Arthritis At Home (+ On the Go)

In this episode, Registered Dietitian and patient advocate Cristina Montoya speaks about her experiences living with Sjögren's syndrome and rheumatoid arthritis. Cristina explains some common misconceptions about Sjögren's syndrome, how the disease impacts the lives of patients, and why more public awareness for the disease is needed. She shares her strategies for symptom management as w...

This episode  features Dr. Jane Purvis, a rheumatologist from Peterborough, Ontario and the President of the Ontario Rheumatology Association (ORA), on the rise of virtual care and telehealth during #COVID19 . She also shares results of a recent Ontario Rheumatology Association patient survey regarding their experience with telehealth. We want to continue this conversation and learn more about you...

In this episode, Denise Jupp, rheumatology nurse at the Diamond Centre Rheumatology Clinic, shares how rheumatology nurses are supporting people with arthritis at this time. She also shares insights on what patients should know about preparing for a virtual rheumatology appointment and what patients can do to help alleviate pain at home.  Would you like to share your virtual care experience in art...

In the fall of 2020, ACE conducted a national survey to examine the student experience since the COVID-19 pandemic, which forced elementary and high schools and post-secondary schools to adopt new protocols and in some cases, close and move courses online.  In this episode, Maya and Kelly highlight key findings from the survey, which will help ACE improve advocacy efforts and support for people li...

The most commonly performed joint replacements are hip and knee replacements but the procedure can also be performed on other joints, such as the ankle, wrist, elbow, and shoulder. On this episode, Ms. Linda Wilhelm, President, Canadian Arthritis Patient Alliance, and a patient advocate based in New Brunswick, talks about her shoulder replacement surgery. Linda discusses the decision-making proces...

Arthritis Consumer Experts (ACE) is celebrating its 20th anniversary in 2020. In this special two-part episode of Arthritis at Home, we speak to ACE’s Founder and President, Cheryl Koehn, and find out how ACE started, its core mission to educate and advocate on behalf of six million Canadians living with arthritis. In Part 1, Cheryl describes the grassroots origins of ACE and how its education pro...

Arthritis Consumer Experts (ACE) is celebrating its 20th anniversary in 2020. In the second half of this special two-part Arthritis at Home interview with Founder and President, Cheryl Koehn, we learn more about ACE’s ongoing efforts to advocate for improved models of care, ACE partnership and collaboration in the Canadian and international arthritis communities and how ACE has helped amplify the...

Cheryl Koehn has a conversation with Parkash Ragsdale, a licensed pharmacist with over 25 years combined experience in academic, non-profit, corporate, regulatory and primary care environments. They walk us through the pharmacist’s role in a patient’s care and share tips on effective communication with your pharmacist. Topics covered include:  Medication monitoring, safety and adherence  Effective...

This episode of Arthritis At Home features Kelly English, a member of the Arthritis Patient Advisory Board of Arthritis Research Canada. Kelly speaks with Cheryl Koehn, President, Arthritis Consumer Experts, on life with rheumatoid arthritis during COVID-19. Learn how she is adjusting to life during the pandemic and how she is managing her disease and using coping strategies to deal with the stres...

As 2020 comes to an end, the challenges we faced this year continue — the COVID‑19 pandemic, health inequalities, delivery of healthcare – just to name a few. While these challenges affect everyone — in every community — the fact is, they don’t affect everyone equally. In this episode, ACE leaders, Cheryl Koehn and Kelly Lendvoy, look back at key healthcare events this past year and how they will...

Ontario’s leading arthritis centre being forced to shut down In this episode of Arthritis At Home, Kelly Lendvoy speaks to Dr. Carter Thorne, Chief, Division of Rheumatology and Director, The Arthritis Program (TAP) and Carrie Barnes, TAP’s patient ambassador, to learn more about the nationally acclaimed arthritis clinic and Southlake’s decision to close it, effective January 15, 2021. The decisio...

On this episode of Arthritis At Home, Anita Chan, Programs Manager at Arthritis Consumer Experts (ACE), talks to Maya Joshi about the ACE Education Survey. Maya explains the purpose of the survey and why it is important for us to better understand the experiences of students and households living with autoimmune arthritis during the COVID-19 pandemic. Maya also highlights who can take the survey,...

In this episode, Kelsey Chomistek discusses strategies for self-advocacy, disease management and personal wellness while attending post-secondary school with inflammatory arthritis. Kelsey also highlights some helpful resources for youth and young adults living with arthritis. Kelsey was diagnosed with polyarticular Juvenile Idiopathic Arthritis (JIA) when she was 14 years old in almost 30 joints....

On this episode of Arthritis At Home, Kelly Lendvoy has a conversation with Chris Pudlak, a young father of three and a person living with ankylosing spondylitis (AS). Chris shares his diagnosis journey and how he and his family have been managing work, health, school, and special celebrations such as Halloween during the pandemic. Chris Pudlak has been a member of the Arthritis Patient Advisory B...

On this episode of Arthritis At Home, Cheryl Koehn has a conversation with Nevena Rebic, a graduate trainee at Arthritis Research Canada and a PhD student at the University of British Columbia Faculty of Pharmaceutical Sciences. Cheryl and Nevena discuss how social and racial justice issues affect evidence-based decision-making, patient participation in research, and how arthritis community member...

Dr. Susan Bartlett, Professor of Medicine at McGill University and Adjunct Professor of Medicine at Johns Hopkins Medicine, on isolation and loneliness in the age of #COVID19 . She comments on how we can stay connected with and reconnect with loved ones, and take this opportunity to meet new people. Learn more : https://arthritisathome.jointhealth.org/?p=575 Helpful resources: Canadian Mental Heal...

Dr. Susan Bartlett, Professor of Medicine at McGill University and Adjunct Professor of Medicine at Johns Hopkins Medicine, will be speaking about the emotional impact of #COVID19 on our health and wellness. She will share with us what you can do to better manage this crisis while isolated at home.  Learn more: https://arthritisathome.jointhealth.org/?p=513 

New Brunswick on September 14th and Saskatchewan on October 26th are the first two jurisdictions in Canada to hold elections during the throes of the COVID-19 crisis. On this special episode of Arthritis At Home, ACE’s President, Cheryl Koehn, interviews ACE’s VP Communications & Public Affairs, Kelly Lendvoy, to gain insights into the unprecedented logistical and public health challenges the...

In this episode of Arthritis At Home, Maya Joshi and Cheryl Koehn discuss conquering anxiety and fear related to your arthritis and the process of showing yourself that you are more than your disease. Maya begins by explaining the physical and psychological barriers that have held her back in the past and then highlights the strategies that have helped her overcome these barriers, using the exampl...

We're excited to share the news that Arthritis Consumer Experts will be making #ArthritisAtHome episodes available on the go!  Arthritis At Home is a JointHealth™ Education program launched in 2020 to share arthritis facts and news and allows you to hear directly from arthritis experts at home - where you live and feel most comfortable during the COVID-19 pandemic.  You will get to meet many...