What the Ef?!

When Bree began her advocacy journey, it was a doctor’s requirement before brain surgery. But what started as atherapeutic writing exercise quickly evolved into something much bigger—connecting with countless others on their epilepsy journeys. In this episode, we explore why anger is often dismissed, why acceptance is sometimes seen as the only path, and how embracing both can be the key to sparki...

Gear up for a double date you’ve never seen on Netflix: one police officer, one firefighter, each married to an epilepsy advocate. Illinois State Police Officer, Duane Chappell, and Chicago firefighter/EMT, Steve Paluck, share eye-opening insights about seizures in the field and the necessity of seizure safety training for first responders. Jessica Chappell (Duane’s better half) rejoins the podcas...

Like many of us, Melanee Stovall felt overwhelmed and isolated after her daughter was diagnosed with epilepsy. Navigating the complexities of healthcare and education, Melanee chose to keep her daughter’s condition a secret, hoping to protect her from stigma. But as she learned more, she discovered her voice and began advocating for fair treatment both in the classroom and in medical care. In this...

Ready for the sweetest, most non-traditional love story? Alison Kukla and Preston Reilly share their Meet Cute, Zoom wedding, and when “family planning” doesn’t go as planned. These two should legit have their own Hallmark movie that rewrites the script for happy endings. Tune in to hear how this powerhouse couple is changing the narrative of managing epilepsy in marriage, careers, and support sys...

In this powerful episode, JenVon opens up about the raw realities of living with epilepsy, from the cognitive challenges and isolation to the struggles with depression, anxiety, and dating. She bravely shares her escape from an abusive relationship, highlighting the critical importance of self-care and a supportive network. As the founder of Epitome of Epilepsy, JenVon discusses themission of her...

Ever felt like an outsider, even within your own community? You’re not alone! After Mark Slater hid his epilepsy for years, becoming an advocate didn't erase that feeling. But then came a pivotal moment that changed everything—Mark realized he succeeds because of his epilepsy, not despite it. Now we’re teaming up to create a space where people with epilepsy can truly connect. Tune in for the e...

Ever heard of a rescue med but not sure wtf it really means? Join Dr. Becker, a top epileptologist at Ohio State’s Comprehensive Epilepsy Center, as she explains rescue meds, how to use them, and how to talk to your doctor about them. And check out how Dr. Becker and her team are revolutionizing epilepsy treatment through cutting-edge research and compassionate care. Take this survey about rescue...

Growing up, Anna faced relentless bullying and doubt from both peers and teachers because of her seizures. But instead of letting the stigma define her, she transformed her pain into power. Now a Community Outreach Specialist for her local Epilepsy Foundation of Wisconsin, Anna is a source of inspiration 🌟 and support 🤝, ensuring that no one feels alone on their epilepsy journey. Tune in to hear...

Jessica Chappell started as a clerk for a local store and is now a business analyst for that same corporation. Despite facing discrimination for her epilepsy, she used it as fuel to climb higher. Dreams of being a cop were sidelined, and she now trains law enforcement on seizure safety. Tune in and hear how to turn haters into motivation.   Available on: YouTube, Spotify, Apple, Amazon Music, &amp...

Meet the cutest guest ever, Bella! Her human, Matt Bonfiglio, tells us how he found her on Craigslist and realized she had the makings of a service dog. Seven years later, Bella is a pro at helping Matt manage his epilepsy and charming skeptics everywhere. Get ready for laughs, heartwarming moments, and tips on how you might turn a quirky rescue pup into your very own loyal sidekick. 🐕🎉 Availabl...

Kate Kostolansky, founder of Char Bear Keeps Dancing, and Dr. Christina Briscoe, pediatric epilepsy fellow, share insights on infantile spasms and epilepsy, emphasizing the importance of advocacy and education. Their conversation highlights the need for more support and resources for affected families. Join the discussion on hope and self-care! Get a bear and book! Or donate them to a children&#39...

Tune in for singer-songwriter Tiana Goss's inspiring journey, as she navigates a new epilepsy diagnosis while chasing her dreams! From dazzling The Voice to lighting up LA stages, her passion and talent always shine bright. As she prepares to grace the stage at the Cam for a Cause Gala this weekend, Tiana is a true testament to turning setbacks into comebacks! Like, subscribe, and follow  @Wha...

Meet Jeff Baltes, the epitome of resilience and humor! From relocating for accessible transportation to the horrendous hurdles of health insurance and employment, Jeff's story will have you laughing, crying, and cheering him on! Tune in for a rollercoaster of emotions! Available on: Spotify, Apple, Amazon Music, Audible, and more! Thank you Neurelis and SK life science for battling through thi...

Meet Meg Busing, nurse & epilepsy advocate, as she fearlessly shares her journey of parenting with epilepsy. From navigating pregnancy to juggling medication adjustments, she sheds light on the highs & lows of motherhood. Join her empowering community at Midwest You Can, where support & advocacy thrive! 💖 Available on: Spotify, Apple, Amazon Music, Audible, and Thank you SK life scien...

NEW! Epi-Gem Episodes featuring gems in the Epilepsy Community! Starting with the *must-have* seizure training in schools! Meet Collin, our seizure educator extraordinaire, sharing how it transformed his school days. With Sarah, our inclusive education advocate, we dish out practical tips to bring seizure training to YOUR school. Tune in for the scoop on why it's crucial and how to make it hap...

Defying the odds and breaking barriers! CJ Harris opens up about his journey as a Division 1 linebacker living with epilepsy. Despite facing discrimination from the NCAA against epilepsy meds, he's rewriting the playbook and inspiring us all! Available on: Spotify, Apple, Google Podcasts, Amazon Music, & Audible Thank you SK life science and Neurelis for helping us break down barriers! CJ&...

Creator of Living Well With Epilepsy, Jessica Smith, shares what it’s like when cancer meets a chronic illness. Jessica and Landis chat and laugh about their experiences managing epilepsy and tumors; coping mechanisms and community; and why society feels more comfortable showing up for the Big C but not always the Big E.Available on: YouTube, Spotify, Apple, Google Podcasts, Amazon Music, & Au...

After having a seizure on-air, award-winning activist Charles Ellison was diagnosed with epilepsy and stepped down from his radio show to get a handle on his treatment with the support of his wife, Dian Ellison. This power couple shares with Landis Wiedner how they adjusted—and continue to adjust—with the ever-changing demands of epilepsy. Available on: Spotify, Apple, Google Podcasts, Amazon Musi...

CEO of the Epilepsy Foundation of America , Bee Martin Lee, spent most of her life feeling unsafe to disclose her epilepsy because of the stigma she faced in college, career, and family. Bee shares with LandisWiedner the tough conversation shehad with herself to be open about her epilepsy. Now she strives to empower others to do the same and demystify what it means to have epilepsy. Available on:...

Frustrated in your search for mental health care? You’re not alone! Torie Robinson, host of Epilepsy Sparks podcast, and Landis Wiedner chat and laugh about their quests for good therapists and experiences with various types of therapies, like cognitive behavior therapy (CBT). Armed with her impressively vast knowledge of the epilepsies, Torie explains why mental healthcare goes hand in hand with...

Dr. Heard has completed medical missions across the world and won the Mrs. Illinois pageant--all for epilepsy awareness. Listen to Dr. Heard's story of why she chose to be a pediatric epileptologist and her creative approach for epilepsy education. You'll find yourself inspired to find your own form of advocacy. Available on: ⁠YouTube⁠ , ⁠Spotify⁠ , ⁠Apple⁠ , ⁠Google Podcasts⁠ , ⁠Amazon Mu...

Wellness coach, Terra Ann, shares practices on how to heal our whole selves. Drawing from her own epilepsy journey, Terra Ann shares her practices of integrating food, lifestyle, and self-care into her every day. Great listen to keep up new year momentum! Check out Terra Ann's wellness coaching here: https://www.terraann.com/ Available on: YouTube , Spotify , Apple , Google Podcasts , Amazon M...

Bestselling author of NORMAL BROKEN, Kelly Cervantes, talks about what to do when life feels unsurvivable. She shares her experience and coping mechanisms--including feel like a deranged dancing chicken. WIN A SIGNED COPY OF NORMAL BROKEN 1. Follow and DM What the EF on Instagram: @whattheefpodcast 2. You're entered to win! Shop local for NORMAL BROKEN 1. Request a signed copy with purchase at...

What the EF podcast starts off 2024 with an elusive topic: DATING. When do you tell a date you have epilepsy? What do we expect from potential partners? Landis Wiedner chats with epilepsy advocate Brendan, who brings new year energy to the dating sphere. Available on: YouTube, Spotify, Apple, Google Podcasts, Amazon Music, & AudibleInstagram: @whattheefpodcast YouTube: @WhatTheEFPodcast Websit...

We chat about our favorite coping strategies for surviving our favorite time of the year! Shop What the EF (and What the ELF!) merch and get a 15% off discount! Promo code: WTEF15 https://wtefpodcastshop.etsy.com Hosted on Acast. See acast.com/privacy for more information.