This DownsideUp Life

Heidi and Jenny discuss granting wishes, traveling with family and knowing when to quit a camping excursion.

Heidi and Jenny discuss the gene therapy webinar from Rett Syndrome Research Trust. If you need to get the best updates on graphic design of the webinar slides, we are your source.

Heidi and Jenny discuss summer plans, summer therapies, and Jenny not being in a good place.

Heidi and Jenny discussgetting reviewed. Their feelings about eachother and their friendship.

Heidi and Jenny discuss complex parents appreciating people helping out and creating activities for their kids, but don't be mad if they can't help out.

Heidi and Jenny interview Kourtney Barnum from Rett University. They chat about all the things. Facials, birthdays, education and speech therapy.

Heidi and Jenny have a special guest who has so much to say about special education, growing up with a sister with a disability and building a camp for those with Rett syndrome. Seriously, so much to say, we are going to have this guest back.

Heidi and Jenny met up in Orlando Fl, to run the Disney Princess half marathon. It wasa weekend full of laughter, sweat and tears. Check out how they did. Did they finish? Or was it just too far

Heidi and Jenny bring their neurotypical sons on the podcast to discuss living with a rare disorder. An honest discussion about being a sibling, relating with other siblings and just being honest about their life with Rett Syndrome.

Heidi and Jenny discuss caretaking, sibling resolve and the weight of caretaking on a neurotypical sibling.

After a 6-7 month hiatus. Thats right. 6....7! Heidi and Jenny talk about their 2025 highlights and what they are looking forward to in 2026

Heidi and Jenny discuss summer camps, School ESY and just hanging out all day long for the dog days of summer.

Heidi has had a fun time with Sex Ed . Jenny vents about people just not getting it. Disability rights are at risk, disability moms are mad!

IMO we are Mom MD, but really we are MOM,IMO., OMG., LOL Jenny discusses hospital life and the hot doctors that showed up for Manolia.

Jenny and Heidi discuss AI, boobs and being jealous of others.

Heidi has a birthday. Jenny and Heidi discuss getting older with complex kids. Also, RIP Hermione the chicken.

Jenny goes to cardio pilates and has a realization about her body. Perimenopause and bigger boobs. Neurogene trial update and questions for each other. Good times.

Heidi and Jenny chat about vacations and how great the experience can be. Jenny gets wistful for siblings to play independently. The dichotomy of complex parenting.

Hippos are dangerous animals and having nothing to do with hippotherapy. Also, we have some hot gossip about we have heard about Medicaid.

Heidi and Jenny discuss life changing Medicaid services, differences state by state and how this will impact the disability community.

Jenny bans her self from listening to the rest of The Telepathy Tapes podcast. Heidi hasn't slept.

Heidi and Jenny discuss The Telepathy Tapes podcast, being woo woo and the idea that nonverbal kids have special powers.

Heidi and Jenny discuss preparing for emergencies while living in areas that have natural disasters. Sharing tips from good resources and bad advice from experience. Take a listen. How prepared are you?

Its a New Year. Heidi and Jenny discuss a couple of highlights from 2024. The fires in Los Angeles, Jenny's home for 25 years. Then a look forward to 2025

Holiday gifts ideas, Ellie gets new orthotics and we are gearing up for the end of the year.