Childhood Cancer Talk Radio Podcasts

Today's interview features childhood brain cancer survivors Tori Moreno (DIPG) and Michael Keller (Astrocytoma G3), both having received treatment at the Burzynski Clinic in Houston, TX over 2 decades ago. As long-term survivors, they tell of their early memories and shared triumphs of enjoying, for all practical purposes, normal and healthy lives with a special fondness for "Dr. B", including Mic...

Tiffany Rose Curran shares her childhood cancer journey with us, of 2-time cancer survivor Keelie Grace Curran, her daughter who was first diagnosed at 3 years old with leukemia. Tiffany is an intuitive life coach with training in several energetic healing modalities, and is a graphic artist and also a singer/songwriter. She shares her personal journey with a rich storytelling gift and greatness o...

Both Susan Lataille and Wendy Fachon have each endured the tragic loss of their sons and continue to demonstrate the dignity, love, and healing they have found through the shared process of writing. Both coming to us today from Rhode Island, Susan Lataille is a Certified Master Grief Coach who helps individuals who are grieving the loss of a loved one. It took her years to come to a place of accep...

Before devoting his efforts to advocacy for pediatric cancer research upon the diagnosis and loss of his daughter Juliana to DIPG, Marcelo Ortigao served as an associate professor of Preventive Medicine and Emerging Infectious Diseases at the Uniformed Services University (USU), in Bethesda, MD. He is now the Medical and Science Advisor to DIPG Advocacy Group, and also a supporter and advisor to t...

This historic event, truly a first for a focus on cancer prevention for children, takes place in Washington DC on October 25-26 of 2023. Jonathan Agin, Executive Director of Prep4Gold, Joe McDonough with the Andrew McDonough B+ Foundation and Simon Davies, Executive Director of Teen Cancer America share details of this highly anticipated event, which include a assembly of top experts in oncology a...

Matthew Zachary is an American advocate and one of the health care industry's most respected, influential, and visionary voices with a 25+ year career in entertainment, advertising, marketing, nonprofit, digital health, public policy, life sciences, and broadcast media. Also the founder and CEO of the non-profit, Stupid Cancer, and the young adult cancer movement, Matthew shares with us his person...

Paul Miller, a dedicated advocate for children with cancer for the past 2 decades, joins us live for an unscripted conversation about childhood cancer advocacy, from the beginnings of his involvement to present day. Notable achievements range from MC-ing events for the Denver Chapter of St. Baldrick's Foundation for several years, to breaking records for blood and platelet donations to Children's...

Childhood Cancer Talk Radio interviews Noah Berlow PhD, with Children's Cancer Therapy Development Institute from the perspective of dedicated researcher fighting the deadliest childhood cancer on the front lines. The second half features an interview with Gerry Tye, a DIPG Dad who trailblazed the DIPG Research Group on Facebook who shares the reality behind, and motivation for, this crucial resea...

Phil Tan, pharmaceutical industry scientist from San Diego, shares the story of his son Xavier who was diagnosed with diffuse midline glioma (DMG), and the devastating effects of this diagnosis for the whole family. Brain cancer is the leading cause of cancer-related deaths in children in the United States while cures continue to elude this inadequately funded area of cancer research. Phil, Xavier...

Both advocates and moms share the parallel of their personal experiences with their sons who were both diagnosed with DIPG, with Wendy's son Neil Fachon diagnosed at age 19 in 2016, and Janet's son Jack Demeter diagnosed in 2012. A continuation of a deep conversation from last week, the two share their hope and inspiration for continued advocacy as well as some of their hard-fought successes in th...

Writer, host of Story Walking Radio Hour, and healthy environment and holistic solutions advocate Wendy Fachon joins host Janet Demeter in a real conversation about the experience of DIPG from the shocking diagnosis/prognosis of each of their sons to their touchstones of hope. For Brain Tumor Awareness Month, we learn about the inspirations for DIPG Awareness Day, and why advocacy is so important...

We were blessed to begin this show 7 years ago when the very first resolution for childhood brain cancer awareness was introduced into US Congress, the DIPG Awareness Resolution. Our second show featured an interview with Ellyn Miller, CEO of Smashing Walnuts Foundation in Leesburg, VA in honor of her daughter Gabriella who fought DIPG and perished in 2013, just 3 years prior at the time of the in...

Today's interview features the amazing Tracy Ryan and the company NKORE Biotherapeutics which she founded with Dr. Anahid Jewett, mastermind of the new NK cell technology and immunotherapy. Tracy shares with us the story of her daughter Sophie who has endured cancer and its treatments since she was not yet a year old, with miraculous results with NKORE's therapies, and also the current challenges...

We are privileged to give you the opportunity to visit with Dr. Kent Bugg and Leanna Headley to learn more or to reminisce about this extraordinary force in childhood cancer advocacy and dynamic young woman, Megan Bugg. The Megan Bugg Global Rhabdomyosarcoma Laboratory at cc-TDI's new location in Hillsboro OR, opens April 29th 2023, on the eve of the one year anniversary of her death. The event se...

When Tracy & Josh Ryan’s daughter Sophie was diagnosed with a low-grade brain tumor at just 8 ½ months old, they knew they had to take action. Their wellness journey began when Tracy’s family was featured in the Ricki Lake produced Netflix documentary, Weed the People. This led the Ryans to become leading trailblazers in the use of cannabis for pediatric disease through their brand CannaKids, and...

We bring you this interview with Devan Tatlow once more just after the year anniversary of the terrible war waged upon Ukraine by its neighbor Russia, to bring attention to the work of Kids-of-Ukraine and the fundraising efforts to support them at this powerful moment. Through March 24, the event hosted by Jack's Angels and Charity Footprints brings attention to, and supports financially with even...

Susan Lataille joins us today live to share her book series with the latest edition, Shining a Light on Grief, real women sharing real stories of love and loss, coming in April 2023. Susan has been producing professional events for the wellness industry in and around her community in Rhode Island for over 12 years. Since the passing of her son Nathan in 2017, she has been guided to help others thr...

Today's show features an interview with Kathy Derr, Co-Founder and Director of Family Engagement for A Kid Again, a national organization with a mission to foster hope, happiness and healing for children with life-threatening health conditions and their families. The organization provides cost-free, consistent, year-round activities that create meaningful shared experiences and joy-filled memories...

Replay of the December 15 interview as we prepared the Charity Footprints fundraiser to begin 2/24/2023 to support Kids-of-Ukraine's critical work helping children with cancer and their families in our war-torn sister country. Tabletochki, the Ukrainian charity which helps children with life-threatening diseases in Ukraine and in surrounding countries, had begun building a state of the art childre...

From contented stone mason living the dream with his family in beautiful Montana, to scientific investigator at the leading US biotech institute for childhood cancer research, here is an amazing story! Today's show brings to you the complete interview with Andy Woods, Chief Mission Officer with Children's Cancer Therapy Development Institute in the outlying western suburbs of Portland Oregon. Andy...

Featured today is our host's highly anticipated interview with Devan Tatlow, US Outreach Coordinator for Kids-of-Ukraine, the US Chapter of the Ukrainian charity Tabletochki. As our host was blessed with the opportunity to meet Devan amid the September childhood cancer community festivities in Washington DC, we are pleased to present this interview not only to underline the importance of our missi...

Scientific Director Dr. Charles Keller, and Andy Woods, Chief Mission Officer of Children's Cancer Therapy Development Institute in Beaverton, OR, discuss in depth their roles with the Institute and the experiences that motivate their commitment to make all childhood cancers survivable. In its first 7 years, cc-TDI has helped move 2 potential therapies into nationwide phase I trials; its works, di...

This episode of Childhood Cancer Talk Radio features the work of master interviewer Sandra Beck turning the tables on Janet Demeter, host of Childhood Cancer Talk Radio. Janet's personal account and story of her son Jack, and story of Jack's Angels Foundation are featured as well as the final push for the DIPG Awareness Resolution, H. RES. 404 in the 117th Congress House of Representatives.

Kylee McGrane is the Founder and Executive Director of A Moment of Magic Foundation and is our featured guest of today's episode. She is a President George H.W. Bush Daily Point of Light Honoree, a Sara Blakely and Spanx Red Backpack Fund Recipient, and a New York Yankees HOPE Week Honoree. To date, A Moment of Magic has engaged more than 1,300 college student volunteers from more than 30 colleges...

Dr. David J. Stewart's newly published book, "A Short Primer on Why Cancer Still Sucks," is an informative call-to-action for the newly diagnosed and for those who care for them, fortified with decades of experience with both the Canadian and US systems of cancer-care. With host Janet Demeter, Dr. Stewart shares his background of experience and real life anecdotes guiding the framework of this wit...