The Parkinson's Podcast

Learn more about Parkinson's and find support: https://dpf.org     In this episode of the Parkinson's Podcast, Chris Krueger talks with Linda English, David Dietz, and Rachel Ritter about cycling on gravel roads while living with Parkinson's.   This podcast was produced in Partnership with Dirty Free Hub, a non-profit organization that provides information about gravel cycling routes in 10 states,...

Soccer and Parkinson's may not seem like an obvious connection—but for a growing number of people around the world, the beautiful game offers far more than exercise.   In this episode of the Parkinson's Podcast, Chris Krueger talks with Keith Sides about his experience participating in a Walking Soccer for Parkinson's program. Together, they discuss balance, coordination, confidence, community, an...

Learn more about Parkinson's and find support: https://dpf.org In part three of this three-part series on Parkinson's and the senses, the panel covers vision changes like difficulty driving at night, light sensitivity, depth perception, and how DBS adjustments can affect focus. They also discuss vertigo, dizziness, and the urinary urgency that many people with Parkinson's experience but rarely tal...

Learn more about Parkinson's and find support: https://dpf.org In part two of this three-part series on Parkinson's and the senses, the panel discusses how Parkinson's affects hearing, touch, and the ability to handle busy environments. They cover brain processing sound slower, overstimulation in noisy and crowded places, proprioception and not knowing where your body is in space, the challenge of...

Learn more about Parkinson's and find support: https://dpf.org In part one of this three part series on Parkinson's and the senses, Amber, Chris, Sree, Kat, Stan, Larry, and Kristi talk about how Parkinson's affects the senses we don't always think about. The panel digs into smell and taste, from olfactory hallucinations and not knowing if you smell to craving stronger flavors, safety concerns aro...

Learn more about Parkinson's and find support: https://dpf.org In the series finale of the Parkinson's Podcast Unfiltered, hosts Heather Kennedy, Kat Hill, and Chris Krueger answer audience questions, including how to handle well-meaning strangers who grab you when you're frozen or struggling to walk. The conversation turns to what they're each grateful for after years of living with Parkinson's,...

Learn more about Parkinson's and find support: https://dpf.org In this episode, Kat's husband Ken joins the panel to talk through the realities of planning ahead, from living trusts and hard family conversations to knowing when your plan needs to change. The conversation also takes on the language of "fighting" Parkinson's, and why both Kat and Ken have moved toward something more like partnership...

Learn more about Parkinson's and find support: https://dpf.org In part two, Dr. Bas Bloem and Polly Dawkins tackle some of the most pressing topics in the Parkinson's community. They address sexual health, levodopa phobia head-on, share breakthrough research on intermittent hypoxia, and discuss the overlooked connection between gut health and medication effectiveness. This episode offers both cutt...

Learn more about Parkinson's and find support: https://dpf.org In this first part of our two-part conversation, Dr. Bas Bloem and Polly Dawkins discuss why a holistic approach to Parkinson's care matters. They explore the latest evidence on exercise as a disease-modifying treatment, the critical role of supplements and nutrition, and how optimizing every aspect of your life—from sleep to stress ma...

In this episode of the Parkinson's Podcast Unfiltered, the group is joined by a special guest to respond to a listener's question about how their relationship with Parkinson's has changed over time. Together, they talk through the different ways they have named and understood Parkinson's since diagnosis, including ideas of fighting, endurance, acceptance, and daily negotiation. The conversation mo...

In this episode of the Parkinson's Podcast, Chris Krueger talks with a clinical research team from University of Toronto about how the clinical trial process works, how participants can have the best experience in a trial, and why a team approach to trials is necessary and good. In this episode, you'll hear from Dr. Alfonso Fasano, Dr. Arturo Abundes Corona, Sara Naghdlou, a clinical research coor...

Occupational therapist and aging-in-place expert Carol Chiang joins us to discuss her new book, Age in Place or Find a New Space. Carol explains why meaningful interactions—not just safety—belong at the center of planning for life with Parkinson's, and how "the choices you make today become the consequences you live with tomorrow." In this podcast episode, Carol discusses the importance of early-s...

In this episode of the Parkinson's Podcast Unfiltered, hosts Heather Kennedy and Kat Hill, along with Chris Krueger, honor their late friend Wayne Gilbert and explore the challenging distinction between fatigue and apathy. They offer practical advice for managing energy levels, including the counterintuitive insight that more movement can actually reduce tiredness, and share tips for grandparents...

In this episode of the Parkinson's Podcast, l earn about  gene therapy for   Parkinson's , including common misunderstandings and ongoing research about it.   This episode  contains  some technical terms and abbreviations. For your  convenience ,  here is  a short list  o f definitions that might be helpful.   AADC  – Aromatic L-Amino Acid Decarboxylase: An enzyme that helps make dopamine  (not a...

In this episode of The Parkinson's Podcast, Foundation Program Manager Beau Boughamer talks with neurologist Vanessa Hinson and Helen Power, a person living with Parkinson's, about the sport that's sweeping the country—and transforming life with Parkinson's.  Dr. Hinson, a movement disorder specialist at the Medical University of South Carolina, shares how pickleball supports balance, coordination...

In this episode, we talk with Dr. Aaron Haug about what the terms ON and OFF mean in the context of Parkinson's, what ON-OFF fluctuations are, and how to work with your doctor to help manage them. Dr. Haug is a movement disorder specialist based in Englewood, Colorado.  Sign up for updates on webinars, events, and resources for the Parkinson's community—delivered to your inbox. https://dpf.org/new...

Sign up for updates on webinars, events, and resources for the Parkinson's community—delivered to your inbox. https://dpf.org/newsletter-signup In the final episode of this three-part series, Connie Carpenter Phinney and Dr. Mark Mapstone explore the emotional and cognitive changes that can occur as Parkinson's progresses. They talk openly about issues like apathy, anxiety, executive function decl...

Sign up for updates on webinars, events, and resources for the Parkinson's community—delivered to your inbox. https://dpf.org/newsletter-signup In this episode, Connie and Dr. Mapstone dive into the role of neuropsychology in Parkinson's care. They explain what a neuropsychological evaluation is, what to expect during an office or virtual visit, and how results can help guide treatment, daily plan...

Sign up for updates on webinars, events, and resources for the Parkinson's community—delivered to your inbox. https://dpf.org/newsletter-signup In the first episode of our three-part series about neuropsychology and Parkinson's, Connie Carpenter Phinney and Dr. Mark Mapstone explore how brain chemistry, especially dopamine, relates to thinking, movement, and mood in Parkinson's. They break down ke...

Sign up for updates on webinars, events, and resources for the Parkinson's community—delivered to your inbox. https://dpf.org/newsletter In this episode of the Parkinson's Podcast Unfiltered, hosts Heather, Kat, and Chris tackle one of the toughest questions of this season of Unfiltered: how to manage apathy and depression in advanced Parkinson's while also navigating a healthcare desert. This epi...

To subscribe to our podcast and YouTube channel visit: https://www.youtube.com/@davisphinneyfdn/podcasts More people with Parkinson's are impacted by the LRRK2 (often pronounced "Lark two") gene than you might expect. The NEULARK study is a phase II clinical trial designed to investigate whether a new treatment being researched, NEU-411, can slow disease progression and improve quality of life for...

To subscribe to our podcast and YouTube channel visit: https://www.youtube.com/@davisphinneyfdn/podcasts Heather, Kat, and Chris share their experiences with accessibility and travel challenges while living with Parkinson's. They dive into attention and focus, including what it's like to live with both Parkinson's and ADD. The conversation also covers the realities of freezing of gait—from how it...

To subscribe to our podcast and YouTube channel visit: https://www.youtube.com/@davisphinneyfdn/podcasts In this episode of The Parkinson's Podcast, we feature excerpts from our July 2025 Care Partner Meetup. In this meetup, Kristin Gustashaw, a registered dietician at Rush University Medical Center, shares real-world advice about food, meds, digestion, and supplements to help care partners and pe...

To subscribe to our podcast and YouTube channel visit:  https://www.youtube.com/@davisphinneyfdn/podcasts This episode of the Parkinson's Podcast features the full, unedited audio from a Live Well Today Webinar. In this episode, Dr. Greg Pontone discusses the effects that Parkinson's can have on mental health, including why mental health related symptoms occur, how they impact daily life, and what...

To subscribe to our podcast and YouTube channel visit: https://www.youtube.com/@davisphinneyfdn/podcasts This episode of the Parkinon's Podcast features the full, unedited audio from a Live Well Today Webinar. During this live webinar, Dr. Corcos, Professor of Physical Therapy and Human Movement Sciences, shared insights from decades of research focused on the benefits of exercise for people with...