AWOL Zebra : Fascia and living with hEDS

An off day… 28.07.2024 34:00 ↓

I am struggling to keep it together. Video on AWOL Zebra Network on YouTube.

No back up plan… 27.07.2024 16:05 ↓

Desperately seeking the control I lost with this illness.

The girl in the plastic bubble… 26.07.2024 19:22 ↓

I feel like I should be in a plastic bubble. Trying to gain control.

I am my own worst enemy… 25.07.2024 13:19 ↓

Will I ever learn? If I slow down and breathe. I can manage my kinasthesia! I feel stability for the first time.

Poison ivy is winning… 24.07.2024 24:09 ↓

This is my first (and last for obvious reasons video and audio podcast. It’s time consuming living life with hEDS and the comorbidities that come with it.

Not quite ready for prime time… 23.07.2024 33:50 ↓

Today was one thing after another. My body is still going. And I am afraid to stop.

Hanging out with Hannah… 22.07.2024 1:52:10 ↓

Learn about Hannah. A thriving 29 year old zebra that manages her life and this illness. There are good days and bad days. She’s a go getter!

I have the vapors… 21.07.2024 13:01 ↓

A situation that would normally debilitate me. Had a very simple remedy. Breathing. Stopping. And trash TV😉🤣💙

Hannah… 20.07.2024 1:52:10 ↓

I hope you enjoy my conversation with Hannah. What an incredible example of strength!

Pick up that axe… 19.07.2024 27:59 ↓

I have a poison ivy rash of pride!!!

Mama’s cooking… 18.07.2024 19:58 ↓

Getting back into the groove. It’s not so easy for me. Cooking, posture and breathing properly together? Seriously?

Meet Carolyn Bryan… 17.07.2024 1:40:23 ↓

Join me to learn about what works for Carolyn. And not for me 😉💙

Charmed… 16.07.2024 19:00 ↓

Feeling even stronger after the fall. Ready to fight. Even if I have to think about EDS every minute of every day.

I’m still me… 15.07.2024 17:00 ↓

Feeling sore. I got a wonderful surprise that gave me hope.

Two left feet… 14.07.2024 16:59 ↓

How did I fall? Do I get help? Did I cause fascial issues? I don’t have time for this to be a setback.

The foundation finally… 13.07.2024 29:59 ↓

Skeptical about my new PT. Then it hit me!

Validation… 12.07.2024 11:00 ↓

The tension has been released. Now my body is in recovery mode.

Anja the first… 11.07.2024 15:57 ↓

As we are building AWOL Zebra. I remembered how I met the very first member of AWOL Zebra.

Handle it with humor… 10.07.2024 19:54 ↓

I started something. Can I finish it?

My Support Goat… 09.07.2024 18:59 ↓

Managing this illness when your mind is faster than your body.

Catching up with Allie… 08.07.2024 59:49 ↓

I always love chatting with Allie Gillies. Join our chat.

I must multitask. Join me while I shower… 07.07.2024 19:59 ↓

After yesterday I expected more from today. My body decided differently.

It’s time for Buy, Sell or Trade on AWOL Zebra with CLH… 06.07.2024 9:59 ↓

A back brace brings on challenges. Trust you. Get to know your body. Compression garments for sale!!!

My muscles aren’t weak… 05.07.2024 23:26 ↓

IMT knocked me out! People are responding. AWOL Zebra is being recognized officially. We will make a difference.

Recipes with Allie Gillies… 04.07.2024 1:16:52 ↓

I love our AWOL Zebra family! Allie Gillies has incredible food and recipe tips. She has given me hope with my new Paleo Diet.