The Couple Shift | An ALS Story

In this special episode we share both of our perspectives on life after a tracheostomy. Why did Jules decide to go for it? How easy is it for MA to take care of it? What has changed? All this and more. It feels good to be back! Thanks for listening. With love, Jules & MA Instagram: @teamhighoctanejules Website: www.teamhighoctane.com ✉️ Email us: TCS@mariaaleandra.com ALS, MND, Terminal Illnes...

This is another solo quick episode I created with my AI cloned voice to talk about our challenges that we keep running into. Thank you for seeing us. With love, Jules & MA #RightHereRightNow 🎧 Please subscribe, share with friends and leave a review. ⚡️ Follow us on Instagram: @teamhighoctanejules 🧢 Check out our Website: www.teamhighoctane.com ✨ Check out MA's website: https://mariaaleandr...

It's a new beginning for me. It is just AI voiced Jules. This short episode really challenged me. It is one thing to write out your thoughts. Its another thing to do with your eyes alone and then edit it. Thank you for seeing us. With love, Jules & MA #RightHereRightNow 🎧 Please subscribe, share with friends and leave a review. ⚡️ Follow us on Instagram: @teamhighoctanejules 🧢 Check out our...

Permission to feel, all of it. Learning how to process our emotions as a couple has been a cornerstone of our growth - the good, the painful and everything in between. With ALS in the mix, we've learned powerful lessons about what it takes. In this episode, we continue to experiment and stumble through new beginnings, thanks for coming along. Your support makes a difference! Like, comment, rate, s...

History in the making perhaps? Either way, we are THRILLED to be back with another episode. Here's to shifting, and then shifting again. Join us for this brand new version of our podcast. Jules takes his new AI voice for a spin, don't miss it. Your support makes a difference! Like, comment, rate, subscribe, share share share. Thank you, Jules & MA #RightHereRightNow 🎧 Please subscribe, share...

The other day a listener asked us... but what's your word of the year this year?? Here's the answer :) Plus a few highlights and updates from the past couple of weeks. As always, thanks for being here. And to all our new friends, welcome. ALS won't stop us. #RightHereRightNow 🎧 Please subscribe, share with friends and leave a review! ⚡️ Instagram: @teamhighoctanejules 🧢 Website: www.teamhighoct...

Did you miss us? It's so good to be back! Ever been caught in an awkward moment in conversation, listen in to find out why those awkward moments matter. We also talk about Tobii etiquette and how to speak to someone who uses an eye gaze device or who has trouble communicating. ALS won't stop us. #RightHereRightNow 🎧 Please subscribe, share with friends and leave a review! ⚡️ Instagram: @teamhigh...

What happens when a simple cold sends you to the ER? This is life with ALS. Join us a we take you through a few recent milestones, both joyful and sorrowful. It feels so good to return to one of our favorite places, in front of the microphone, looking into each other's eyes and sharing all of the feels that accompany this tender and beautiful life we life. We share, we cry, we laugh. The Couple Sh...

We're back for an update, sharing honest thoughts that we hadn't even expressed to each other until this moment. Thanks for staying connected with us. ALS won't stop us. 🎧 Please subscribe, share with friends and leave a review! ⚡️ Follow us our brand new Instagram account! @teamhighoctanejules 🧢 Get your merch: www.teamhighoctane.com 📣 MA's DC speech: https://youtu.be/6th6Z5NLlIQ ❤️ GoFundMe:...

Lots has happened - from our new beer to the comedy fundraiser to media interviews and a meeting with Conan O'Brien!! (huge bucket list item for Jules!). We've also been through a tougher than expected period as a couple and have welcomed help at home to support Jules care routine. Here's a quick recap of what's been happened - and what it means to be Recharged. ALS won't stop us. 🎧 Please subscr...

Jules shares his post PEG (feeding tube) experience, what pisses him off about hospitals and ALS plus our thoughts on the new Michael J. Fox documentary. ALS won't stop us. 🎧 Please subscribe, share with friends and leave a review! ⚡️ Follow us our brand new Instagram account! @teamhighoctanejules 🧢 Get your merch: www.teamhighoctane.com 🎤 Comedy fundraiser: https://tinyurl.com/5ctshaxv 📣 MA'...

It's risky to live 'in the moment' it requires courage, vulnerability and flexibility. It requires having an open mind and keeping an open heart. 'It's not about the feeding tube.. it's about what happens after, what we make of each moment'. ~ Jules ALS won't stop us. 🎧 Please subscribe, share with friends and leave a review! ⚡️ Follow us our brand new Instagram account! @teamhighoctanejules 🧢...

What started as a casual update became one of our favorite podcast episodes to date. ALS won't stop us. 🎧 Please subscribe, share with friends and leave a review! ⚡️ Follow us our brand new Instagram account! @teamhighoctanejules 🧢 Get your merch: www.teamhighoctane.com 🎤 Comedy fundraiser: https://tinyurl.com/5ctshaxv 📣 MA's DC speech: https://youtu.be/6th6Z5NLlIQ ❤️ GoFundMe: https://gofund...

May. Is. Jam. Packed. Plus... We moved!! Because... ALS won't stop us. Items mentioned: - Our fab graphic designer sister in law: https://instagram.com/ale.y.su.arte?igshid=NTc4MTIwNjQ2YQ== - Comedy producer: https://instagram.com/laughwitheli?igshid=NTc4MTIwNjQ2YQ== 🎧 Please subscribe, share with friends and leave a review! ⚡️ Follow us our brand new Instagram account! @teamhighoctanejules ❤️ G...

Welcome to another beautifully real episode, filled with life's little updates and sweet realizations of what moves us forwards. Because... ALS won't stop us. Book mentioned in the episode: 'A Fresh Cup of Counseling' by Thomas L. Norris (Order here: https://tinyurl.com/4s8m63ya) 🎧 Please subscribe, share with friends and leave a review! ❤️ GoFundMe: https://gofund.me/77ead571 🦖 Our family vlogs...

Who does Jules really want to meet and why? It's a fun short episode! Thanks for listening, supporting and subscribing. Remember to live Right Here, Right Now. ALS won't stop us. 🎧 Please subscribe, share with friends and leave a review! ❤️ GoFundMe: https://gofund.me/77ead571 🦖 Our family vlogs: https://youtu.be/UTwd_0EkFvk ✨ MA's website: https://mariaaleandra.com/ ✉️ Email us: TCS@mariaalean...

How do you find real happiness? Is it in the big 'accomplishments' or in the subtle day to day moments? ALS won't stop us. Interview mentioned in the episode, watch here: https://youtu.be/3W7mLo_11Uo 🎧 Please subscribe, share with friends and leave a review! ❤️ GoFundMe: https://gofund.me/77ead571 🦖 Our family vlogs: https://youtu.be/UTwd_0EkFvk ✨ MA's website: https://mariaaleandra.com/ ✉️ Ema...

Jules cracks open in this deeply personal episode. ALS won't stop us. 🎧 Please subscribe, share with friends and leave a review! ❤️ GoFundMe: https://gofund.me/77ead571 🦖 Our family vlogs: https://youtu.be/UTwd_0EkFvk ✨ MA's website: https://mariaaleandra.com/ ✉️ Email us: TCS@mariaaleandra.com ⚡️ Follow Jules on IG: @highoctanejules

What do Valentine's Day, spa treatments, ladies nights and gold have in common? You can say this episode is one of our most authentic yet, lol. Is it a podcast or is it couples therapy? We'll take both! ALS won't stop us. 🎧 Please subscribe, share with friends and leave a review! ❤️ GoFundMe: https://gofund.me/77ead571 🦖 Our family vlogs: https://youtu.be/UTwd_0EkFvk ✨ MA's website: https://mar...

Why is love memory foam? You simply have to listen :) ALS won't stop us. 🎧 Please subscribe, share with friends and leave a review! ❤️ GoFundMe: https://gofund.me/77ead571 🦖 Our family vlogs: https://youtu.be/UTwd_0EkFvk ✨ MA's website: https://mariaaleandra.com/ ✉️ Email us: TCS@mariaaleandra.com ⚡️ Follow Jules on IG: @highoctanejules

Do you have a 'word of the year'? We've each been picking a theme for the past few years, each of us individually plus a word as a couple. This year's theme is urging us to expand into new territory. We also chat about a recent ALS Symposium and the beauty of insurance. Mini rant ahead! Thanks for listening! ALS won't stop us. 🎧 Please subscribe, share with friends and leave a review! ❤️ GoFundMe...

Honest moments between a husband and wife... from toilet seats to caregiver guilt to ALS symptoms to 6 year old shenanigans and more. ALS won't stop us. 🎧 Thanks for listening, subscribing, sharing with friends and leaving a review. ❤️ GoFundMe: https://gofund.me/77ead571 🦖 Our family vlogs: https://youtu.be/UTwd_0EkFvk ✨ MA's website: https://mariaaleandra.com/ ✉️ Email us: TCS@mariaaleandra.c...

Are you celebrating your good days? Jules once again brings his beautiful perspective and humor, plus he shares all about his new favorite tv show (worth watching for incredible storytelling). ALS won't stop us. 🎧 Thanks for listening, subscribing, sharing with friends and leaving a review. ❤️ GoFundMe: https://gofund.me/77ead571 🦖 Our family vlogs: https://youtu.be/UTwd_0EkFvk 👉 Milton's IG: h...

'Be brave enough to be bad at something new'. In this episode we talk about motivation, fear, purpose and what happens when Jules falls (it's happened a few times). ALS won't stop us. 🎧 Thanks for listening, subscribing, sharing with friends and leaving a review. ❤️ GoFundMe: https://gofund.me/77ead571 👉 Milton's IG: https://www.instagram.com/the_milton_show ✉️ Email us: TCS@mariaaleandra.com To...

What happens when you venture into completely unknown terrain? You grow, you face your fears, you stretch, you're never the same again. Listen in as we share one of our most daring adventures to date. Notes: We reference our interview with Chris Beckette and Taylor Lew, if you want to listen, look for Episode 134. ALS won't stop us. 🎧 Thanks for listening, subscribing, sharing with friends and le...