About M.E. - A Spoonful of Recovery

Charlotte was a Nurse when she had gradually gained diagnosis for multiple Auto Immune conditions. She also had developed FND & told initially it was nothing to worry about. She now manages two businesses after being asked to stop nursing for her own health.   

Aminur discusses why he's raising awareness about invisible disabilities after his sister Saarah passed away. She had been battling EDS from a young age and was often bed-bound, she was part of the Miss Universe competition and also had ambitions to raise awareness herself.  Instagram:  GoFundMe: bit.ly/GoFundMeSaarah Instagram: https://bit.ly/InstagramAminur TikTok: bit.ly/TikTokAminur

Krupa has was diagnosed with FMD and has experienced a challenging 8 years with the invisible illness. She shares her journey to getting a diagnosis. 

Martin also known as 'Paused M.E.' on Instagram, shares his experiences of being diagnosed with Chronic Fatigue Syndrome. Martin was on a trip with a friend where he became ill and became bed-ridden. He now campaigns to help others and raise awareness using his platform. 

I had an amazing opportunity but my FND brain let me down, so I decided to share with strangers on the internet that i'm not doing so well. 

Sian was diagnosed with Fibromyalgia and seeking a diagnosis of ADHD. She discusses running her own business, being a mother of two and her experiences with invisible illnesses. ***Trigger warning*** She will discuss miscarriages.  Website: https://www.sianmurrayhuynh.com/ Twitter: @SianAEMurray 

Katie was diagnosed with FND in March 2020 during the global pandemic. She has continued to work part-time at the Children's Hospital as well as homeschool her children. In this episode she shares her experience with FND and her symptoms. 

Jason Mountford a financial expert, shares his tips on how to help manage your finances especially if you have been diagnosed with a chronic/invisible illness. 

Many of us will have heard the same phrases such as: -"It's all in your head" -"Be more positive" -"Ignore your symptoms" But what can be done in the meantime whilst some of us battle specialists. 

Tanya Marwaha is the Founder of Championing Youth Minds www.championingyouthminds.com which helps raise awareness about mental health amongst young people. She uses her platform to help others who may be struggling with anxious thoughts and shares her experiences.  www.instagram.com/championingyouthminds.

This one is for those of us who may struggle with body image in general but also after being diagnosed with a chronic/invisible illness. Olga was one of the few people who witnessed some of my symptoms. 

In this episode, I go through my goals and how I have come to terms with managing them compared to last year and well my previous life. If you would like to know more about the About M.E. movement take a look at www.aboutme.group. 

Accepting a condition is one thing but we are often faced with lots of judgement and looking at how we can reinvent outrselves. It's all well and good asking someone to be positive but that will not help that person eradicate their pain. I have often felt judged by people because i'm not the girl who is travelling around the world solo, nor running a social media business or flying my drone. Somet...

"You look fine though" I don't know what symptoms I will experience everyday, and this can be challenging to explain to people who aren't experiencing the same pain. So who do you turn to and where?

How do you learn to accept a diagnosis when you have grown up healthy and all of a sudden being told something is in your head to being told you have a rare brain condition. If you have had any experience of chronic pain you've probably been told to: "It's all in your head" "Just be more positive" "Get some hobbies" 

I have had FND for over a year, I was told i'd be better within a few weeks. Here's to navigating through an invisible illness. 

This is an introduction to the reasons why About M.E.- A Spoonful of Recovery was created and how we aim to raise awareness about invisible illnesses. Dropped on my bedroom floor and decided to start using my voice.