Bo Bigelow

Stronger Every Day

Kids EN ↓ 100 episodes

I quit my law job to be at home with my kids. Turns out our daughter Tess has a rare genetic disorder called Hao-Fountain Syndrome, or USP7. She's different. And now, so is everything else. #USP7 #HaoFountainSyndrome #autism

Author

Bo Bigelow

Category

Kids

Podcast website

www.portlandrootsmedia.com

Latest episode

Jul 8, 2026

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Episodes

SED 574: The Woods 14.01.2026

This week, Tess has had a life-threatening event, at a time when we're very far from the closest medical facility.

SED 573: Into the Woods 07.01.2026

This week, Tess has a life-threatening event, at a time when we're very far from the closest medical facility.

SED 572: Holiday Break 31.12.2025

This week, we're away on a ski vacation as a family. Let's check in with Tess.

SED 571: Waiting 24.12.2025

This week, we're on pins and needles, waiting for a very special milestone. 

SED 570: Still Ill 17.12.2025

This week, the illness continues, believe it or not. We'll check in on our girl.

SED 569: The Cup Is Already Broken 10.12.2025

This week, someone in our house is considerably under the weather.

SED 568: Never Get a Car from GM and Other True Stories 03.12.2025

This week, got a few fun stories for ya. Vignettes, if you will.

SED 567: Thankful for Empatica and the Epimonitor 26.11.2025

This week, a nifty tech device gets strapped to Tess's wrist.

SED 566: Riding the Waves of Life 19.11.2025

This week, an emerging artist in Maine works with multiple media and begins an exhibition at a local gallery.

SED 565: Backseat Driver 12.11.2025

This week, in the backseat of a car in Maine, someone had something to say.

SED 564: Sixteen 05.11.2025

This week, this very day in fact, Tess is celebrating a special birthday. This is sixteen.

SED 563: Tess the Freshman 29.10.2025

This week, we're talking about Tess's high school experience. She's been a freshman for about 8 weeks now, so I'll tell you how it's been for her so far.

SED 562: The Big Four 22.10.2025

There are four little things you can do as a Hao-Fountain patient to move things forward in a huge way. I'm gonna tell you how these four went for Tess and why it matters.

SED 561: We Interrupt this Party to Bring You A Special Bulletin 15.10.2025

Tess wanted something recently, and she used all her abilities to let me know what it was.

SED 560: Up the Hearts 08.10.2025

We took Tess on a special outing, somewhere she'd never been before.

SED 559: Nashville Part 2 of 2 01.10.2025

It's that time of year, and we just held our annual Hao-Fountain conference. Hao-Fountain patients and families:  please SIGN UP for our October 2nd Zoom about MATRIX, where we can help you sign up for Matrix and answer your questions. Sign up here:   https://usp7.salsalabs.org/MatrixSignupandQA  

SED 558: Nashville Part 1 of 2 24.09.2025

It's that time of year, and we just held our annual Hao-Fountain conference.

SED 557: Social Eyes 17.09.2025

Tess got invited to a birthday party and she was pleased as punch.

SED 556: Tess in the ER and ICU - Part 2 of 2 10.09.2025

Recently Tess had a seizure and went to the ER, so I want to tell you more about it.

SED 555: Tess in the ER and ICU 03.09.2025

Recently Tess had a seizure and went to the ER, so I want to tell you about it.

SED 554: Coffee Break 27.08.2025

Today I'll be telling you the second part of our recent trip to Syracuse.

SED 553: Find a Way to Entertain Yourself 20.08.2025

Today I'll be telling you the first part of our recent trip to Syracuse.

SED 552: Where to Go 13.08.2025

Today I'll be telling you about some locations that Tess enjoys.

SED 551: The Tess Schedule 06.08.2025

Today I'll be telling you about Tess's schedule on a typical day. I wrote about Tess's special diet on my blog he re a nd made a two-part Stronger Every Day podcast episode you can f ind here and here .  

SED 550: Radar 30.07.2025

Today I'll be sharing about a certain radar that Tess likes to use.

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