HemoLife Podcast

Send us Fan Mail We sit down with Harley and her mom Chelsea to share what it takes to get answers when severe bleeding keeps getting dismissed and care is hours away. Their story moves from repeated surgical bleed-outs and a terrifying brain bleed to finally finding the right advocacy, specialist support, and a plan that brings control and hope.  • delayed diagnosis after tonsil and adenoid surge...

Send us Fan Mail We talk candidly about identity, hemophilia, and the rock-bottom questions that can rebuild a life with purpose. We connect faith, mentorship, and practical skill-building so you can move from feeling stuck to taking the next step with confidence.  • auditing your life to find the real roots of your mindset  • asking the five identity questions that clarify purpose and direction ...

Send us Fan Mail We read real posts from the hemophilia community and respond to what people are struggling with right now, from relationship stigma to medication side effects and breakthrough bleeds. We share our own experiences with Hemlibra, Alhemo, Altuvvio, and factor prophylaxis so you can think more clearly about what “the right treatment” really means for your body and your life. • relatio...

Send us Fan Mail 🚨 THE SECRET IS OUT. HEMOLIFE IS COMING TO CHICAGO. On this episode of the HemoLife Podcast, we’re officially revealing a special event created for the hemophilia community. This is more than another podcast episode. It’s a chance to bring the conversations, the stories, the education, and the people behind this community together in real life. 📍 Chicago 🩸 Built for the hemophi...

Send us Fan Mail We sit down with hematology nurse practitioner Maya Bloomberg to cut through the noise around hemophilia gene therapy, including what it can realistically change and what it cannot. We talk durability, safety, access, and the human side of decision-making so patients and families can walk into care feeling informed and empowered.  • what gene therapy aims to do in hemophilia and w...

Send us Fan Mail We sit down with Rocco Weber to connect sprint car racing, hemophilia, and the mindset it takes to live with purpose instead of fear. We dig into community, access to care, and why peer support and better tools can change what’s possible for people with bleeding disorders.  • Rocco’s vision for a first annual hemophilia racing community event in Knoxville, Iowa  • Connecting “hors...

Send us Fan Mail We sit down with Colby Spencer, a young firefighter and EMT living with severe hemophilia B, to talk about what it takes to do a high-demand job without letting the disorder write the rules. We get real about compliance, mindset, mentorship, and why building a life matters as much as managing bleeds.  • deciding to pursue fire service after being told “no”  • being upfront about h...

Send us Fan Mail We sit down with Tracy Hamler, founder of Free Bleeders Inc., to talk about what happens when women with bleeding disorders get dismissed, then decide to build the resources they needed all along. We dig into diagnosis, motherhood, community support, and the daily mindset shifts that help caregivers and leaders keep going when the tank is empty.  • Tracy’s path to a hemophilia dia...

Send us Fan Mail We sit down with Johnny Hawkins to talk about surviving a life-threatening brain bleed as a toddler and growing into a confident adult with severe Hemophilia A. We get real about bullying, treatment discipline, staying active, and why your bleeding disorder can shape you without limiting you. • Johnny’s origin story as the first known case in his family • A childhood intracranial...

Send us Fan Mail Some stories punch through the noise because they’re honest about pain and fearless about change. Dr. Robb Kelly joins us to trace a blunt arc from childhood drinking and homelessness to a purpose-built life that blends faith, neuroscience, and relentless service. He doesn’t just talk sobriety; he reframes addiction as a thinking problem rooted in patterns, identity, and environme...

Send us Fan Mail Brandon shares how a single moment of self-consciousness sparked a 40-pound weight loss, less pain, and a steadier mind while living with severe hemophilia. We talk peptides as a tool, small habits that stick, and why momentum beats motivation. • origins of weight gain after ankle surgeries and recovery • mental health strain from immobilization and family stress • GLP-1 peptides...

Send us Fan Mail We explore how new non‑factor options and high‑sustained factor products are changing hemophilia care and why shared decision making leads to better, more flexible lives. We connect treatment choice to joint health, mental health, aging, and everyday habits that protect long‑term outcomes. • Non‑factor prophylaxis versus factor replacement and what each does best • Treating beyond...

Send us Fan Mail A mother shares the raw path from diagnosis shock to confident routines, reflecting on ports, weekly infusions, and letting a wild-hearted kid be a kid. We weigh gene therapy’s promise against real-world insurance battles and the mental health load parents carry, while exploring how creative work online can be a lifeline. • diagnosis as shock, guilt and rapid learning • resources...

Send us Fan Mail Three hemophiliacs compare scars, strategies, and wins while turning pain into purpose and purpose into action. We talk identity, treatment breakthroughs, creative work, fatherhood, and the mentorship blueprint that keeps hope real. • owning our condition without letting it define us • moving from sales burnout to entrepreneurship • empathy as a tool against despair • reframing pu...

Send us Fan Mail The highlight reel doesn’t show the needles, the swelling, or the spreadsheets of practice, dosing, and rest. Jason, a 15-year-old varsity point guard with severe hemophilia A, opens up about the real work behind his rise: learning to self-infuse at 10, negotiating risk with his mom and doctors, and building a routine that lets him push hard without pretending the danger isn’t rea...

Send us Fan Mail Pain might be invisible to everyone else, but it shapes every choice you make. Raul joins us for a raw, unfiltered look at severe hemophilia: the joint damage that lingers, the fear of switching therapies, and the quiet courage of showing up for life anyway. From marathon training on short half-life factor to learning about Hemlibra and Alhemo at a community event, he walks us thr...

Send us Fan Mail We trace Will’s path from severe hemophilia A to competitive swimming, strength training, and building a fast-growing roofing company. The conversation lifts the lid on medical myths, empowered parenting, and a patient-led movement creating practical mentorship and the Hemophilia School. • reframing labels and building an empowered mindset • swimming and strength as joint protecti...

Send us Fan Mail We recap a Houston mentorship event built by and for hemophiliacs, where hands-on gym coaching met real-life guidance, shared stories, and a promise of continued support. We map what worked, where we’re going next, and how mentorship turns a single day into real change. • vision for a community-led mentorship model • why safe, smart training protects joints • practical skills that...

Send us Fan Mail L.A. Aguayo returns after a month-long hiatus to announce a groundbreaking partnership between the Hemo Life Podcast and RISE, co-founded by severe hemophiliac Dr. Joe Moleski, that will transform how the bleeding disorders community connects and grows. • New partnership allows authentic, uncensored conversations without manufacturer restrictions • Complete studio upgrade coming w...

Send us Fan Mail Two brothers come together to share their unique perspectives on growing up in a family affected by hemophilia, exploring how their different paths led them to similar life philosophies and purposes. • Gabe reflects on his childhood experience as L.A.'s younger brother, unaware of the full impact of hemophilia on L.A.'s life • The brothers discuss how childhood trauma sh...

Send us Fan Mail LA Aguayo shares his transformative journey from rock bottom to becoming a leader in the bleeding disorders community. His personal story reveals how asking himself "Who would I fight for?" changed everything when he felt worthless after battling hemophilia complications and hepatitis C. • Reflecting on the Texas Bleeding Disorder Conference and connections made with for...

Send us Fan Mail What happens when the rock starts to crack? This question lies at the heart of our conversation with host L.A. Aguayo and special guest Heber Ramos, a father who has navigated the turbulent waters of raising a child with severe hemophilia B. In this profoundly moving episode, Heber takes us through the day his infant son Zayden was diagnosed – a day marked by blood-soaked casts, f...

Send us Fan Mail Step into the world of resilience and transformation as L.A. Aguayo delivers a heartfelt update on the Hemolife Podcast. Fresh from connecting with fellow hemophiliacs in Ohio and riding the momentum of his recent book release, Elia opens up about turning personal struggles into opportunities for growth and connection. The episode takes you on a journey through L.A.'s evoluti...

Send us Fan Mail What happens when life's greatest challenges become the fuel for your greatest purpose? Kevin Leurquins story answers this question with raw honesty and profound wisdom. Growing up with hemophilia A, Kevin faced severe ankle arthritis and contracted hepatitis C from contaminated blood products. His year-long treatment became what he describes as "rock bottom" – a su...

Send us Fan Mail Host L.A. Aguayo and Co-Host Drew Kochera invite guest Kris Mill on the HemoLife Podcast. Kris, known on Instagram as @millzy2370, shares his transformative journey with the Exosym brace, a cutting-edge orthotic device that has restored his mobility and dramatically improved his quality of life as a severe hemophiliac. • Detailed explanation of how the Exosym brace works by transf...