Arthritis At Home (+ On the Go)

This episode of Arthritis At Home focusses on the Part Two analysis of the ACE National Survey on Arthritis and Health Literacy. Join Kelly Lendvoy and Ms. Ellen Wang as they take a deeper look at the Survey responses of Black, Indigenous and people of Colour respondents and compare them to the responses of white respondents and the differences in how the two populations understand and use health...

In this episode of Arthritis At Home, Cheryl Koehn speaks to Dr. Jane Purvis, an Ontario rheumatologist and the Chair of Government Affairs Committee of the Ontario Rheumatology Association, about the biosimilars transition policy being implemented in Ontario. Dr. Purvis reminds our Ontario inflammatory arthritis patient audience that if they are affected by this policy, they have until December 2...

Health literacy means being able to find, understand and use basic health information and services to take care of one’s daily health needs. In this episode of Arthritis At Home, Ms. Ellen Wang, ACE’s programs coordinator, physiotherapy-health literacy PhD student, discusses the findings from ACE’s National Survey on Arthritis and Health Literacy. The interview highlights the results from women an...

In this episode of Arthritis At Home, Dr. Terri-Lynn Fox and Cheryl Koehn discuss the Arthritis Call to Action website, which has been launched by the Arthritis Community Learning Circle. As an important entry point into Truth and Reconciliation for the arthritis community in Canada, the website covers key topics such as Colonization, Indigenous Health, the Truth and Reconciliation Commission’s Ca...

Made up of rheumatoid arthritis patient organizations and leaders from 18 countries, the Global RA Network (GRAN) was formed to build international relationships and identify and work on common goals and initiatives to improve the lives of people living with rheumatoid arthritis (RA) around the world. Arthritis Consumer Experts co-founded the Network in 2017 and serves as its Secretariat. This epi...

In this episode, Kelly Lendvoy, VP Communications & Public Affairs speaks to ACE’s Founder and President, Cheryl Koehn, about the long and winding road towards drug development, review and public reimbursement in Canada. They discuss the highlights from a recently published JointHealth™ insight: the phases of drug development, the drug review process, price negotiations, and how it affects the...

In this episode, Kelly Lendvoy, VP Communications & Public Affairs speaks with Ellen Wang, ACE Programs Coordinator and Research Trainee at Arthritis Research Canada, about the presentation of an ACE research presentation (Abstract) at the annual scientific meeting of the European Alliance of Associations for Rheumatology (EULAR).  The Abstract - Inequities in Arthritis Care in Canada: An inte...

Arthritis Consumer Experts (ACE) is thrilled to launch its new blog Joint Journeys, life with arthritis by Carrie . Insightful, inspirational, heart-warming and fun, Carrie’s pieces are beyond living with arthritis – they are about life’s everyday moments, the ups and downs of a life worth living. A brief pause to look at life with a fresh lens, a breath of fresh air in our day and that reminds us...

In this episode of Arthritis At Home, Kelly Lendvoy, Vice President, Communications and Public Affairs, Arthritis Consumer Experts (ACE), speaks to Ellen Wang, Programs Coordinator, ACE and PhD student at the University of British Columbia, about their experience leading the 9th annual #CRArthritis event at the 2023 Canadian Rheumatology Association and Arthritis Health Professions Associations An...

The scientific meeting of the European Alliance of Associations for Rheumatology, EULAR, is one of the most important annual meetings for arthritis researchers, clinicians and patient organizations. Ellen Wang shares her experience attending her first ever EULAR meeting with more than 14,000 onsite and virtual attendees. She describes the dynamics of sharing the same space with thousands of other...

In this episode of Arthritis at Home, Ellen Wang, ACE’s Programs Coordinator speaks with Megan Thomas, a PhD candidate at the University of British Columbia in the Department of Pharmaceutical Sciences. Megan is under the supervision of Dr. Mary De Vera and Dr. Mark Harrison. She completed both her MSc in Community Health Sciences and her Bachelor of Health Sciences honours degree at the Universit...

Arthritis Consumer Experts’ About Arthritis website resource has helped thousands of people living with arthritis become more knowledgeable about the diagnosis, treatment and care of their disease. Many of those users have provided ACE with comments and feedback, which have been implemented into the new edition of About Arthritis . Kelly Lendvoy, VP Communications & Public Affairs, and Ellen W...

Osteoarthritis (OA) is a degenerative joint disease that is the most common type of arthritis and a leading cause of chronic pain and loss of mobility in Canada. In the past, OA was often dismissed as an “old person’s” disease and caused by the inevitable “wear and tear” of the joints. In reality, OA affects approximately 5 million Canadians from youth to older adults. Arthritis Consumer Experts’...

In this episode of Arthritis At Home, Ellen Wang, Programs Coordinator, Arthritis Consumer Experts (ACE), speaks to Cheryl Koehn, Founder and President, ACE, about her experience on leading the co-development of an Massive Open Online Course (MOOC) titled Foundations of Originator and Biosimilar Biologics for Patients and Caregivers. They will discuss what the course is about, how people can sign...

In this episode of Arthritis At Home, Ellen Wang, Programs Coordinator, Arthritis Consumer Experts, speaks to Drs. Cari Whyne and Johnathan Lex. They have a conversation about how they are combining a database on outcomes and population data to create prediction models. These prediction models have the ability to improve the allocation or time and resources to improve the equity of joint replaceme...

In this episode of Arthritis at Home, Mr. Kohle Merry, PhD candidate at the University of British Columbia, member of Arthritis Patient Advisory Board of Arthritis Research Canada, and a person living with osteoarthritis (OA) discusses the profound impact of OA on patients, the healthcare system, the economy, and the launch of ACE’s National Survey on Living with Osteoarthritis.  The Survey deadli...

In this episode of Arthritis At Home, we are sharing a #CRArthritis interview from the Arthritis Broadcast Network. Cheryl Koehn, Founder and President of Arthritis Consumer Experts, discusses with Dr. Fiona Rawle, Associate Dean, Pedagogical Development and Scholarship, University of Toronto, about the infodemic and pseudoscience. Dr. Rawle shares key takeaways from her presentation at an annual...

In this episode of Arthritis At Home, we speak to Dr. Sahil Koppikar, MD FRCPC, a rheumatologist at Women's College Hospital and Assistant Professor at the University of Toronto, and Ms. Chandra Farrer, Quality Specialist at Women’s College Hospital and a C-QuIPS facilitator at the University of Toronto. As Chair and Vice-Chair of the Northern Ontario Committee of the Ontario Rheumatology Ass...

In October 2022, Canada’s Premiers announced the recipients of the Council of the Federation (COF) Award for Innovation in Mental Health and Addictions Care. Presented in each province and territory for innovative initiatives that positively impact mental health and addictions care, the award recognizes individuals and organizations excelling in the field. In this episode of Arthritis At Home, we...

Rheumatoid arthritis (RA) is the most common form of inflammatory arthritis and affects women twice as often as men, striking people in the prime of their lives. February 2, 2023 is the annual Rheumatoid Awareness Day that helps raise awareness of the disease and improve the lives of approximately 380,000 Canadians living with the disease. To mark this special day, Arthritis at Home speaks with Ch...

In this episode of Arthritis at Home, we speak to Cheryl Koehn, President, Arthritis Consumer Experts and Dr. Diane Lacaille, Scientific Director, Arthritis Research Canada to learn more about the re-launch of the Arthritis Broadcast Network (ABN) and new features. Ms. Koehn and Dr. Lacaille also speak about the value of arthritis education for patients to become equal and active partners with the...

In this episode of Arthritis At Home, Ellen Wang, Programs Coordinator for Arthritis Consumer Experts, speaks to Cheryl Crow, an occupational therapist who’s lived with rheumatoid arthritis for 19 years. The two share an open and honest dialogue about the emotional and mental challenges that individuals living with inflammatory arthritis face. Cheryl makes some suggestions of gadgets that one can...

The last #ArthritisAtHome episode of 2022 features ACE President, Cheryl Koehn, and VP of Communications and Public Affairs, Kelly Lendvoy. They provide a year in review of Arthritis Consumer Experts’ activities in 2022. They also share key initiatives for the new year, including: new programming on osteoarthritis, lupus, psoriatic arthritis, spondyloarthritis, mental health, and exercise advancin...

On today’s episode of Arthritis at Home, Kelly Lendvoy, ACE’s VP Communications and Public Affairs and Ellen Wang, Programs Coordinator, takes a deeper look ACE’s latest JointHealth™ insight newsletter on osteoarthritis in Canada. Learn more about the cost of osteoarthritis to the healthcare system, the connection between sport injury and osteoarthritis, treating and managing osteoarthritis, and e...

ACE Survey Report on Arthritis and Health Inequities Health inequities and disparities in Canada exist, are persistent, and in some cases, are growing. ACE recently conducted a national survey to identify inequities relating to access to health care services between white and Black, Indigenous, and person of colour (BIPOC) respondents. On this episode of Arthritis at Home, Kelly Lendvoy, ACE’s VP...