Stronger Every Day: For Parents of Children with Rare Diseases

SED 612: London Town Part 1 07.10.2026 12:43 ↓

This week, I'll give you the rundown on what went down in London town.

SED 611: Pitching at the Royal Society of Medicine 28.09.2026 3:11 ↓

This week, my work on Hao-Fountain brings me to the United Kingdom.

SED 610: Fidget Spinning 22.09.2026 9:00 ↓

This week, we're on the hunt for appropriate fidgets for Tess. And we stumble upon a great solution, after a briny snack.

SED 609: Rareground Can Probably Help You 15.09.2026 7:16 ↓

This week, I have almost a decade of running our foundation. Other founders are tearing their hair out, about something, and I think I can help.

SED 608: Hug Quality is Not Being Assessed 08.09.2026 10:19 ↓

This week, are standardized assessments a) painful, b) rage-inducing, c) depressing, or d) all of the above?

SED 607: Chatterbox 01.09.2026 5:23 ↓

This week, Tess meets someone new, as her sophomore year of high school gets underway.

SED 606: Muscle Man 25.08.2026 6:58 ↓

This week, Tess's bones have posed some problems in the past. Are they out of whack again?

SED 605: Into and Out of the Water 18.08.2026 7:09 ↓

This week, our crew is just back from vacation and as usual Tess had a surprise for us.

SED 604: Why We Are Here 08.08.2026 7:13 ↓

This week, perhaps you've wondered in a big-picture kind of sense why we are here. Well, Tess has some ideas about that.

SED 603: So You've Got Sleep Apnea 04.08.2026 7:31 ↓

This week, if you stop breathing multiple times during the night, that's actually not good for you. 

SED 602: Zero Oats 28.07.2026 4:31 ↓

This week, Tess heads to the hospital for an upper endoscopy, breakfast not included.

SED 601: Dad Camp Gets Company 22.07.2026 5:38 ↓

This week, let's check in on our girl Tess as our summer continues and we search for fun things to do.

SED 600: Beige and Salmon 15.07.2026 11:18 ↓

This week, we're trying to get home from Puerto Rico, where Tess has had a seizure.

SED 599: Awake and Combative 07.07.2026 16:57 ↓

This week, we're in Puerto Rico, where Tess has had a seizure and ambulance ride.

SED 598: Four in the Morning in Fajardo 30.06.2026 14:12 ↓

This week, we are in Fajardo, Puerto Rico, where Tess meets a friend while wading in a shallow pool, and they both seem to know something that we don't.

SED 597: The Pineapple Didn't Do It 22.06.2026 4:04 ↓

This week, the aftermath of Tess's medical event at school.

SED 596: Super Grateful This Thing Sucks 18.06.2026 7:39 ↓

This week, another close call with Tess, this time at school.

SED 595: The Case of the Strong Grip 10.06.2026 11:11 ↓

This week, detectives are on the case. What happens when the obvious answer to a mystery turns out to be wrong?

SED 594: One Stop Shop 02.06.2026 12:33 ↓

This week, what if there could be a one stop shop for medicine?

SED 593: I Like That 26.05.2026 7:16 ↓

This week, Tess participates in a meeting about her future and shares her thoughts at a critical juncture.

SED 592: Dad Camp 18.05.2026 11:00 ↓

This week, summer lasts about three months and Tess has summer school for 18 days of it.

SED 591: What Happens When the Pastry Department Never Opens 12.05.2026 16:01 ↓

This week, there's a bakery inside your body, and Tess's bakery has a staffing problem.

SED 590: A Hitch in Her Step 06.05.2026 5:13 ↓

This week, a mysterious hitch in Tess's step has us thinking of a rough time from long ago. 

SED 589: IEP Meeting - All About the Coffee part 2 28.04.2026 8:27 ↓

This week, the long-awaited part two about Tess's IEP for this year.

SED 588: Beach Plus Pica 21.04.2026 6:52 ↓

This week, Tess goes somewhere she hasn't been in many years, a place we've avoided for a very good reason.