The HDSA Podcast

Send us Fan Mail Allison couldn’t make it to Convention, so Tam and Maryann are filling her in on everything she missed! From powerful sessions and community moments to key updates, inspiring stories, and behind-the-scenes highlights, this episode recaps the energy, connection, and hope that made this year’s HDSA Annual Convention so meaningful.  Don't forget to follow us on social media!

Send us Fan Mail In this episode of Let’s Talk About HD , hosts Tam Maiuri and MaryAnn Emerick are joined by Paul, Hannah, Rachel, Emily, Jenna, and Mariana for a meaningful conversation about Huntington’s disease, community, connection, and the experiences that shape the HD journey. Together, they share personal perspectives, reflect on the importance of support, and highlight the power of open c...

Send us Fan Mail Let’s Talk About HD Awareness Month with Tam, Allison & MaryAnn In this episode of Let’s Talk About HD , we recognize Huntington’s Disease Awareness Month with a meaningful conversation featuring Tam, Allison, and MaryAnn. Together, they reflect on the importance of raising awareness, and discuss how storytelling, advocacy, and community support help shine a light on the exper...

Send us Fan Mail Meet the new hosts of the HDSA Podcast: Tamara Maiuri, PhD, Associate Director of Research and Patient Engagement; Allison Bartlett, Esq., Senior Manager of Disability Programs; and MaryAnn Emerick, LMSW, Senior Manager of Youth & Community Services. Together, they bring expertise, insight, and a deep commitment to the Huntington’s disease community.  Don't forget to foll...

Send us Fan Mail In this insightful episode, Neekia Davis, Teresa Srajer, Beth Hoffman, and Dom Thomas dive into the importance of volunteering and how you can get involved in supporting the Huntington’s Disease Society of America (HDSA). They share personal experiences, tips for making an impact, and why volunteers are the heart of the organization. Whether you're looking for ways to give ba...

Send us Fan Mail In this insightful episode, Neekia Davis and Phyllis Foxworth dive deep into the highlights and critical discussions from the ELPFDD Meeting on November 13th. They break down the key takeaways, and provide an inside look at the collaborative efforts shaping the next steps. Join us as they outline action plans, share community feedback, and discuss strategies for addressing the pre...

Send us Fan Mail In today's episode, we're thrilled to take a deep dive into POWERHD with special guests Erika Boulavsky, MSW, LCSW, Community Outreach Specialist at HDReach, and MaryAnn Emerick, LMSW, Manager of Youth & Community Services at HDSA. Tune in for an insightful conversation! Don't forget to follow us on social media!

Send us Fan Mail  In this episode, HDSA's President & CEO Louise Vetter is joined by Phyllis Foxworth and Dr. Victor Sung to chat about the changing landscape of research.  Phyllis is the Senior Manager, Advocacy at HDSA Dr. Sung is the Director of the HDSA Center of Excellence at The University of Birmingham, Alabama, and the former chair of the HDSA Board of Directors.  To learn more ab...

Send us Fan Mail In this episode, HDSA's President & CEO Louise Vetter is joined by Leora Fox, PhD and Kelly Andrew to chat about Somatic Instability and how to get involved in research opportunities. Leora is the Assistant Director of Research and Patient Engagement at HDSA. Kelly is the Coordinator of Research and Mission Programs at HDSA.  To learn more about Huntington's disease,...

Send us Fan Mail In this episode HDSA's President & CEO Louise Vetter is joined by Leora Fox, PhD and Kelly Andrew. Leora is the Assistant Director of Research and Patient Engagement at HDSA. Kelly is the Coordinator of Research and Mission Programs at HDSA.  To learn more about Huntington's disease, please visit HDSA.org.   Don't forget to follow us on social media!

Send us Fan Mail In this episode HDSA's President & CEO Louise Vetter is joined by MaryAnn Emerick;   Dr. Jim Gusella and Dr. Marcy MacDonald. Maryann is  HDSA's Manager, Youth & Community Services and an HD family member. Dr. Gusella is a Professor of Neurogenetics at the Department of Genetics at Harvard Medical School. Dr. MacDonald is a Professor of Neurology at Mass General...

Send us Fan Mail In Episode #2, Louise Vetter is joined by Chris Cosentino & Robi Blumenstein.  Chris Cosentino is HDSA's Director of Marketing & Communications and has been with the Society since 2014.  Robi Blumenstein is President of CHDI and in 2002 organized CHDI Management to provide management services to non-profit organizations engaged in Huntington’s disease research. Don&ap...

Send us Fan Mail In this episode HDSA's President & CEO Louise Vetter is joined by Arik Johnson, PsyD and Teresa Srajer. They discuss the launch of the new HDSA Podcast, the 38th Annual HDSA Convention and a behind-the-scenes look at the Huntington's Disease Society of America.  Dr. Johnson is HDSA's Chief Mission Officer and former Chair of HDSA's Board of Trustees.  Teres...