AS Info Share

A Nobel Prize-winning discovery could change the landscape of Axial Spondyloarthritis / Ankylosing Spondylitis forever. In this episode of AS Info Share , we break down the 2025 Nobel Prize in Medicine and what it means for our community. We’re moving past just "blocking" inflammation and moving toward Treg Therapies —a revolutionary approach that uses the body’s own Foxp3 gene to restore balance...

How do you manage the daily realities of life with Ankylosing Spondylitis and Axial Spondyloarthritis ? In Part 2 of our series with Sean Ewert from the Spondylitis Association of America (SAA) , we look at the support systems available to you. Sean shares his unique perspective on how the SAA is bridging the gap between patients and rheumatologists and offers vital advice for those struggling wit...

Movement is medicine. For those living with Ankylosing Spondylitis (AS) and Axial Spondyloarthritis (AxSpA) , staying active isn't just a goal—it’s a vital part of managing the condition. In part one of this special two-part series on AS Info Share , we sit down with Sean Ewert , the Director of Member Engagement for the Spondylitis Association of America (SAA) . We dive deep into the origin of th...

In our final episode with patient advocate Michael Mallinson, we peel back the layers of the "invisible" side of Axial Spondyloarthritis. Living with a chronic condition isn't just a physical battle; it’s a mental one, too. We discuss the critical role of mental health support and why it should be a standard part of every treatment plan. We also dive deep into a major gap in the healthcare system:...

Biologics: life-changing medicine or something to fear? And can a specific diet really 'cure' an autoimmune condition? On this episode, we’re cutting through the noise. AxSpA patient advocate Michael Mallinson is back with us to tackle the anxiety surrounding medication and the dietary myths that flood our social feeds. You don’t want to miss this. -------------------------------------------------...

Stop Feeling Dismissed: How to Advocate for Your AxSpA Care Have you ever walked out of a doctor’s office feeling unheard? In this episode of AS Info Share, we continue our deep-dive interview with patient advocate Michael Mallinson. We’re tackling the "doctor-patient" dynamic head-on, discussing how to handle clinical dismissal and providing you with the tools to become a more educated, confident...

In this episode of AS Info Share , we sit down with patient advocate Michael Mallinson to discuss an important event for the Axial Spondyloarthritis (AxSpA) community— World AS Day . Observed each year on the first Saturday in May, this global awareness day brings together patients, advocates, and organizations to raise awareness, promote education, and support those living with Axial Spondyloarth...

Curious about cannabis for Axial Spondyloarthritis / Ankylosing Spondylitis? In this episode, we break down what THC and CBD can and can’t do for pain, inflammation, and sleep. We compare them to standard AS treatments and explore the latest research. Disclaimer: This episode is for informational purposes only and is not medical advice. Always consult your doctor before starting or changing any tr...

Living with Axial Spondyloarthritis / Ankylosing Spondylitis (AS) often means living with relentless fatigue. In this episode of AS Info Share, we dive into what causes that deep exhaustion from chronic inflammation and pain, to poor sleep and mental health struggles. You'll learn possible strategies to reduce fatigue, improve sleep, and boost your energy. We also explore helpful tools and sleep a...

If a treatment didn’t work, you didn’t fail. In this episode of AS Info Share, we explore why it’s common for people with Axial Spondyloarthritis (AxSpA) / Ankylosing Spondylitis (AS) to feel like they’ve “failed” a medication, and why that mindset needs to change. Whether you’re on your first medication or your fifth, this episode is a reminder that you’re not alone. -----------------------------...

Watch and subscribe on YouTube: AS Info Share 💬 Follow us on Facebook , Twitter , and Instagram 🔗 Visit our website: ASInfoShare.com Buy us a coffee: AS Info Share Confused by all the different names for Ankylosing Spondylitis? You’re not alone. In this episode, we break down the history and terminology behind Axial Spondyloarthritis (axSpA) — and explain the difference between Ankylosing Spondy...

Ankylosing Spondylitis Info Share Podcast - An Interview with NASS Board Trustee Gillian Eames In this episode of AS Info Share, we’re joined by Gillian Eames, a long-time advocate and trailblazer in the Ankylosing Spondylitis community. Gillian has lived with AS for over 40 years and now serves as a Trustee for the National Axial Spondyloarthritis Society (NASS). She shares her powerful story of...

In this episode, we discuss two powerful treatment options for Ankylosing Spondylitis, biologics and JAK inhibitors. Learn the differences between the treatment options and how they work to help manage Ankylosing Spondylitis. Watch and subscribe on YouTube: AS Info Share 💬 Follow us on Facebook , Twitter , and Instagram 🔗 Visit our website: ASInfoShare.com Buy us a coffee: AS Info Share Hosted o...

In this episode, we explore the truth behind the HLA-B27 gene and its connection to ankylosing spondylitis (AS). We break down common misconceptions, especially those circulating on social media, and explain why a positive or negative test result isn't enough for a diagnosis. You'll learn how misinterpretation of this gene — by both patients and doctors — can lead to misdiagnosis, and why a full c...

In this segment, I share my approach to managing Ankylosing Spondylitis (AS) through a "Seven Pillars" framework. I share insights into each pillar that I used on my journey toward improved well-being with AS.  Watch and subscribe on YouTube: AS Info Share 💬 Follow us on Facebook , Twitter , and Instagram 🔗 Visit our website: ASInfoShare.com Buy us a coffee: AS Info Share Hosted on Acast. S...

A quick update from my vacation in Rome, Italy, with a lot of walking and stair climbing. Watch and subscribe on YouTube: AS Info Share 💬 Follow us on Facebook , Twitter , and Instagram 🔗 Visit our website: ASInfoShare.com Buy us a coffee: AS Info Share Hosted on Acast. See acast.com/privacy for more information.

Join us as we chat with Kamal Joshi , creator of Ankylosing Spondylitis: Beyond the Pain ! Kamal is dedicated to raising awareness and helping others with AS live healthier, symptom-free lives. He shares his personal journey, practical strategies for pain relief, and wellness tips that can make a real difference. 💡 Whether you're newly diagnosed or have been battling AS for years, this episode is...

We interview AS Warrior, Ivy Asmus, host of the blog Uniquely Me & Loving It: My Journey with Ankylosing Spondylitis. Watch and subscribe on YouTube: AS Info Share 💬 Follow us on Facebook , Twitter , and Instagram 🔗 Visit our website: ASInfoShare.com Buy us a coffee: AS Info Share Hosted on Acast. See acast.com/privacy for more information.

Our first episode will briefly introduce what the show is about and what we hope to achieve. Enjoy, and please stay tuned. Watch and subscribe on YouTube: AS Info Share 💬 Follow us on Facebook , Twitter , and Instagram 🔗 Visit our website: ASInfoShare.com Buy us a coffee: AS Info Share Hosted on Acast. See acast.com/privacy for more information.