PeDRA Pearls

In case you missed it, PeDRA produced two sponsored webinars with Novan in the Spring of 2023. If you would like to view the video versions of these presentations, please click here . For more resources about molluscum, please click here .

As we gear up to release the first episode of our new Hidradenitis Suppurativa Podcast series, we dipping into the archives for a publication presentation from Dr. Irene Lara-Corrales about this international, multicenter, retrospective, cross-sectional study of 481 pediatric patients revealed a gap in diagnosis, and that HS patients are likely to suffer from other comorbidities. Learn more about...

Dr. Markus Boos discusses the influence of gender and sexual identity in adolescent skin health. His findings reiterate the importance of recognizing implicit bias and ensuring sexual/gender minority (SGM) children are being treated with the same holistic, respectful care as non-SGM children. Watch to learn more. To view the video presentation of this program, please click here .

Season four of Getting to Know You shakes up our format with a new twist. This season, we are getting to know the amazing research that PeDRA members are doing. In our first episode, nurse practitioner, Emily Croce, PhD, MSN, APRN, CPNP-PC talks us through her 2022 Childhood Eczema Challenge grant, The Role of Outdoor Air Pollution on Disease Burden and Racial Ethnic Disparities. Learn how this pr...

Lisa Arkin, MD presents the findings of a PeDRA study: Clinical and Histologic Presentation of Pediatric Reactive Granulomatous Dermatitis. This program originally aired in May of 2020. To view the video version of this presentation, please click here .

In this mini Community Spotlight, PeDRA shines a light on The Association of Hidradenitis Suppurativa and Inflammatory Diseases (AHSID). Learn about the work  AHSID  does for the patient and provider communities in an interview with founder and CEO Jasmine Espy. AHSID has volunteer opportunities! If you are interested in volunteering, please  click here  to apply. To view the v...

Olivia Davies, MD discusses the findings of a recent publication – Hamartomas and midline anomalies in association with infantile hemangiomas, PHACE, and LUMBAR syndromes. To view the video version of this program, please click here . This program originally aired in June of 2020.

Listen now to a special PeDRA Publication Presentation about a recent collaborative publication in the British Journal of Dermatology. Alexis Sokoloff is a young woman living with Down syndrome and hidradenitis suppurativa (HS), and together with Dr. Jillian Rork, Morgan Dykman, and Gwen Sokoloff, she discusses the publication and shares what she wants providers to know about treating HS in the Do...

The Drugs and Bugs Focused Study Group presents a spirited conversation on whether Reactive Infectious Mucocutaneous Eruption (RIME) should be a separate condition from Stevens-Johnson Syndrome (SJS). Moderated by Dr. Michele Ramien, Dr. Erin Mathes, and Dr. Yvonne Chiu debate RIME, SJS, and other blistering severe cutaneous adverse reactions. In this three-part miniseries, episode one presents th...

Past PeDRA Research Fellowship Grant recipient, Angel D. Pagan Gonzalez, MD, presents this single-site research study about the success of Dupilumab in children and adolescents.  Dupilumab Improves Clinical Scores in Children and Adolescents with Moderate to Severe Atopic Dermatitis . To view the video version of this presentation, please click here .

Blistering severe cutaneous adverse reaction in children: proposal for pediatric-focused clinical criteria. Dr. Michele Ramien summarizes a collaborative study on blistering severe cutaneous adverse reactions (SCAR) in children. It’s very important to diagnose these reactions early and accurately as they can be life-threatening. The study created categories that are more appropriate for diagnosing...

In episode four, Dr. Harper Price facilitates a dynamic conversation alongside Beth Drolet, MD, and Michael Howell, PhD, exploring the significance of investigator-initiated studies. They delve into the reasons behind its importance and provide insights on when and how to initiate such studies. The discussion emphasizes that collaborating with industry and spearheading a study can be a manageable...

Presented by the Acne and Hidradenitis Focused Study Group and moderated by Dr. Irene Lara-Corrales, Drs. A. Yasmine Kirkorian, and Izzy Andrews discuss the treatment options for pediatric hidradenitis suppurativa and highlight the research that is still needed to understand and treat this devasting disease effectively. Listen to learn more. The program originally aired in May of 2022.

The Down syndrome sub-group presents a discussion on the use of immune modulators in children with Down syndrome. Moderated by Dr. Jillian Rork, Drs. Emily Gurnee, Kristen Holland, and Kishore Vellody take a deep dive into skin conditions and treatments for children with Down syndrome and highlight exciting new research on the horizon. This program originally aired in February of 2022.

So you’ve got the funding, now how do you make the research happen? Hear from three funded PeDRA investigators and learn how they assembled their teams, tackled the paperwork, and got their projects off the ground. Don’t miss this great opportunity to learn from their experiences! This program originally aired in April of 2021. View the video version of this presentation here .

Join Jennifer Schoch, MD as she discusses the successes of the research program at the University of Florida Dermatology and the importance of funding. This program originally aired in July of 2020. To view the original webinar, please click here .

Listen as Dr. Jen Schoch moderates a podcast discussion on the pros and cons of sunscreen use in children under the age of 6 months. Joined by two esteemed guests, Dr. Irene Lara-Corrales, and Dr. Jeannette Jakus, this conversation identifies not only the pros and cons, but offers sunscreen alternatives, and discusses future potential research projects. This program originally aired in December of...

Season three concludes with an interview featuring Sonal Shah, MD. Dr. Shah is the Director of Pediatric Dermatology at University Hospitals Rainbow Babies & Children’s Hospital and holds the position of Associate Professor of Dermatology at Case Western Reserve University School of Medicine. Alongside Dr. Leah Lalor, she is a co-founder and co-leader of PeDRA’s newest Focused Study Group (FSG...

This is part two of a two-part miniseries about the importance and value of patient partners. Learn how to engage patients as research and data strategy partners with Suz Schrandt. This program originally aired as a webinar in the spring of 2020. To view the webinar, click here .

The group discusses the current research and what the next steps are to better define these lesions, and when and how to treat them. They also answer questions from our live studio audience. To learn more about current PeDRA studies, please click here .

Dr. Berrebi discusses her parameters for monitoring vs. excision and Dr. Gerami discusses how to uncover the true nature of the lesion through a variety of testing options.

The group discusses the ever-changing terminology and why it matters. Listen as episode one lays the foundation for a great discussion on genomics.

We are rounding out EB Awareness Week with this Monday’s Podcast Rerelease. Originally airing in April of 2021, this Abeona Sponsored Webinar, Gene Therapy for Large Chronic Wounds in Recessive Dystrophic Epidermolysis Bullosa, was presented by Jean Tang, MD, PhD. Dr. Tang provided an update on the EB-101 pivotal Phase 3 VIITAL study and answered questions from the audience. To view the original w...

In honor of Epidermolysis Bullosa (EB) awareness week starting today, we are re-releasing an audio version of an Amryt Pharma-sponsored webinar that originally aired in December of 2021. Listen as Dr. John Browning from Baylor College of Medicine and Dr. Lara Wine-Lee from the Medical University of South Carolina discuss a promising new treatment for wound healing in EB patients. Click here to vie...

PeDRA member, Colleen Cotton, MD, recently presented at the 2023 Symposium on Hidradenitis Suppurativa Advances (SHSA). In this episode, Dr. Colleen Cotton sits down with PeDRA to give a quick summary of the SHSA meeting and make a special announcement about an upcoming PeDRA educational initiative. SHSA is an annual meeting organized by the Hidradenitis Suppurativa Foundation (HSF) to bring exper...