Childhood Cancer Talk Radio Podcasts

This episode features excerpts from the Moonshot4Kids Congressional/OSTP Briefing Beginning with an introduction from Congressman Michael McCaul, Founder and Chairman of the Childhood Cancer Caucus, who shares the pioneering spirit of the childhood cancer awareness movement. Keith Desserich, founder of the Cure Starts Now, shares the basic history of this trailblazing organization dedicated to the...

This week's podcast features a recent, pre-recorded interview with the Scientific Director of the Children's Cancer Therapy Development Institute, with its mission to eradicate childhood cancer in all of its forms. Dr. Charles Keller shares with us the beginnings of the Institute, the challenges they have met over the last 7 years, and the influence of the late, great Megan Bugg and her powerful a...

The Team Jack Foundation grew out of the dedicated community of Atkinson, Nebraska rallying around Jack Hoffman, childhood brain cancer survivor. Kylie Docter, CEO joins us to tell the story of how, with support from the University of Nebraska, Husker Athletics and people all across the country, the Foundation has expanded its reach and impact to push for a cure for childhood brain cancer, uniting...

John Beltzer, CEO and Founder of "Songs of Love" Foundation shares with Childhood Cancer Talk Radio the personal inspiration behind the Songs of Love Foundation, based in New York City. As a way of providing sick children with an ongoing source of comfort and joy, and a therapeutic tool for healing, he set out to create personalized, one-of-a-kind songs for them beginning in 1996. The Songs of Lov...

To promote the first airing and subsequent youtube feature of DIPG Advocacy Group's Childhood Brain Cancer Briefings, Part I of this Childhood Cancer Talk Radio recap includes expert and patient testimony and the highly acclaimed natural killer cell cancer breakthrough science with NKORE Biotherapeutics Tracy Ryan, CCO and Dr. Anahid Jewett, Chief Science Officer. ADr. Adam Green of Children's Hos...

Featured in this episode which opens Childhood Cancer Awareness Month 2022, is Congressman McCaul's opening remarks to the Moonshot4Kids Childhood Brain Cancer Briefing on May 17, 2022. A unique window into testimony follows his remarks which will be included in a video briefing for Members of the House Health Subcommittee of Energy and Commerce regarding the importance of the DIPG Awareness Resol...

Today’s show features the story of Megan Bugg, an inspired and determined teenage girl who was a fierce advocate and unstoppable force for childhood cancer awareness and research. Despite the tragic and recent end to her physical life, her spirit lives on in her legacy and loved ones to whom she’s entrusted the continuance of her mission, to end childhood cancer through raising awareness and fundi...

Meet Malena Rodriguez, a therapist transformed to spiritual counselor and intuitive healer, and the amazing Carr family in Miami Florida. Alex and Ana-Mari Carr lead Dean's Dream Foundation, inspired by their 2 year-old son Dean who tragically died of a deadly brain tumor. The Carr's story of loss yet acknowledgement of the greater dimensions of love and life, and Dean's continued existence with t...

Amanda Hope Rainbow Angels, a finalist for the 2022 Greater Phoenix Chamber’s Impact Awards, is hosting its 10th Annual "Night of Hope" Gala on September 24, 2022. Lorraine Tallman CEO joins us to share the story of her daughter, the inspiration for the foundation.  During her three-year fight with leukemia and nine-month battle with a brain tumor, Amanda Hope dreamed that one day she would design...

Author and childhood cancer survivor Carolyn Breinich joins us to raise awareness for childhood cancer and share her memoir, Faith, Hope and Cancer: The Journey of a Childhood Cancer Survivor.  Carolyn shares from first-hand experience the many untold realities of surviving childhood cancer after having battled ALL, and the importance of faith, hope, and helping others in this success. Armed with...

Lily Larue Anderson was a dynamo of hope, light, and advocacy throughout her fight with childhood brain cancer. Her mother, Barbara Anderson, joins us to share her story and also to meet Heather Murison RN, a gifted intuitive healer and natural medium, where they allow us a window into a real-time transformative healing session. We have created the "Your Angels Are Real" series to provide needed s...

Today we get an inside look behind the scenes at the amazing Balloon Wonderland, taking place July 16, 2022 at Give Kids the World Village in Orlando, Florida from an exceptional balloon artist and event decorator Yanira Colon, who was chosen to work with a team of artists on the event. Along with Yanira, owner of "Perfectly Wrapped" in Ellicott MD, we will have the opportunity to hear from Stuart...

Approaching a personal record (200) for platelet donation at Children's Hospital Colorado, Paul Miller shares his nearly two decades of experience advocating for kids with cancer and donating his own blood and platelets to the cause, and what he has witnessed in terms of childhood cancer prevalence. In a field where numbers are used to justify almost anything and mobilize needed funds for research...

This podcast is a continuation of our March 3 show, "Living with DMG: Scientist Father Philip Tan blazes a Trail for Xavier", where Xavier's father Philip gave us and extensive window into the life of his family and how it had changed since the diagnosis of a deadly brain tumor.  In part 2 we address more closely the restrictive nature of clinical trials, and the fact that using drugs off trial al...

Today’s show marks the beginning of our Spring-Summer 2022 Series, “Your Angels Are Real,” every third Thursday, where I’ll be interviewing a number of gifted intuitive healers of a wide variety of experience and use of different healing modalities. Today’s show features Heather Murison, Registered Nurse and intuitive healer, in a side-by-side interview with Raegen Sieck, looking to hear from her...

Tracy Ryan is an innovator, entrepreneur and problem-solver with a special mission, to save her daughter Sophie who was diagnosed with brain cancer before she was a year old. Tracy launched and was CEO of Cannakids, a company which pioneered the development of cannabinoid and terpenoid combinations to treat patient's cancers based on the genetic mutations in their diseases. Tracy witnessed many ca...

In our many discussions with parents of children afflicted with brain cancer, perhaps the most telling are those of scientist parents who, like all other parents, are left to their own devices to try to save their children. Philip Tan's son Xavier, who was a in his prime as a college athlete when diagnosed, is limited in his mobility and suffers other mentally debilitating conditions associated wi...

Parent advocacy for childhood brain cancer at the state level in South Carolina with Randy Hinton begins today's show, as he shares his relationship with the South Carolina Department of Environmental and Health Control, and the SC Cancer Registry which operates under that department. Randy's advocacy supported the 2021 South Carolina DIPG Awareness Day Proclamation on May 17th, and helped orchest...

Lynette and Marc Apodaca’s son Marc Jr was diagnosed in 2007 with a diffuse intrinsic pontine glioma (DIPG). The couple quickly realized how little help there was in the form of treatment, information and support for the families facing this deadly brain tumor. They found in their journey that once parents and a community are faced with this cancer, each unknowingly fosters a spirit of compassion...

Ryan Agnew gives us a remarkable window into his beautiful home life with wife Alison, and two children, Aspen who is turning 6 years old, and her little brother not quite two. Aspen is feeling well despite unfortunate scans of progression from DIPG, and now secondary tumors, and is approaching that point when the family may very well lose their precious daughter. Ryan describes the beauty of his...