The Parkinson's Podcast

The practices of mindfulness, meditation, and relaxation, beneficial to everyone, can be particularly beneficial for people living with Parkinson's. In this conversation with Dr. Sarah Mulukutla and Dr. Evelyn Ooi, we talk about the value of learning these psychological, emotional, and spiritual tools to manage the challenges that come with living with Parkinson's. Are you loving the Parkinson's P...

In this episode, Greg Ritscher discusses:   How he transferred the skills that made him successful in his career to live well with Parkinson's   His experience retiring and moving   The process of writing a book   P reparing for DBS   The various ways Greg 's found to give back and spread Parkinson's education and resources to those in the panhandle of Florida   and more! We hope you enjoy it! For...

In this episode, Karen Frank, a person living with Parkinson's talks about:   How using cannabis to ease her anxiety took her down an unexpected path   How she got out of an unhealthy situation   Her experiences with depression and rehab   Her relationships, community, and living with Parkinson's   and more! We hope you enjoy it! For related links and resources, the video recording, and more visit...

In this episode, Dr. Roseanne Dobkin discusses:   Depression and anxiety in people with Parkinson's   How to connect with a mental health professional   The current landscape of telehealth for mental health   What a first session with a mental health professional might look like   The definition of cognitive behavioral therapy and when it might be a fit   Managing anxiety specifically about Parkin...

In this episode, Kat Hill and Nancy Peate talk about:    How they met at precisely the right place and time   Their lives with and without Parkinson's   Their path through co-authorship of "On Being Well with Chronic Illness: A Guide to Resilience and Joy with Your Diagnosis."   What they do to live well with Parkinson's And more! We hope you enjoy it! For the mentioned links, resources, the video...

In this episode, registered dietician and nutritionist Jess Schroeder discusses :   Weight loss and weight gain   Constipation   Increased sugar cravings   Gastric emptying   The "right" diet for Parkinson's   Troubles with chewing and swallowing   Timing of food intake   Types of food for exercise   Food and its relationship to sleep   Eating well in assisted living and/or skilled nursing facilit...

In this episode, professional dancer, Founder of PD Movement Lab, and person with Parkinson's Pamela Quinn talks about:    Her story of diagnosis   How she followed her own gut in her management of the diagnosis    Her balance of using medications and lifestyle choices to manage her Parkinson's   Her organization, PD Movement lab , and its class/course offerings   The importance of taking charge o...

In this episode, Dr. Salima Brillman discusses:    The what and why of nOH (neu rogenic orthostatic hypotension)   Treatments for nOH   I n the moment tricks for managing nOH episodes   How to talk to your doctor about your symptoms   The effect of food and lifestyle choices on nOH   and more! We hope you enjoy it Click here for the accompanying blog post to this episode, where you will find any m...

In this episode, Dr. Aaron Haug discusses :   How Parkinson's is diagnosed   The non-mo tor symptoms of Parkinson's   What's happening in the brain to cause Parkinson's symptoms   Common initial treatment options   The team approach to treating Parkinson's   Lifestyle changes to manage Parkinson's   Which online resources to trust   Why consider participating in research   The most important advic...

Episode Description:     In this episode, panelists from our monthly Living with Parkinson's Meetup discuss:   The what and why of falling and freezing of gait in Parkinson's   The panelists' experience with falling   Strategies to prevent falling   How music can be used to prevent falls   Living alone and falling   An overview of balance issues and what to do about them   and more! We hope you en...

In this episode, Terri Pease, a care partner to her husband Peter until his passing talks about:   Letting go of the feeling of "mutuality"   Learning to embrace reality   Why Parkinson's is a couple's disease   How to adapt when the plan you had for your life changes   The difference between self-care and after care   Handling anger   and more! We hope you enjoy it! For mentioned links, additiona...

In this episode, Dr. Joanne Hamilton discusses:   The difference between a bad mood and a clinical mood disorder   Not pathologizing normal emotions   Depression versus a typical grieving period after receiving a diagnosis   Depression versus anxiety and the symptoms of each   Suicidal ideation and signs to look for that indicate seriousness   Who to seek treatment from and where   Exercise and so...

In this episode, Jan and her husband, Bill Grimes, share:   How their life has changed since Jan got diagnosed with Parkinson's   How Jan redefined her identity as a pianist and full-time LSU faculty when symptom severity started to increase, and she chose to retire   How Jan sees Parkinson's as a blessing   Her newly defined hobbies and passions, including sewing and poetry   How Jan and Bill wor...

In this episode, Dr. Dylan Wint, Director of the Cleveland Clinic Center for Brain Health and a board-certified physician in Neurology, Psychiatry, Behavioral Neurology, and Behavioral Psychiatry, discusses:   The common misunderstanding that psychosis is always connected to mental health conditions like schizophrenia and bipolar disorder   The connection between sleep and psychosis   Talking to y...

In this episode, Dr. Dylan Wint, Director of the Cleveland Clinic Center for Brain Health and a board-certified physician in Neurology, Psychiatry, Behavioral Neurology, and Behavioral Psychiatry, discusses:   The definition of Parkinson's disease psychosis and what causes it   The difference between complex, simple, insightful, and non-insightful hallucinations   Common types of delusions and hal...

In this episode, the Living with Parkinson's Meetup panelists discuss:   The importance of self-compassion   Asking for help   Symptoms worsening during menstruation   Finding things that reinvigorate you   Suicidal ideation   Negative self-talk, mindfulness, and breathing   and more! We hope you enjoy! Visit the blog post for this episod e here to find related resource s, the video recording , an...

In this episode, the Living with Parkinson's Meetup panelists discuss:   The fact that Parkinson's does progress, and treatments and techniques begin to lose their efficacy   The need to slow down and do less due to Parkinson's symptoms   The importance and art of pivoting, a necessary skill when you have a progressive disease   The urge to talk less and begin to isolate when symptoms worsen   The...

In this episode, Heather Kennedy, a person with Parkinson's who has been living with the diagnosis for 12 years discusses:   Three articles she's recently written called "Gifted" , " Poison for Breakfast" , and " Sweating it Out"   Her journey with Deep Brain Stimulation (DBS)   The difficulty of unpredictable ON and OFF times in Parkinson's and how those times impact relationships   How her views...

In this episode, Living with Parkinson's Meetup panelists, Sree Sripathy, Kevin Kwok, Tom Palizzi, Kat Hill, Robynn Moraites, and Heather Kennedy as well as guest Bradley McDaniels discuss:  The research connecting loneliness and quality of life   Common reasons you might become lonely   How to find meaning and community The feeling of wanting to "give up" with Parkinson's   Ways to get involved  ...

In this episode, panelists Yasar Torres-Yaghi (movement disorder specialist), Amanda Craig (occupational therapist), and Joe Van Koeverden (person with Parkinson's), discuss how to manage motor symptoms during OFF times in Parkinson's. In particular they discuss: What is an OFF time?    Distinguishing OFF times from other "feelings"   The impact of stress on OFF times   How to adapt your home for...

In this episode, Dr. Jay Alberts discusses: The connection between cognition and freezing of gait What you can do to improve your cognitive and physical skills   Music's impact on walking and freezing of gait   Deep brain stimulation    The importance of managing postural instability and freezing of gait    Assistive devices    LSVT Big programming   Dizziness and postural instability   Festinatio...

In this episode, Living with Parkinson's Meetup (formerly the YOPD Council) panelists discuss:   Common hurtful phrases they hear from people without Parkinson's including, "I know how you feel" and "everybody's got something"   The importance of "listening for the love"   The fact that many hurtful comments come from the people we love and can often  stem from misunderstanding   How to use hurtfu...

In this episode, movement disorder specialist, Dr. Suketu Khandhar discusses: The neurological cause of motor symptoms Slowness of gut The subtypes of Parkinson's Toe curling dystonia How to best prepare for your neurologist/movement disorder specialist visit The link between the severity of motor symptoms and non-motor symptoms The progression of motor symptoms Exercise to improve motor symptoms...

In this episode, author, filmmaker and producer, and retired broadcast journalist, Dave Iverson shares: Why he chose to write the book Winter Stars  about his journey as a caregiver rather than his own Parkinson's diagnosis   The roller coaster ride of navigating the emotional states that come along with caregiving   The irrelevance of the truth and being right when dealing with caregiving   Careg...

In this episode, panelists Juwairiya Syed, Bud Rockhill, Barb Ankenman, Mary Gail Anderson, John Paul Lederach , and Angela Robb discuss: Maintaining identity amidst caregiving   The power of gratitude    Communication with your person with Parkinson's   Being the care partner for a parent with Parkinson's   Involving others in the care partner experience    Not feeling selfish about setting bound...