Bo Bigelow

Stronger Every Day

Kids EN ↓ 114 episodes

I quit my law job to be at home with my kids. Turns out our daughter Tess has a rare genetic disorder called Hao-Fountain Syndrome, or USP7. She's different. And now, so is everything else. #USP7 #HaoFountainSyndrome #autism

Be sure to visit the podcast's website and support the creator: www.portlandrootsmedia.com

Author

Bo Bigelow

Episodes

SED 563: Tess the Freshman 29.10.2025 8:42

This week, we're talking about Tess's high school experience. She's been a freshman for about 8 weeks now, so I'll tell you how it's been for her so far.

SED 562: The Big Four 22.10.2025 11:57

There are four little things you can do as a Hao-Fountain patient to move things forward in a huge way. I'm gonna tell you how these four went for Tess and why it matters.

SED 561: We Interrupt this Party to Bring You A Special Bulletin 15.10.2025 9:21

Tess wanted something recently, and she used all her abilities to let me know what it was.

SED 560: Up the Hearts 08.10.2025 6:06

We took Tess on a special outing, somewhere she'd never been before.

SED 559: Nashville Part 2 of 2 01.10.2025 16:50

It's that time of year, and we just held our annual Hao-Fountain conference. Hao-Fountain patients and families:  please SIGN UP for our October 2nd Zoom about MATRIX, where we can help you sign up for Matrix and answer your questions. Sign up here:   https://usp7.salsalabs.org/MatrixSignupandQA  

SED 558: Nashville Part 1 of 2 24.09.2025 8:11

It's that time of year, and we just held our annual Hao-Fountain conference.

SED 557: Social Eyes 17.09.2025 6:06

Tess got invited to a birthday party and she was pleased as punch.

SED 556: Tess in the ER and ICU - Part 2 of 2 10.09.2025 13:13

Recently Tess had a seizure and went to the ER, so I want to tell you more about it.

SED 555: Tess in the ER and ICU 03.09.2025 9:43

Recently Tess had a seizure and went to the ER, so I want to tell you about it.

SED 554: Coffee Break 27.08.2025

Today I'll be telling you the second part of our recent trip to Syracuse.

SED 553: Find a Way to Entertain Yourself 20.08.2025 6:58

Today I'll be telling you the first part of our recent trip to Syracuse.

SED 552: Where to Go 13.08.2025 4:27

Today I'll be telling you about some locations that Tess enjoys.

SED 551: The Tess Schedule 06.08.2025 10:32

Today I'll be telling you about Tess's schedule on a typical day. I wrote about Tess's special diet on my blog he re a nd made a two-part Stronger Every Day podcast episode you can f ind here and here .  

SED 550: Radar 30.07.2025 8:05

Today I'll be sharing about a certain radar that Tess likes to use.

SED 549: What's Working So Far This Summer 23.07.2025 5:39

Today I'll be sharing about summer and what's working for me so far. Super Focus: Flow State Music - Alpha Binaural Beats, Study Music for Focus and Concentration https://youtu.be/p2_zDvtPQ-g?si=vINWreezp6K2tp5M

SED 548: Helping Tess with MRELD 16.07.2025 9:34

Today I'll be sharing a bit about Tess's progress when it comes to spoken language.  She has a language deficit called Mixed Receptive-Expressive Language Disorder. 

SED 547: Tess Tunes In 09.07.2025 6:55

Today I'll be sharing a bit about Tess's favorite thing to watch.

SED 546: Melatonin, or Travels Around Iceland 02.07.2025 15:35

Today I'll be sharing a bit about our family's recent trip to Iceland.

SED 545: Sensory Issues Deep Dive - Part 2 of 2 25.06.2025

Today we're doing part two of our deep dive about Tess's sensory issues.

SED 544: Sensory Issues Deep Dive - Part 1 of 2 18.06.2025 7:13

Today we're doing a deep dive about Tess's sensory issues.

SED 543: Sensory Issues and Things that Go Bump in the Night 11.06.2025 8:17

Today we're talking about something that's been keeping Tess up at night. Literally.

SED 542: What Tess Carries with Her 04.06.2025 8:09

Today we're talking about a few of Tess's favorite objects.