Arachnoiditis Unfiltered Podcast

The conversation covers the challenges of arachnoiditis diagnosis and treatment, the benefits of multidisciplinary rehabilitation and pain management, and the use of cannabis as a therapeutic option for symptom relief. The conversation covers topics related to pain management, physical rehabilitation, mental health, and advocacy for chronic health conditions. It delves into the challenges of manag...

This episode emphasizes the resilience of individuals battling chronic disease and advocates pushing for systemic change. Remember, collective voice and shared knowledge are vital in transforming healthcare for those with invisible illnesses

"Pain doesn’t have to be only physical — sometimes it’s emotional, and distractions matter more than we realize." Drop a 💬 if you’ve ever found a moment or experience that shifted your perspective during tough times. This is a raw peek into how sharing genuine struggles can create connection and comfort. The speaker reminds us that vulnerability and humor are powerful tools — laughing isn’t just...

Boldly challenge what you think you know about perception, and how a simple choice can change everything. When a single comment about glasses sparks a story, it unravels insights on self-awareness, authenticity, and the power of small decisions. This episode isn't just about eyewear; it's about the mindset shift that helps you navigate life's uncertainties with confidence. Discover how moments of...

Keywords dysautonomia, arachnoiditis, health journey, chronic illness, personal experience, symptoms, diagnosis, autoimmune disease, health monitoring, lifestyle changes Takeaways Steve shares his personal health journey after a recent diagnosis. He discusses the symptoms of dysautonomia and its impact on daily life. Dysautonomia is linked to arachnoiditis, complicating his health situation. Steve...

Dr. Betsy Grunch, also known as Lady Spindoc, discusses her approach to educating patients about arachnoiditis and the challenges of diagnosing and understanding the disease. She also shares her experience with content creation and the impact of social media on her communication skills as a physician. The conversation covers a range of topics including patient care, advocacy for treatment options,...

The conversation covers Hadley's journey of overcoming Crohn's disease through natural methods, the impact of lifestyle factors on health, advocacy for rare disease awareness, and the transition to health coaching and book release. It explores the challenges of conventional treatments, the importance of managing symptoms and lifestyle factors, and the potential for natural healing methods to impro...

The conversation covers Heath Howard's journey with arachnoiditis, his accident, recovery, and subsequent involvement in political advocacy. It also delves into the impact of the disease on women, pain management, personal resilience, disability representation, and the future impact of research and treatment options. The conversation covers Heath Howard's journey into healthcare advocacy and polit...

content type Interview primary goal Educational summary In this inspiring interview, Erica Falco shares her journey from a challenging medical history to becoming a passionate advocate for rare diseases. Discover her story, advocacy efforts, and how she uses social media to raise awareness and support others. keywords rare diseases, advocacy, endometriosis, dysautonomia, medical journey, social me...

The conversation delves into the sensitive topic of intimacy and its impact on individuals living with chronic diseases, specifically arachnoiditis. It also explores the challenges faced by individuals diagnosed with arachnoiditis, from early life experiences to pain management and medication. The conversation delves into the impact of neurological conditions on physical sensation, the challenges...

Keywords Arachnoiditis, chronic pain, patient advocacy, pain management, neuroinflammation, health resources, community support, personal experiences, medication, awareness Summary In the inaugural episode of Arachnoiditis Unfiltered, hosts Steve and Sarah Lewis share their personal experiences with arachnoiditis, emphasizing the unique challenges faced by individuals living with chronic pain. The...

Summary In this episode of Arachnoiditis Unfiltered, host Steve welcomes Mark L. Fox, a former rocket scientist and inventor, to discuss innovative energy therapy technology designed to alleviate chronic pain. Mark shares his unique journey into the field of energy therapy, which began when he sought a solution for his dog suffering from arthritis. He explains the principles behind Pulse Electroma...

The hosts express gratitude for community support and celebrate reaching milestones. They emphasize the importance of building a supportive community, reaching a wider audience, promoting positivity, expanding the podcast, and advocating for patient voice and research participation. Takeaways Community support and engagement are crucial for the success of the podcast. Promoting positivity and shar...

The conversation delves into the role and impact of Rare Patient Voice in connecting patients with medical research studies and empowering them to share their experiences. It explores the journey, challenges, and expansion of Rare Patient Voice, as well as the understanding and diagnosis of rare diseases. The role of patient advocacy, social media, and community building is highlighted, along with...

Changing patients' lives and connecting the rare disease community. Sara and Steve have a powerful conversation with Rare Patient Voice President Wes Michaels and patient advocate Stacy. Through our discussion, we learn how signing up and participating in research projects for all types of diseases and conditions benefit patients financially, strengthen advocacy, and accelerate progress for the ra...