the big question we're unpacking today is: Do we really need to make all our dreams come true? This episode is a contemplative journe...

On the latest installment of the "Revolution From Your Bed Podcast," we're tackling the timely subject of New Year's resolutions—a tradition that sparks a mix of hope, determination, and, let's be honest, a bit of skepticism. We've all been there: fired up with January's promise, only to find our enthusiasm waning as the year progresses. But what if this year could be d...

On the latest installment of the "Revolution From Your Bed Podcast," we're peeling back the layers on a topic that's both timely and timeless: the paradox of the creative process. This week, we're not just talking about any story; we're talking about  my  story—the raw and unvarnished truth of writing a book. It's hard, it's great, it's killing me. And I'm i...

On the latest installment of the "Revolution From Your Bed Podcast," we're addressing a very emotional and relatable topic that touches many of us: managing expectations from our surroundings while dealing with illness, burnout, or the times when we just need a break. It's a deep dive into the struggle of balancing our personal health and well-being with the external demands of soc...

On the latest installment of the "Revolution From Your Bed Podcast," we're honored to welcome Dr. Ivana Kostic, a distinguished figure in the health tech community and co-founder of the esteemed Health Tech Lab in Belgrade, Serbia. An MIT alumnus, Dr. Kostic brings a wealth of knowledge and experience in fostering innovation and driving community action. In this episode, we delve into...

In this week's episode of the "Revolution From Your Bed Podcast," we confront the often isolating journey of chronic illness, challenging the dismissive phrase "it's all in your head." Acknowledging the deep loneliness that patients frequently endure, we shift the focus to the unexpected gifts that living with a chronic condition can bring. While our bodies may impose certa...

Miscommunication is one of the biggest problems in our society, Breaking up couples, starting wars, and causing patients pain, suffering, and poor treatment. how can we act instead of reacting, and engage with authentic instead of automatic responses? In today’s episode of the "Revolution From Your Bed Podcast," we tackle the pervasive issue of miscommunication, a silent saboteur with the...

Welcome to a profoundly personal episode of the "Revolution From Your Bed Podcast." Today, we delve into a story of transformation—a night that marked the lowest point in my life and the book that became a beacon of hope during that time: "Man's Search for Meaning" by Viktor Frankl. In this episode, we'll explore: My Darkest Night : Sharing the raw and vulnerable story of t...

How comfort are our comfort zones? And do we rally need to hit rock bottom in order to start living? In this contemplative episode of the "Revolution From Your Bed Podcast," I take a deep dive into the concept of comfort zones, especially through the lens of chronic illness. How comfortable are our so-called comfort zones? Are they safe havens or prisons that prevent growth? As someone who...

Welcome to an inspiring episode of the "Revolution From Your Bed Podcast." Today's show is a deeply personal narrative of transformation, resilience, and empowerment. It's about my journey from spending nearly a third of my life in bed due to chronic illness, to rising and dedicating my life to helping others do the same. Here's what you can expect from this episode: The Bed as...