Childhood Cancer Talk Radio Podcasts

CCTR interiews Christopher Winters, President of the emerging National Children's Cancer Consortium, a project of collaboration between parents, advocates, and concerned citizens with policies developed after 18 months of current, grassroots research into the challenges children with cancer and their families face regularly. The goal of the Consortium is to help local organizations and families fi...

The great adventure that was the 2017 World Marathon Challenge is shared with our listeners in a big-hearted interview with BethAnn Telford, brain cancer survivor and super-athlete. Seven Marathons were run on seven different continents in just seven days time. BethAnn's mission to cure brain cancer with ABC2 (accelerate brain cancer cure) is taken to a whole new level of camaraderie, unity, and t...

Coming to you from Telford, UK, Kelly Khan tells the story of her 12 year-old son Khaleel, currently facing a relapse of leukemia. Khaleel had been a very healthy, thriving boy after having met with serious infantile diseases, pulling through them with flying colors. Kelly tells us how the experience of leukemia affects her family, how community has shown great heart, and shares information about...

Brian Jones, creator of the Run for the Whitehouse for Childhood Cancer on Facebook joins us to describe the beginnings of the program, what it has become, and discusses the adventure of teaming up with MaxCure Foundation with Executive Director Jonathan Agin. Both gentleman are prominent US advocates for children with cancer--Brian a keen grassroots organizer and runner, and Jonathan an attorney...

Jenny Mosier, Executive Director of the Michael Mosier Defeat DIPG Foundation joins us to discuss a 50-State Project for DIPG, calling for volunteers in as many states as possible to work for a gubernatorial or state legislature proclamation for May 17 2017 DIPG Awareness Day. The 2017 National DIPG Awareness Resolution will be introduced by Congressman Steve Knight (R-CA-25) in the US House of Re...

CCTR interviews Christopher Winters, Chief of Staff to PA House of Representatives Honorable Member Tom Caltagirone about his extensive experience in public service and work since 2013 in the Childhood Cancer Community, how he became one of the fiercest advocates for kids fighting cancer and their families in the nation. We discuss Running For The Kids, why he started running, his goals, this year...

CCTR interviews BethAnn Telford, originally from Harrisburg, PA and now living in Fairfax, VA; she is a brain cancer survivor and ultra-distance runner for brain cancer research. BethAnn talks about the children who inspire her to run, and the urgently needed research for brain cancer funded by ABC2; Max Wallace, CEO, joins us also to help give a full picture of the selfless and heroic stature of...

Pediatric brain tumors are the leading cause of death in children with cancer, of which DIPG and HGGs (high-grade gliomas) represent a significant need for effective and timely solutions. Researcher Dr. Adam Green gives a clear explanation of the high-grade gliomas and a look into the research that he's currently working on in his own laboratory at the University of Colorado Denver. Caring for pat...

CCTR interviews George Dahlman, CEO of the Children's Cause for Cancer Advocacy, the United State's Premier Childhood Cancer Advocacy organization. Mr. Dahlman is responsible for identifying and advancing issues that will improve the treatment and lives of childhood cancer patients and their families with Congress, the Administration, federal agencies and state governments. He is also responsible...

CCTR interviews Laura Thrall, CEO of CureSearch since 2012, with five years of refining purpose, innovation, and efficiency in the medical research industry to benefit pediatric cancer research funding. The primary goal and measure of the success of any new policy should be evident in patient care, access, and improved treatment options for children. The history of CureSearch is highlighted, and t...

CCTR interviews Emma Wrenn who's daughter Keira is a survivor of DIPG, diffuse intrinsic pontine glioma, a virtually unheard-of experience. Emma shares with us the realities of diagnosis and experimental treatment, and the inevitable challenges of living with the effects of brain cancer treatment, and the anxiety by which even a clear MRI scan is accompanied. Emma comes to us from Alford, Lincolns...

CCTR interviews Ann Graham, founder and CEO of MIB Agents, an organization devoted to making the lives of children and young people with osteosarcoma better. A groundbreaking conference, FACTOR, is scheduled for 2/24-25 of 2017 including experts, clinicians, patients, and families of children who have perished or who are currently battling osteosarcoma, to create new solutions for the many problem...

CCTR interviews Emily Belcher, advocate, event planner, mother of a childhood cancer survivor, and CureFest volunteer, who tells us about the early days of CureFest, the events goals and influence, and the direction of the Childhood Cancer Awareness Movement. Emily discloses her daughter's frightening experience with PNET, a pediatric brain cancer, subsequent triumph, and family's commitment to im...

CCTR intereviews Marisa Martinez, mom to Zamora Moon, a little 12-year old girl battling DIPG, diffuse intrinsic pontine glioma, arguably one of the deadliest cancers which is almost exclusively pediatric. Her pioneering journey into the unknown includes treatments in Germany and the UK. Lisa Spedale, who's daughter Kira was the first child in the United States to undergo CED surgery and treatment...

CCTR interviews Caitlin Lee (12) and her mom, Kelly about Caitlin's recent diagnosis with BPDCN and course of treatment. Blastic plasmacytoid dentritic cell neoplasm is a rare, especially among children, acute leukemia subtype with no therapeutic protocol because it is so rare and newly categorized. Stories of hope and unparalleled strength are tempered with the pending realities of a bone marrow...

Author Sharon Wozny shares with us her first book for children facing the difficult emotional challenges of having a sibling with cancer and the effects of this on the family. Inspired by her volunteer work with the Children's Cancer Network in Chandler, AZ, Sharon describes the experiences she had as a teacher for 30 years and with the organization which helped her craft the book which is half st...

CCTR interviews Dr. Christine Chambers of the Centre for Pediatric Pain Research at IWK Health Center in Nova Scotia, and Dr. Jennifer Stinson, nurse at the Hospital for Sick Children in Toronto about #KidsCancerPain, a new social media campaign supported by the Canadian Cancer Knowledge Network designed to help children with cancer and their parents better assess and treat their children's pain s...

CCTR interviews Raphael Rousseau MD, PhD,the global franchise head of the innovative pediatric drug development group at Genentech. Considered the founder of the biotech industry, Genentech, a member of the Roche Group, has headquarters in South San Francisco, California. Genentech has been delivering on the promise of biotechnology for over 40 years, and oversees Roche’s pediatric strategy and en...

Annette Leslie, founder and CEO of Carson Leslie Foundation, talks to us about her son Carson and his book, "Carry Me", his inspirational story of hope that inspires the work of one of the most dynamic collaborative foundations for pediatric cancer research and support for teens with cancer. CLF is located in Dallas Texas, and Annette describes the yearly North Texas Giving drive, this year on 9/2...

CCTR interviews Nancy Keene, well-known writer and advocate for children with cancer, and co-author of the Childhood Cancer, A Parent's Guide to Solid Tumor Cancers. Her work has appeared in publications such as Reader’s Digest, Journal of the American Medical Association, Exceptional Parent, and Coping Magazine. Co-Author Anne Spurgeon founded, and worked as executive director for, the Badger Chi...

CCTR interviews Beth Stefanacci and Carina Trenka of Go4theGoal, a dynamic support organization for children with cancer based in Cherry Hill, NJ, and one of the beneficiaries of the historic "Golden Steps for Pediatric Cancer Awareness Walk." The walk led by Baby Shawn who is a local young hero in Niagara Falls, NY, currently battling DIPG, commemorates the momentous occasion of the Niagara Falls...

CCTR interviews Jonathan Agin JD, father of Alexis who perished to DIPG in 2011 and 4 other young children, and official counsel and co-founder of the Children's Cancer Therapy Development Institute. One of our country's foremost advocates for children with cancer, Jonathan describes the complexity of our medical research system and the challenges to funding pediatric cancer research, and the impo...

CCTR interviews Michael Esposito, father of five, teacher, and basketball coach, the man responsible for connecting people in his town of Niagra Falls, NY which will witness the most prominent and powerful display of support for children with cancer this year, 2016. Baby Shawn with DIPG and his meeting Stephen Curry, the prospect of the NFL going gold for a week in September, Go 4 the Goal, PUNT,...

Live from the Children's Cancer Therapy Development Institute, CCTR interviews 4 participants of the 2016 Pediatric Cancer Nanocourse, an introduction to the scientific research process and an opportunity to build a network of informed and empowered advocates who can drive the cure of rare cancers. cc-TDI has for its mission to bridge the gap between promising research and actual therapies for chi...

CCTR talks with Neal Rourke and Jesse Robinson about the Childhood cancer Awareness Movement and the Upcoming September, Childhood Cancer Awareness Month. Today's show features lighting, "Going Gold", the Maggie Project, and Tyler Robinson Foundations's Project CANCO, a bike ride planned to begin Sept. 1 from Niagra Falls, Canada to Key West, FL, 2200 miles. The ride will be gifting needy families...