Rachael Stevenson

The Reverse Rett Podcast

Health EN ↓ 27 episodes

Welcome to the Reverse Rett Podcast, sharing the stories of families living with Rett Syndrome and picking the brains of doctors and researchers working in the field. To find out more about Rett Syndrome visit: https://www.reverserett.org.uk

Be sure to visit the podcast's website and support the creator: www.reverserett.org.uk

Author

Rachael Stevenson

Episodes

Ep 02 Zillah Rainback 17.11.2020 45:55

Have you ever imagined your child owning their own home? Not such an unusual question for most people. But if your child has Rett Syndrome, this sort of every day dream is often out of reach. Or at least, it might feel that way. My guest on the podcast today is Zillah Rainback who managed to achieve exactly that on behalf of her then 19 year old daughter Hannah, who has now lived independently wit...

Ep 01 Catherine Coles 03.11.2020 1:16:12

A diagnosis like Rett Syndrome can be isolating for families as they learn to adjust to their new normal, whilst everyone around them carries on 'business as usual.' In this episode of the Reverse Rett Podcast, I'll be talking to fellow mother to a 25-year-old daughter with Rett who now lives in Spain, Catherine Coles who also happens to be my lifelong friend. From diagnosis, to divorce, to our t...