Boundless B Podcast

🎙️ Episode Title:  Music Heals: Voices from the Hemophilia B Community 🩸 Podcast:   The Boundless B 👥 Guest:  With Bryant Holderried, Izzy Nowlan, Jacqui Maddix, and Maxwell Feinstein 🌟 Episode Overview:   Guests reveal the transformative power of music in managing physical and mental health challenges. From offering emotional comfort during tough times to fostering con...

🎙️ Episode Title:  We Are the World: Celebrating Unity Through Music 🩸 Podcast:   The Boundless B 👥 Guest:  With Adam Smith and Shelby Smoak 🌟 Episode Overview:   In this moving episode of Boundless B: The Hemophilia B Podcast, Adam Smith and Shelby Smoak share the behind-the-scenes story of recording ‘We Are the World’ in Nashville, TN. Through their reflections, liste...

🎙️ Episode Title:  From Silence to Strength: Women and Hemophilia B 🩸 Podcast:   The Boundless B 👥 Guest:  Ashley and Madilyn Zebley 🌟 Episode Overview:   In this special episode of Boundless B: The Hemophilia B Podcast, Ashley Zebley and her daughter Madilyn share their intergenerational journey navigating Hemophilia B as women. From battling systemic barriers in healt...

🎙️ Episode Title:  The Gingerbread Tradition - Building Connections and Community 🩸 Podcast:   The Boundless B 👥 Guest:  The Hemophilia Community 🌟 Episode Overview:   In this heartwarming episode, we speak with families from the Hemophilia B community who have made the annual gingerbread house-making event a cherished tradition. Alexandra and Benjamin Haralson, Lori, A...

🎙️ Episode Title:  The Road to Independence and Adulthood 🩸 Podcast:   The Boundless B 👥 Guests:  Matt Barkdull, Nina Duggin and Jenifer Fraker 🌟 Episode Overview:   This episode aims to equip young adults with Hemophilia B and their families with practical tools and real-life insights for navigating the transition to adulthood with confidence. Featuring Matt Barkdull,...

🎙️ Episode Title:  A Mother’s Hemophilia B and Inhibitor Journey 🩸 Podcast:   Boundless B 👥 Guest:  Deena Lipinski 🌟 Episode Overview:   In this inspiring episode, Deena Lipinski shares her 22-year journey with her son Tyler’s severe Hemophilia B and inhibitor diagnosis. Through challenges, triumphs, and lessons, Deena offers valuable insights, resilience, and practical...

🎙️ Episode Title:  The Healing Power of the Drum with Dr. Robert Friedman 🩸 Podcast:  Boundless B - The Hemophilia B Podcast 👥 Guest:  Dr. Robert Friedman 🌟 Episode Overview:  I In this episode of  Boundless B , Dr. Robert Friedman discusses how drumming can serve as a therapeutic outlet for individuals, foster group cohesion, and create transformative experiences....

🎙️ Episode Title:  Alternative Funding Programs and Hemophilia B with Kollet Barkhouse and James Romano 🩸 Podcast:  Boundless B - The Hemophilia B Podcast 👥 Guest:  Kollet Barkhouse, MBA and James Romano 🌟 Episode Overview:  In this episode of  Boundless B , Kollet Barkhouse and James Romano discuss how alternative funding programs affect those with hemophilia. Here in...

🎙️ Episode Title:  Women and Hemophilia B - The Power of Community and Advocating for Yourself 🩸 Podcast:  Boundless B - The Hemophilia B Podcast 👥 Guest:  Dr. Danielle Nance, Hematologist 🫶🏽 Sponsored by: Medexus Dr. Danielle Nance is a hematologist specializing in treating and managing bleeding disorders, such as hemophilia. What sets her apart in the medical community is her...

🎙️ Episode Title:  The Power of Community: Mental Health and Hemophilia B 🩸 Podcast:  Boundless B - The Hemophilia B Podcast 👥 Guest:  Dr. Mina Nguyen-Driver, PsyD, Clinical Psychologist 🌟 Episode Overview:  In this episode of  Boundless B , we explore the crucial role of community in supporting mental health for individuals living with hemophilia B. Our guest, Dr. Mina...

🌟 Episode Overview:  In this special episode of  Boundless B , brought to you by the  Coalition for Hemophilia B , we take young listeners on an emotional journey with  "The Tree of Many Feelings."  This heartfelt story guides children through a day in the life of a tree, experiencing a range of emotions—happiness, sadness, fear, and anger. As we explore these feelings, w...

🎙️ Episode Title:  Accountability and Community: A Conversation with Wendy Wollner 🩸 Podcast:  Boundless B - The Hemophilia B Podcast 👥 Guest:  Wendy Wollner, CEO of Balancing Life Issues 🌟 Episode Overview:  In this episode of  Boundless B , we’re honored to be joined by Wendy Wollner, the CEO of  Balancing Life Issues  and a devoted advocate for the hemophil...