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Bo Bigelow

Stronger Every Day: For Parents of Children with Rare Diseases

Kids EN ↓ 605 episodes

This show tells stories about life with Tess, age 15, who has a rare genetic disorder called Hao-Fountain syndrome, Bo Bigelow is Tess's father and primary caretaker. Her disorder causes nonverbal autism, communication disorders, and epilepsy. Bo is an award-winning speaker, writer, filmmaker, and advocate for people with disabilities. He is also a practicing disability-rights attorney. Bo is a co-founder of DISORDER: The Rare Disease Film Festival and The Disorder Channel. Over the years, he's told Tess's story to NPR, NBC News, ABC News, The Washington Post, and The Atlantic.

Author

Bo Bigelow

Category

Podcast website

strongereveryday.libsyn.com

Latest episode

Jul 7, 2026

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Episodes

SED 101: The Sankey Conversation 19.12.2016 8:02

SED 100: Dana Takes Control 14.12.2016 16:33

SED 099: Tess and the Dangerous Places 06.12.2016 11:29

SED 098: Thankful for the Funny Lady 28.11.2016 11:35

SED 097: Go Away 22.11.2016 9:52

SED 096: Our Girl Was Tough on You 15.11.2016 8:50

RDFF Email Logo 10.11.2016

Facebook icon for email 10.11.2016

SED 095: When I Grow Up, I Wanna Be a Sweetie Pie 07.11.2016 9:34

SED 094: Hooray for This Conference Call 02.11.2016 13:39

SED 093: IEP Part 2 - Not the Way to Cleveland 25.10.2016 19:09

SED 092: Do You Really Want to Hurt Me? 18.10.2016 12:21

SED 091: Tess TV 11.10.2016 9:45

SED 090: Wanna Be Startin' Somethin' 04.10.2016 13:28

SED 089: Iron Man, Thor, and Tess 26.09.2016 11:27

SED 088: Getting to Know You 20.09.2016 14:21

SED 087: Bring It On -- New Battles in IEP-Land 13.09.2016 17:46

SED 086: Au Contraire, Ma Soeur 06.09.2016 15:32

SED 085: Tess Meets a Boy from Maryland 29.08.2016 11:58

SED 084: Super-Quick Genetics Update 09.08.2016 4:04

SED 083: PermaToddler (Intellectual Disabilities Part 2) 09.08.2016 12:25

SED 082: Here's the Deal (Intellectual Disabilities Part 1) 09.08.2016 12:15

SED 081: Tess's Island 01.08.2016 16:24

SED 080: Keys to the DeLorean 21.07.2016 10:29

SED 079: I'm On To You, Mike 18.07.2016 13:17

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