The POTScast

Zoe was diagnosed with POTS in 8th grade when she started having dizzy spells and shortness of breath. She has adjusted well, and loves to fly 30 feet above the ground doing ribbon aerial work. Great episode! You can read the transcript for this episode here:  https://tinyurl.com/potscast99 Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also help...

What is really causing POTS? Is it a problem in the heart? The brain? The gut? Dr. Lasko believes that lower parts of the brain may not be functioning properly in many with POTS, and that correcting this issue early in life, when possible, could help children avoid developing significant symptoms. You can read the transcript for this episode here:  https://tinyurl.com/potscast98 Please click the "...

Like many POTSies, Mackenzie was a teenager leading an active life when she became ill. It took her 2.5 years and a number of ludicrous diagnoses to finally arrive at POTS. At 20, she is now adjusting to life with chronic illness and surrounding herself with people who support her unconditionally. You can read the transcript for this episode here:  https://tinyurl.com/potscast97 Please click the "...

Jackie developed POTS and other chronic illnesses after surgery on her foot. She delves deeply into her interests, including ways to manage her symptoms. Her optimism is inspiring as she share things that have helped her along the way. Join us for this delightful and inspiring episode! You can read the transcript for this episode here:  https://tinyurl.com/potscast96 Please click the "subscribe" b...

Many POTSies take multiple medications. Join us for a discussion of beta blockers, midodrine, ivabridine, and fludrocortisone - how they work and possible side effects. Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you liked this episode, we hope you will help to support our production costs by...

Dr. Pederson just published a new study looking at assessing depression in people with chronic invisible illness.  The results are both depressing and enlightening. We need our healthcare practitioners and researchers to understand the contamination from many of these scales with somatic (bodily) symptoms that overinflates depression scores for many in our communty. The paper discussed in the epis...

Members of the POTS community gathered in Springfield, Ohio on October 22, 2022 for the 9th Annual Standing Up To POTS 5K/2K, presented by Normalyte and Thrivent. The weather was gorgeous, the POTS community was out in force, and lots of connections were made. We raised more than $36,000 associated with this event that will go toward the Standing Up to POTS Research Fund.  Please click the "subscr...

What does polio have to do with myalgic encephalomyetlitis (ME) and POTS? You'll have to listen to this episode with Dr. Hyde, a top ME expert who has treated ME patients since the 1980s. He also discusses SPECT scans and how they can help to get disability payments for some patients. Nightingale Foundation: https://nightingale.ca/ Book Downloads: https://nightingalepress.ca/collections/all You ca...

Jenna is married and trying to live her best life despite POTS. Symptoms began early, but didn't stop her from playing college volleyball. Napping in odd places is common as she battles severe fatigue. Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you liked this episode, we hope you will help to...

Dr. Beltran explains physiological dosing of vitamin D, leaky gut syndrome as it relates to gluten, and much more in this episode of The POTScast. A real leader in high dose vitamin D therapy, Dr. Beltran explains the many and varied functions of this hormone. Dr. Beltran's book can be found here . You can read the transcript for this episode here:  https://tinyurl.com/potscast91 Please click the...

Many people with POTS also have small fiber neuropathy - the small nerves in their legs are decreased in number and activity. Dr. Saperstein talks about that in the context of COVID and answers several listener questions about migraine headaches, tinnitus, brain fog and more. Join us for this informative chat! You can read the transcript for this episode here:  https://tinyurl.com/potscast90 Pleas...

Anna grew up dancing and wanted to be a pro. After a bout with mono, her legs started giving out randomly. She was diagnosed with POTS and needed to find a new dream: photography. Anna is both inspirational and insightful as she talks about how POTS has impacted her life. Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other pe...

Many like to think about POTS as having three subtypes - hyperadrenergic, neuropathic, and hypovolemic. We discuss these subtypes, their causes, associated symptoms, and treatments that might help. What subtype of POTS do you think you have? You can read the transcript for this episode here:  https://tinyurl.com/potscast88 Please click the "subscribe" button so that you don't miss an episode of Th...

Dr. Reddy is a COVID long-hauler herself. She developed POTS, and symptoms worsened each time she caught COVID. She struggled for a diagnosis, and now is a champion in the clinic and in advocacy for people who develop POTS after COVID infection or vaccine injury. She walks through the theory of how this occurs and a range of treatment options that might help with equal parts compassion and convict...

It took Jamie 12 years to be diagnosed with POTS after the onset of symptoms. She had "remissions" from symptoms in the early years that allowed her to become a firefighter and EMT, positions she can no longer manage. She is starting a new medication, and we hope that it helps her to feel better! You can read the transcript for this episode here:  https://tinyurl.com/potscast86 Please click the "s...

Many people in the POTS community have experienced medical trauma as a patient, caregiver, or sibling. Gaslighting, invasive procedures, and the chronicity of the illness can all contribute. How can you protect yourself from this trauma or deal with it if trauma occurs? Join Dr. Gorman-Ezell in this episode to find out! You can read the transcript for this episode here:  https://tinyurl.com/potsca...

Stephanie was a competitive volleyball player in high school when several concussions sidelined her. Over time, POTS symptoms began to appear and the battle to get diagnosed began. It took several years to find a cardiologist who believed her, but she is back on track to live her dreams. Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps u...

Maddie faints a lot as part of her POTS, which she developed around age 16. She describes getting and training her therapy dog and the deep pressure that helps when she blacks out. Maddie has a great attitude about living with her chronic illness. You can read the transcript for this episode here:  https://tinyurl.com/potscast83 Please click the "subscribe" button so that you don't miss an episode...

Dr. Laila Schenkel is a molecular geneticist who specializes in choline transporters. Comparing this transporter in the skin of one POTS patient with controls, she found that these transporters are fewer and less functional in this POTS patient. Basic science at its best! You can read the transcript for this episode here:  https://tinyurl.com/potscast82 Please click the "subscribe" button so that...

Katherine developed POTS secondary to Lyme disease after a tick bite, causing her to complete her senior year of high school online. When at her sickest, she re-connected with the man she would marry. Find out how by listening to this wonderful episode! Learn more about health coaches at  https://www.standinguptopots.org/healthcoach Please click the "subscribe" button so that you don't miss an epi...

Mary Katherine has developed POTS twice - first as a teen and again after COVID. Her PICC line to get intravenous fluids made lifting heavy objects impossible, especially for a cattle breeder who loves to show cows. Join us for this unique episode! You can read the transcript for this episode here:  https://tinyurl.com/potscast80 Please click the "subscribe" button so that you don't miss an episod...

Hannah has Lyme and POTS, and after working for others for a few years founded her own company - Chronically Capable. Featured by the Wall Street Journal and Forbes magazine, her company matches chronically ill people with potential employers with the need for accommodations front and center. Join us for this wonderful interview! Her website is wearecapable.org. You can read the transcript for thi...

Claire developed POTS after a back injury. Work as a paramedic was triggering, and she found that she had to dig herself out of a dark hole. Volunteering for The POTS Foundation in Australia was part of growing into her new reality. Any Aussies out there looking to connect? Check out www.potsfoundation.org.au Please click the "subscribe" button so that you don't miss an episode of The POTScast. Su...

Abby is a college sophomore with a love of music and crocheting. Like many, she put the pieces together to find her diagnosis. Abby is resilient despite the obstacles - finding friends who are supportive and taking care of herself. This is an inspiration episode of the POTS diaries! You can read the transcript for this episode here:  https://tinyurl.com/potscast77 Please click the "subscribe" butt...

Dr. Boris is one of the top pediatric POTS docs in the world, and we were fortunate to have him share his thoughts on getting these highly achieving kids back to living their life. He covers a lot of ground - misdiagnosis of POTS as anxiety/depression, impact of POTS on development, mitochondrial disorders and so much more. Want to learn more about Dr. Boris? Check him out at https://www.jeffreybo...