The Cure CERT1 Podcast

We're back with some serious encouragement to enroll in our upcoming CERT1 Natural History Study! Please email us at admin@lottieslight.org for any questions. Want to share your story? please go to: https://lottieslight.org/share/ to share your child's photos and story and we will post it soon to instagram and facebook. Referenced in this episode: the SYNGAP1 podcast: https://open.spotify.com/epis...

September 21, 2025 We are back with a new episode, and lots of updates! Episode 4 covers volunteer and fundraiser highlights, a recap of our CERT1 Splash success, spotlight of our 1st annual CERT1 consortium, and information/resources on research and registration efforts. Featured links below! >> To register: https://lottieslight.org/register >> To get in touch with the researchers and enroll in t...

April 23, 2025 – Podcast 3 REGISTER WITH OUR FOUNDATION (CERT1 FAMILY, FRIENDS, & SUPPORTERS): https://lottieslight.org/register/ VOLUNTEER YOUR TIME AND TALENTS: https://lottieslight.org/volunteer/ CONSORTIUM Hear from the lead CerTra Syndrome (CERT1) researchers SUMMER FUNDRAISER Cert1 Splash Dates and Details coming soon NEWLY DIAGNOSED? Resources for families here: https://lottieslight.org/new...

Wednesday, March 6, 2025 – Podcast 2 RARE DISEASE MONTH CERT1 STORIES – Thank you Javier, Willy T, Harris, Andrew, Emily Norah, Emily, Gideon. See their stories on Facebook: https://www.facebook.com/lottieslight See their stories on Instagram: https://www.instagram.com/lottieslightfoundation/ SHARE YOUR STORY: https://lottieslight.org/share/ REGISTER WITH OUR FOUNDATION (CERT1 FAMILY, FRIENDS, & S...

Wesley and Samantha Rogers will be hosting regular podcasts in hopes to keep all those in the CERT1 community up to date regarding happenings at Lotties Light Foundation. We hope that together, we will illuminate a cure for all those affected by CERT1 or CerTra Syndrome. This is our newsletter to you. Please feel free to reach out to us if you have questions regarding this information or want to a...