Voices for the Brain

Join American Brain Coalition Executive Director Katie Sale as she sits down with Leah Schust Myers, Executive Director and Founder of the FamiliesSCN2A Foundation. Together, they discuss the Foundation's mission to advance research, support families affected by SCN2A-related disorders, and foster collaboration to improve care and accelerate progress toward new treatments.

In this episode, Katie Sale, Executive Director of the American Brain Coalition, speaks with Jay Nichols, Vice President of Public Policy at the Tourette Association of America, about the importance of advocacy, public policy, and collaboration in advancing care, research, and support for individuals living with Tourette syndrome.

Join Katie Sale, Executive Director of the American Brain Coalition, and Meghan Donaldson, Chief Executive Officer of the Huntington's Disease Foundation, for a conversation on advocacy, collaboration, and advancing support for the brain disease community. In recognition of Huntington's Disease Awareness Month this May, the episode highlights the importance of partnership, education, and raising a...

Katie Sale, Executive Director of the American Brain Coalition, sits down with Mary Anne Meskis, CEO of the Dravet Syndrome Foundation, and Shannon Cloud, the Foundation's Patient Advocacy Director, for a conversation on the origins and impact of DSF. They discuss why the organization was founded, the critical advocacy work it leads, and the resources it provides to support patients and families a...

In this episode, ABC Executive Director Katie Sale sits down with Jane Powell, CEO & Executive Director, and Alejandro Bruner-Solas, Program Manager from PWN4PWN, for an inspiring conversation about advocacy, community, and living with narcolepsy. Together, they explore empowering individuals through peer support, workforce development, and inclusive programming, while sharing personal insights on...

In this episode, Katie Sale, Executive Director of the American Brain Coalition, is joined by Kris Corbett, RN, author of Bravely Bleeding and person with lived experience (PWLE) of Cerebral Cavernous Angioma; and Cornelia (Connie) Lee, PsyD, CEO of the Alliance to Cure Cavernous Malformation. Together, they explore the power of advocacy, the importance of patient voices, and the urgent need for a...

In this episode of the ABC Podcast, we're joined by Rick Willis, President and CEO of the Brain Injury Association of America, for a conversation with Katie Sale, Executive Director of the American Brain Coalition. Together, they discuss the power of collaboration across the brain injury and brain disease communities and highlight advocacy priorities to advance research, improve care, and elevate...

American Brain Coalition Executive Director Katie Sale is joined by Meghan Buzby, Director of Advocacy & Volunteer Engagement at the Association for Frontotemporal Degeneration, and AFTD Advocates Mary and Colin Gibney, a person with lived experience and her care partner. This conversation highlights the power of advocacy, the importance of elevating patient and caregiver voices, and the strength...

In this episode, Katie Sale, Executive Director of the American Brain Coalition, speaks with Lindsay Miltenberger, Chief Advocacy Officer at the Society for Women's Health Research (SWHR). Lindsay provides an inside look at SWHR's mission, history, and its leadership in advancing women's health through science, policy, and education. This episode offers a comprehensive introduction to SWHR's impac...

In our next episode, Katie Sale, ABC's Executive Director, sits down with Dan Feehan, Chief Policy and Government Affairs Officer at The Michael J. Fox Foundation for Parkinson's Research. Listen in as Dan shares insights into MJFF's advocacy efforts and highlights a key Texas referendum, which—since this recording—has successfully passed with over 68% of the vote, underscoring the strong public s...

Tune in to hear Katie Sale, Executive Director of the American Brain Coalition, in conversation with Aditi Narayan Minkoff, Vice President of Community Support at I AM ALS, and Linda and Mike Buhr, passionate ALS advocates sharing their journey as a person living with ALS and her caregiver. This inspiring discussion highlights the power of advocacy, resilience, and community in the fight against A...

Join Katie Sale, ABC's Executive Director, as she sits down with Bruce Parkman, President of The Mac Parkman Foundation for Adolescent Concussive Trauma. Uncover the hidden dangers of excessive repetitive impacts and extended contact sports seasons on children's brain health. Understand how subconcussive impacts can lead to long-term physiological changes. Learn how you can help make a difference....

Listen in as Katie Sale, ABC's Executive Director, catches up with Astrid Eberhart, Executive Director of International Brain Bee, a nonprofit that has inspired thousands of students to study and pursue careers in neuroscience. They promote student engagement with neuroscience through a three-tiered competition.

Join ABC Executive Director Katie Sale in conversation with long-time member Laura Weidner, Chief Advocacy & Government Relations Officer at the Epilepsy Foundation of America. In this episode, they explore the Foundation's impactful advocacy work advancing support, awareness, and initiatives for the epilepsy community.

Listen in as Katie Sale, ABC's Executive Director, sits down with Nichole Goble, Director of Community Initiatives, and Marvell Adams, Jr., CEO of Caregiver Action Network. Learn about their awareness work and the many resources available to all caregivers! 

Join Katie Sale, ABC's Executive Director, catches up with Brandon Staglin, Co-Founder and Chief Advocacy & Engagement Officer of long-time member, One Mind. Discover their innovative advocacy efforts in the mental health space, including their highly attended annual music festival.

Join Katie Sale, ABC's Executive Director, as she sits down with Jon Nelson, a lived experience expert in mental illness. He is a board member of the American Brain Coalition, founded Pulverize the Stigma, and currently works with Motif Neurotech and many others, representing the patient population. We encourage you to tune in, listen, learn, and help us to pulverize the stigma associated with men...

Tune in to hear a conversation between Katie Sale, Executive Director of American Brain Coalition, and Rachel Conant, Senior Vice President of Public Policy, Alzheimer's Association, & Executive Director of Alzheimer's Impact Movement (AIM). Learn about the advocacy work for both and upcoming events and news for 2025. 

Listen in as Katie Sale, ABC's Executive Director, talks with the Association of University Professors of Neurology Board President, John England, MD, and 2nd Vice President, A. Gordon Smith, MD, to discuss the mission and vision of both organizations and how collaborating together makes a great impact. 

Celebrating our 50th Podcast Episode! Join Katie Sale, ABC Executive Director, as she sits down with Michele Oshman, Chief Patient Advocate and Head, Patient Advocacy Center of Excellence, to discuss the long-term collaborative relationship ABC has with the Biotechnology Innovation Organization (BIO). Learn about BIO's daily patient advocacy work and the impact they have in our community. 

May is Mental Health Awareness Month. Tune in to ABC's latest podcast featuring Katie Sale, ABC Executive Director and long-time member National Alliance on Mental Illness (NAMI), with special guest Anita Burgos, PhD, Director of Public Policy and Advocacy. Learn how community collaboration & awareness can drive real change, reduce stigma, and support those impacted by mental health. Don't miss th...

Join Katie Sale, Executive Director of ABC, for a conversation with Jeff Winton, Founder and Chairman of Rural Minds. Discover the history of Rural Minds and learn how they strive to be the informed voice for individuals affected by mental health issues in rural America.

Tune in to hear a conversation between Katie Sale, Executive Director of American Brain Coalition, and Becky Deusser, Executive Director of International OCD Foundation. Learn about the foundation's advocacy work and events coming up in 2025. 

Listen in as Katie Sale, ABC's Executive Director has a conversation with Mary Allen, Co-Founder, President, and CEO of Cure Brain Disease. Learn about how they advocate and educate for those impacted by mental health and how collaboration is assisting them with advancing their mission.  

Join us as we kick off Season 3 of AdvocacyChampions! Listen as Katie Sale, American Brain Coalition's Executive Director, talks with Joe Feldman, Founder & President of Cover My Mental Health. Learn how this organization came to be and their mission to help those impacted in the brain space.