SMA News Today

The Spinal Muscular Atrophy Podcast with Kevin Schaefer

Science EN ↓ 500 episodes

Join host Kevin Schaefer as he explores current issues related to SMA through engaging conversations with: • People living with SMA • Medical professionals • Caregivers

Author

SMA News Today

Episodes

Embracing The Imaginative Spirit of Halloween & SMA News Today Forums 30.10.2019 5:49

Skye, The First Baby Treated With Zolgensma, Is Getting Stronger & Embracing Halloween 28.10.2019 6:13

Oklahoma Ranks The Lowest On Programs That Are Key To Rare Diseases & Recent Columns 25.10.2019 8:14

SMA News And Perspectives 10 - 23 - 19 23.10.2019 6:00

Rare Disease Groups Seeking Public Support To Renew Newborn Screening Act & Winter Hibernation 21.10.2019 5:49

Baby Girl's Family Brought From The UK to Ohio For Zolgensma Treatment & Maid of Honor 18.10.2019 10:11

Overview Of The SMA Forums And Recent Discussions & Coming-Of-Age Stories And Living With SMA 16.10.2019 6:24

#44 - Roundtable Discussion - Discussion for October 2019 15.10.2019 28:26

Hosts Kevin Schaefer and Michael Morale discuss the latest news regarding SMA therapies Spinraza and Risdiplam, as well as some of our recent columns. Listen here, and share your thoughts in the SMA News Today forums. For information regarding the DEVOTE trial, please click on the following link: https://www.clinicaltrials.gov/ct2/show/NCT04089566?term=NCT04089566&rank=1 Are you interested in...

Teen With Epilepsy Described As Rare Case of SMA & Alternative Options For Seating 14.10.2019 6:46

Additional Space For Zolgensma Production With AveXis Catalent Partnership & Trending Topics 11.10.2019 4:09

Problems With Metabolising Fat Molecules Are Worrisome In SMA Children & Being Inspirational 09.10.2019 9:10

Risdiplam Is Raising SMN Levels In Older Patients In Durable Ways & Dealing With Disappointment 07.10.2019 10:08

Adding Reldesemtiv to Spinraza Improved Muscle Function In An SMA Mouse Model & Finding Humor 04.10.2019 7:58

Prenatal Blood Test For SMA Is Now Available & "Rolling Through The Seasons" 02.10.2019 7:40

#43 - Interview With Jeff Olander 01.10.2019 49:42

Macedonian Gaucher Activist For Rare Disease Patients & Getting Ready For The Cold 30.09.2019 8:30

European Spinraza Label Updated to Reflect Long-Term Benefits & Trending Topics 27.09.2019 7:12

High Chance Of Scoliosis Surgery in Types 1C and 2 & Superheroes With Disabilities 25.09.2019 8:18

Spinraza Gives Babies With Type 1 SMA Hope For a Healthy Life in North Macedonia 23.09.2019 6:57

Phase 2 Trial Shows Presymptomatic Spinraza Treatment to SMA Children Reaching Milestones 20.09.2019 6:51

The World’s First Alport Stamp is a Macedonian Mom’s Latest Win for Rare Disease Patients 18.09.2019 9:04

#42 - Interview With Kyle Harris 17.09.2019 36:27

RNA Therapy Delivered by Viral Vector May Hold Potential to Treat SMA 16.09.2019 8:35

Why Screening Tests For Zolgernsma’s Use Are Necessary & Motivational Post 13.09.2019 8:00

SMA Candidate SRK-015 Shows Promise in Healthy Volunteers & More Independence 11.09.2019 10:04

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The Spinal Muscular Atrophy Podcast with Kevin Schaefer

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The Spinal Muscular Atrophy Podcast with Kevin Schaefer