Childhood Cancer Talk Radio Podcasts
Childhood Cancer Talk Radio promotes Awareness of this very real and prevalent affliction, providing a forum for conversation and advocacy in a growing community of affected families, de-mystification of the experience with personal stories, information and resources. Let us be your voice. We aim to help people connect and support one another, and be a voice for prioritizing our children in cancer research.
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Episodes
Dr. Mark Souweidane: On a Mission to Cure DIPG 07-28-2016 28.07.2016
CCTR interviews Dr. Mark Souweidane of the Weill Cornell Medical College and pioneering neuro-surgeon in the United States, known especially for the ground-breaking clinical trail with Catheter Enhanced Delivery (CED) of medicine to the DIPG tumor, currently with no survivors. The trial shows great promise of extending life for many trial participants.
Jenny Mosier, Executive Director of Michael Mosier Defeat DIPG Foundation 21.07.2016
Jenny Mosier, co-founder of Michael Mosier Defeat DIPG Foundation, joins CCTalkRadio and discusses her son Michael and his journey with DIPG, and how his fight inspired the #defeatDIPG Foundation which is now in 3 regions of the United States within a year. Dedicated to finding a cure for the deadliest pediatric cancer, Jenny's encouraging manner and all-inclusive style of camaraderie with her DIP...
14.07.2016
Today's show features Ronnie Duvall, "Driven Change" on facebook, one who truly walks the talk of his values. Ronnie gave up his job and home to drive all 50 states in his quest for greater knowledge in how to create an organization which will truly address the needs of children with cancer and their families. "Life is full of opportunities to make a difference; pick yours and never look back whil...
Creating Hope: Nancy Goodman 07.07.2016
CCTR interviews Nancy Goodman, the first to speak publicly about the new childhood cancer legislation which is a true winner for children and our creative industry for the development of pharmaceuticals for cancer. We talk about the intrinsic goodness of people and a positive approach to finding ways of bringing the best that our industries, researchers and caregivers can possibly bring to the tab...
Melinda Marchiano: Author, Dancer, Advocate for Children with Cancer 30.06.2016
CCTR welcomes Melinda Marchiano, a recent graduate of Pepperdine University and cancer survivor, and ambassador for ccThrive.org. Melinda is the host of The Truth 365 recent childhood cancer documentary release and has toured and continues to tour extensively, speaking at hospitals and events and spending precious time with children afflicted with cancer. Melinda is the author of "Grace: A Child's...
Laurie Johnson, Professional Advisor: Thinking Outside the Box 23.06.2016
Childhood Cancer Talk Radio interviews Laurie Johnson, author, psychic adviser, and teacher of the metaphysical arts; Laurie addresses the issue of childhood cancer and cancer in general and what that means in the greater scope of our reality. Karma, life lessons, reincarnation, pre-lifetime agreements are included in the discussion, and also the importance of realizing there is no “fault” or “mor...
4000 mi 16.06.2016
CCTR interviews Jesse Shumaker, extremely brave and loving dad who just lost his daughter and only child Madelyn to the deadly killer DIPG. Featured today is the great "Ride for DIPG", currently underway and championing 4000 miles across the United States beginning in Oregon, and ending in Virginia Beach VA sometime in August 2016. Jesse is founder of the Nebraska Chapter of The Cure Starts Now, a...
Ellie Waters: Living with Cancer as a Teen 09.06.2016
Fifteen-year old Ellie Waters talks with us from the UK about life as a teen with cancer and the challenges of alveolar rhabdomyosarcoma. Ellie has a twin sister Olivia, brother Bailey, and 3 more step-brothers from her parents new marriages. Mum Samantha joins us also to speak to the challenges brought to family living when a child is diagnosed with cancer.
Morgan Platt defies Glioblastoma 02.06.2016
CCTR interviews Morgan Platt, 12 years old and 5 year survivor of Glioblastoma Multiforme--GBM--brain tumor. Her mom Kathy and brother Kyle tell us about life with the process of treatment with Morgan, the challenges and burdens, and the hope--of which Miss Morgan is blessed with an abundance! Morgan is truly an inspiration to all of us and is CCTR's "heroine of the week!"
Kathy Riley, 18.05.2016
CCTR Interviews Kathy Riley, founder of We Can Pediatric Brain Tumor Network. We Can was formed 20 years ago by Kathy Riley and Gigi McMillan, mothers whose sons were in treatment for brain tumors. They had staggered alone, as many parents do, through the trauma of treatment and the struggle to cope with the changes they saw in their children. They found in each other an invaluable resource for in...
ABC2: Creativity in Investments and Research 05-12-2016 12.05.2016
Max Wallace, President and CEO of ABC2, Accelerate Brain Cancer Cure, talks about founder and venture capitalist Dan Case who had been afflicted with, and ultimately died of brain cancer. ABC2 has for a model Dan's genius for taking risks fearlessly and applying the venture approach to brain cancer research and treatment, the "Valley of Death" where such funding is desperately needed, coining the...
CCTR interviews Jonathan Agin and Dr. Charles Keller at cc-TDI 05-05-2016 05.05.2016
Creative Solutions to problems in treating childhood cancer with the Childhood Cancer Therapy Development Institute, cc-TDI, devoted to making all forms of childhood cancer survivable. Co-Founder, advocate, and writer for kids with cancer Jonathan Agin and Scientific Director Dr. Charles Keller talk with CCTR.
Owie BowWowie brings Hope 04-28-2016 28.04.2016
CCTR interviews Gina Renay, author, mother and grandmother, and founder of Owie BowWowie and Friends Foundation, a non-profit dedicated to supplying comfort to children with life-threatening illnesses in the form of an adorable stuffed-toy doggie named Owie-BowWowie. Stories of comfort and new hope for children are featured as Owie is getting ready for a new launch in the world of Childhood Cancer...
Congressman Knight's HRes586 and Runner's Roundtable 04-21-2016 21.04.2016
CCTR is on the ROAD with the RUN for HRes586! Special guest Congressman Steve Knight explains the importance of this legislation that he authored, National DIPG Awareness Week and more consideration for those in urgent need of solutions, and our kids. A reunion of runners from around the country--Brian Jones, John McKay, and Everett Smith explain their passion for running for kids with cancer and...
"Realities of DIPG" 04-14-2016 14.04.2016
Jaime King, mother of Katie(7), and Mark Landis, dad to Parker (5), describe the realities that parents of children diagnosed with DIPG, diffuse intrinsic pontine glioma, face today. HRes586, the importance of advocacy and the need for change are featured, due to the neglect of these terminally ill children for decades by our medical research system in the United States. DIPG is dubbed "cancer's d...
CCTR interviews Dr. Kathy Warren(NCI) and Michael Antonellis(NBTS) 07.04.2016
CCTR interviews Dr. Kathy Warren (NCI) about her work and research into solutions for DIPG, one of the deadliest and most elusive cancers to treat. Then, with a focus on brain tumors, Michael Antonellis Director of Communications for National Brain Tumor Society explains upcoming "Head to the Hill" days for advocates descending upon Washington in early May, Brain Tumor Awareness Month.
CCTR interviews Paul Miller, volunteer for St. Baldrick's Foundation 31.03.2016
Paul speaks in depth about his commitment to children with cancer, to speak for them and to carry the message that they are being systematically ignored by our medical research system. Paul volunteers for St. Baldrick's Foundation, which gives most of it's income to research and is the largest contributor in the private sector to pediatric cancer research, unlike the biggest cancer charities like...
Part II of discussion with Gerry Tye of Sydney, Aus. 24.03.2016
Gerry Tye, health care professional, advocate for kids with cancer, father...talks with us about hope, the realities of terminal childhood cancer, and the cutting edge of research: pediatric brain cancer. How parents and childhood cancer organizations are single-handedly funding the most urgently needed cancer research for our kids today.
Gerry Tye, Advocate Part I 17.03.2016
Part I: Advocate for children with cancer Gerry Tye shares his the experience with his son Talin, diagnosed with DIPG in 2012, and for parents the importance of trusting one's instincts regarding one's own child when confronted with medical protocol for terminal illness. Gerry supports children diagnosed with cancer and their families in Australia and New Zealand.
George Dahlman of the Children's Cause 10.03.2016
George Dahlman, CEO of the Children's Cause for Cancer Advocacy, talks about the importance of advocacy in affecting change in legislation and the way our Administration, Congress, and Government Agencies communicate to better accommodate the needs of our children with cancer. Host Janet Demeter enjoys a rant about the "Great Cop-Out of Capitalism" for our kids with cancer, as numbers are often us...
Mattie Miracle Foundation: Helping Families 03.03.2016
Peter Brown and Victoria Sardi-Brown describe how their experience with their son Mattie, who was diagnosed with osteosarcoma and died at the age of 7, inspired the current work of Mattie Miracle Cancer Foundation to establish and implement psyco-social standards of care for pediatric cancer patients and their families.
Tracy Ryan of CANNAKIDS and Saving Sophie 25.02.2016
CCTR interviews Tracy Ryan, CEO of CannaKids, an organization dedicated to providing the highest quality guidance, care, and cannabis medicine for seriously ill patients, particularly pediatric cancer patients. CannaKids was inspired by Tracy's daughter Sophie, who was diagnosed with brain cancer at 8 1/2 months old, and is a living testament to the curative powers of cannabis when conventional tr...
Kira Spedale Foundation and Experimental Treatment for DIPG in UK 18.02.2016
Lisa Spedale reveals the heartwrenching motive for her involvement in one of the most genius advancements in neurotechnology in the history of the science. Leo Somerville of technology company Renishaw was changed forever by the heart of one little girl, Kira.
Keira Wrenn(6), Brave Pioneer in UK Experimental Treatment 11.02.2016
Emma Wren of Alford UK, explains the realities of a DIPG diagnosis for her daughter Keira, and the experimental program with which Keira is involved to combat the deadly disease. Sharon Kane of "Funding Neuro", joins us to discuss the technical details of the procedure and the origins of this research, and Funding Neuro. The fate of Keira's future peers with brain cancer rests upon her pioneering...
Jonathan Agin and Dr. Charles Keller with cc-TDI 04.02.2016
CCTR interviews Jonathan Agin, Development Liaison and General Counsel for the Children’s Cancer Therapy Development Institute, or CC-TDI, a non-profit biotech company dedicated to eradicating childhood cancer in all forms. Co-Founder and Scientific Director Charles Keller MD also joins us to describe the very innovative and proactive design of this company, addressing the “pre-clinical gap” in ou...
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