PsA HQ Podcasts

Welcome to this special season 3 podcast series on the PsA HQ Channel all about ‘The James Lind Alliance Priority Setting Partnership for Psoriatic Arthritis' which was funded by the British Psoriatic Arthritis Consortium (BritPACT) and was a collaboration with the British Society of Rheumatology (BSR), Psoriasis Association and the Psoriasis and Psoriatic Arthritis Alliance (PAPAA). &nb...

Hello! Here's a little news about season 3 which is coming very soon.. I do hope you will join me and listen in :-)  Please subscribe, rate and bookmark this channel! There are lots of ways to get in touch - here's my link tree or you can send an email to:  psazzgroup@gmail.com  Attribution:  Music by lemonmusicstudio from Pixabay

Hello there - I hope you enjoy listening in on this first 'group chat' on the PsA HQ podcast channel! It's a catch up and check in on how we are all feeling about having no pandemic restrictions in the near future -especially those who have been shielding. Have a listen and see if you feel the same?  Thank you so much to Andrew, Debbie, Di and Pat for taking part. Here's a link tree to all th...

Hello again!  We are back on the theme of work and how it is a really important part in our life/self-management choices! In this episode of the PsA HQ podcast, I talk to Jana who is someone I know chooses and needs to work.  The landscape for working from home has changed a lot since the pandemic and we chat about how this might actually be of benefit to people like us too. Here's a lin...

Hello again!  I hope you will find listening to this podcast with Tina, about her experience working, juggling and pacing life with chronic conditions helpful and reassuring that you are not the only one in this position! As mentioned Tina is on instagram as  the one2onediet with Tina Brown trimwithtina   and through that you will also be able to see her link tree to all her ot...

Hello and welcome back!  In this episode I chat with Julian and Kath from Carer Support Wiltshire who are an independent charity that provides free and confidential support to unpaid carers of all ages across Wiltshire. Julian Pugsley is a Community Connector and Kath Brice is PR & Communications Officer.   Links to CSW can be found here: www.carersupportwiltshire.co.uk  and the...

Great to have you join me on the podcast again! This episode I chat with Andrew - someone introduced to me through my patient expert partnering links.  We reflect on lockdown, coping tactics and what un-shielding might look like. Get in touch and let me know how you feel? Link to the new PsA HQ podcast wordpress site is here: psahqpodcasts.wordpress.com You can get in touch via psazzgroup@gma...

Hello and Welcome back to Season II at PsA HQ which I'm starting with a catch up with Pat, a member of the support group.  During this episode we reflect on lockdown shielding letters and the importance of being able to source and share trustworthy information. We also chat about telemedicine, un-locking and for Pat, her feelings around 'un-shielding'.  Please subscribe, rate and bo...

Just a quick pod to update you on what's been happening here at PsA HQ (clue: winter + arthritis) and a little about upcoming season 2. Please subscribe, rate and bookmark this channel! You can also sign up for email news. Get in touch via psazzgroup@gmail.com Music: Moments by Shane Ivers - https://www.silvermansound.com

Hello again - I'm so glad you are here to join me in the pod-osphere! In this episode I have a chat with Dianne who is someone who belongs to not one... not two... not three... but four different peer support groups!  Amazing!  We talk about how it all started for her, and why, and what each group means to Dianne.  There are also some funny 'disruptive' moments which I have deliberately left in be...

Hello - I'm so pleased you have joined me!  For this episode I thought it would be a bit different to ask a medical expert’s opinion on the value of peer support and how it can be helpful for people to speak to other people going through the same kinds of things so… I invited Dr Laura Coates, who is an Associate Professor at the University of Oxford to have a chat with me.  We talk about her opini...

Hello again - it's lovely to have you join me. Here's another peer support themed chat for you to listen too - this time with Pat who is another member of our 'Support Rheum' group.  It's an interesting story as Pat didn't think she was really looking for peer support or wanting to be part of a group but after she found it, she liked it and she stayed part of it - result!   Just goe...

Hello again - I am so glad you've joined me!  In this episode I'm having another chat with one of my peer support friends - Amanda about why she looked for a group and what she feels she gets from being part of one.  I think her story about what she has gained and how it has helped her is another demonstration of why it's so important! I hope you enjoy listening as much as I enjoyed chat...

Hello there - I wanted to share some personal opinions and insights into peer support with you.  In this episode I chat to Debbie (one of the original co-founders of 'PsAZZ' - a support group for people with psoriatic arthritis) and while we reminisce,  we also talk about why we think being part of the group has been valuable, how it's been useful in the practical sense and how we enjoy being in c...

Hello & Welcome - I’m Mel from PsA HQ on instagram and twitter.   'PsA' is a short form term for Psoriatic Arthritis - a painful inflammatory condition associated with the skin condition Psoriasis but behind the condition are many inspirational and resilient people and this a place to talk about their stories and all the kinds of things that affect them -  not least how they manage in spite of it!...