SMA News Today
The Spinal Muscular Atrophy Podcast with Kevin Schaefer
Join host Kevin Schaefer as he explores current issues related to SMA through engaging conversations with: • People living with SMA • Medical professionals • Caregivers
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Episodes
Study Says Children With SMA Are at Risk of Weak Bones And Fractures & More Independence
09.09.2019
9:18
How AveXis’ OneGene Program Could Help Families Wanting Zolgensma & Trending Topics
06.09.2019
9:23
Future Work Into Zolgensma, Gene Therapy And Other SMA Treatments & Physical Books
04.09.2019
12:58
#41 - Roundtable Discussion - Discussion for September 2019
03.09.2019
31:28
NORD Honors Industry In Patient Advocates At Rare Impact Awards Gala & Overprotective Parents
02.09.2019
8:28
Anti-Epileptic Keppra Can Be A Candidate For SMA Treatment & Batcave For Personal Space
30.08.2019
8:04
Zolgensma’s Arrival Adds Urgency to SMA Newborn Screening Efforts & Natalie Russo And Her Brother
28.08.2019
9:30
Eurordis' Integrated Care Initiative For Rare Disease Patients & Cooperate With Physical Therapists
26.08.2019
9:04
RNA Molecule miR-23a May Have Therapeutic Role in SMA & From College Writing Course To A Career
23.08.2019
8:52
Zolgensma’s Price And Its 'Cure One, Cure Many' Potential & Concerts Accessibility
21.08.2019
9:01
#40 - Interview With Kellie Cusack
20.08.2019
28:47
High Levels of Alpha-COP Proteins Seems To Ease SMA Severity in Mouse Models & Spinraza For 2 Years
19.08.2019
7:54
The "Rare Barometer” Is Helping Eurordis Shape EU Rare Disease Policies & SMA Community Diversity
16.08.2019
9:04
Zolgensma For SMA Types 1, 2 And 3, More Options On The Way & Angela Titcombe
14.08.2019
11:08
Ontario Patients Are Granted With Wider Access To Spinraza & Current Treatments, Brighter Futures
12.08.2019
8:10
Family Says Zolgensma Saved All of Their Lives; Their Gene Therapy & Tyler Dukes
09.08.2019
8:38
Zolgensma's Potential To Change The Whole Landscape of SMA & Melissa Milinovich's Story
07.08.2019
9:51
#39 - Interview With Jason Bertsch
06.08.2019
33:22
European SMA Advocates Question The EU’s Willingness to Reimburse Zolgensma & Independence
05.08.2019
8:57
Improved Survival And Key Motor Milestones Achieved With Risdiplam & Stress Management
02.08.2019
7:29
Results From Phase 2 Trial of Spinraza in Infants With SMA Support Efficacy And Safety & Sleeping
31.07.2019
9:38
Spinraza Is Showing Long-Term Benefits In All SMA Types & SMA Awareness Month
29.07.2019
9:37
AveXis States Zolgensma Is Showing Strong Efficacy Across SMA Types & Coping With Bad Days
26.07.2019
9:19
Spinraza Continues to Demonstrate Safety and Improvements in SMA Patients & Tips For Giving Hugs
24.07.2019
12:13
Will The National Institute For Health And Care Recommend Spinraza & Treating Each Day As A Blessing
22.07.2019
8:21
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