Bo Bigelow

Stronger Every Day: For Parents of Children with Rare Diseases

Kids EN ↓ 605 episodes

This show tells stories about life with Tess, age 15, who has a rare genetic disorder called Hao-Fountain syndrome, Bo Bigelow is Tess's father and primary caretaker. Her disorder causes nonverbal autism, communication disorders, and epilepsy. Bo is an award-winning speaker, writer, filmmaker, and advocate for people with disabilities. He is also a practicing disability-rights attorney. Bo is a co-founder of DISORDER: The Rare Disease Film Festival and The Disorder Channel. Over the years, he's told Tess's story to NPR, NBC News, ABC News, The Washington Post, and The Atlantic.

Author

Bo Bigelow

Category

Kids

Podcast website

strongereveryday.libsyn.com

Latest episode

Jul 7, 2026

Where to listen?

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Episodes

SED 249: Getting on the Map Pt 2 22.10.2019
SED 248: Getting on the Map 15.10.2019
SED 247: For Tess, Seeing Is Believing 08.10.2019
SED 246: Back to Global Genes Pt 2 30.09.2019
SED 245: Back to Global Genes 24.09.2019
SED 244: The Light Fantastic 16.09.2019
SED 243: Hiring Bruce Banner 10.09.2019
SED 242: Live and Die by the Tides 03.09.2019
SED 241: I Want to Meet Governor Janet Mills 27.08.2019
SED 240: Becoming a Noticer 21.08.2019
SED 239: The Walnut Is Laughing 09.08.2019
SED 238: Megan 06.08.2019
SED 237: Sugar Baby 26.07.2019
SED 236: Worst Procrastinator Ever 23.07.2019
SED 235: Oh No You Didn't 16.07.2019
SED 234: Island Time 09.07.2019
SED 233: Happy 4th 02.07.2019
SED 232: After the Award 24.06.2019
SED 231: Breakfast in Bed 18.06.2019
SED 230: The Sovereign Nation of Tess 11.06.2019
SED 229: Science to the Rescue 03.06.2019
SED 228: Just the Check Please 27.05.2019
SED 227: Get a Move On 21.05.2019
SED 226: I'm a Big Fan 14.05.2019
SED 225: The Pearly Whites of Tess 07.05.2019

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